title: A web-based communication system for integrated care in cerebral palsy: design features, technical feasibility and usability.
abstract: We developed a secure, web-based system for parent-professional and inter-professional communication. The aim was to improve communication in the care of children with cerebral palsy. We conducted a six-month trial of the system in three Dutch health-care regions. The participants were the parents of 30 cerebral palsy patients and 120 professional staff involved in their care. Information about system usage was extracted from the system's database. The experience of the parents and professionals was evaluated by a questionnaire after six months. The system proved to be technically robust and reliable. A total of 21 parents (70%) and 66 professionals (55%) used the system. The parents submitted 111 questions and 59 responses, with a mean of 5 questions (range 1-17) and 3 responses (range 1-9) per parent. The professionals submitted 79 questions and 237 responses, with a mean of 2 questions (range 1-8) and 4 responses (range 1-23) per professional. Most parents (95%) and some professionals (30%) reported value in using the system, which ranged from efficiency and accessibility to flexibility and transparency. The web-based communication system was technically feasible and produced improved parent-professional and inter-professional communication. It may be especially valuable if frequent interventions or consultations about a child's care are required, involving complex care networks of different professionals and organisations.
authors.affiliation: Roessingh Research and Development, Institute for Research in Rehabilitation Medicine and Technology, Enschede, The Netherlands. j.gulmans@rrd.nl
authors.forename: Jitske
authors.initials: J
authors.lastname: Gulmans
authors.forename: Miriam M R
authors.initials: MM
authors.lastname: Vollenbroek-Hutten
authors.forename: Jacqueline J W
authors.initials: JJ
authors.lastname: Visser
authors.forename: Wendy Oude
authors.initials: WO
authors.lastname: Nijeweme-d'Hollosy
authors.forename: J E W C Lisette
authors.initials: JE
authors.lastname: van Gemert-Pijnen
authors.forename: Wim H
authors.initials: WH
authors.lastname: van Harten
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D002547:Cerebral Palsy / Q000628:therapy*; D002648:Child; D002675:Child, Preschool; D003142:Communication; D003258:Consumer Behavior; D019033:Delivery of Health Care, Integrated / Q000379:methods*; D005240:Feasibility Studies; D005260:Female; D006801:Humans; D020407:Internet; D007400:Interprofessional Relations; D008297:Male; D009426:Netherlands; D010290:Parents / Q000523:psychology; D011368:Professional-Family Relations; D011795:Surveys and Questionnaires