title: Scarce support changes lives.
abstract: Patients with rare diseases often feel isolated and can struggle to find information, but nurse specialists can help.
authors.forename: Anita
authors.initials: A
authors.lastname: Pati
mesh_terms: D002648:Child; D003955:Diagnostic Tests, Routine / Q000706:statistics & numerical data; D005190:Family; D006009:Glycogen Storage Disease Type II / Q000451:nursing; D006801:Humans; D010371:Pediatric Nursing / Q000592:standards; D035583:Rare Diseases / Q000451:nursing; D012944:Social Support; D013041:Specialties, Nursing