title: [Epidemiology and management of rare paediatric tumours within the framework of the French Society for Children Cancer].
abstract: Less than 1% of cancer occurs in children. With the progress made by national and international cooperative groups 75% of them are actually cured. However some entities have an incidence so weak that we can't actually establish standardized therapeutics guidelines. To improve our knowledge on these rare tumours a national organisation become necessary as well as an international collaboration. A French rare tumour committee was created within the French Society for Children Cancer (SFCE). Others European countries have such organisation. The objectives of these tasks groups are to enhance our knowledge of the real incidence of these rare tumours, their evolution, and to propose therapeutic recommendations for each of them. This article focuses on the specific French organization for rare tumours treatment. It also describes the draft for the creation of a new data base for prospective registry of clinical, therapeutics and follow up data. To provide a better understanding of these pathologies, the "Bulletin du Cancer's" editorial board decided to regularly publish an update on a rare paediatric tumour in a specific section.
authors.affiliation: CHU d'Angers, Département de pédiatrie, Angers, France. yvreguerre@chu-angers.fr
authors.forename: Y
authors.initials: Y
authors.lastname: Réguerre
authors.forename: B
authors.initials: B
authors.lastname: Lacour
authors.forename: N
authors.initials: N
authors.lastname: André
authors.forename: L
authors.initials: L
authors.lastname: Claude
authors.forename: F
authors.initials: F
authors.lastname: Hameury
authors.forename: F
authors.initials: F
authors.lastname: Lavrand
authors.forename: N
authors.initials: N
authors.lastname: Kalfa
authors.forename: M
authors.initials: M
authors.lastname: Peuchmaur
authors.forename: D
authors.initials: D
authors.lastname: Orbach
mesh_terms: D026683:Advisory Committees / Q000458:organization & administration*; D002648:Child; D016208:Databases, Factual; D005602:France; D006801:Humans; D009369:Neoplasms / Q000145:classification / Q000628:therapy*; D035583:Rare Diseases / Q000145:classification / Q000628:therapy*; D012955:Societies, Medical