title: Including the perspective of the adolescent in palliative care preferences.
abstract: Improving communication with an adolescent with a life-limiting or life-threatening disease is key to providing comprehensive care and support. A pediatric hospital in the Midwest uses a communication tool (CCCT) to facilitate conversations about the adolescent's wishes, beliefs, values, preferences and goals. Information gathered in a CCCT conversation becomes a key intervention to providing compassionate, appropriate care that is directed toward quality of life consistent with the adolescent's and family's goals.
authors.affiliation: Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. kchristenson@cmh.edu
authors.forename: Kathy
authors.initials: K
authors.lastname: Christenson
authors.forename: Sandra A
authors.initials: SA
authors.lastname: Lybrand
authors.forename: Claudia Ricks
authors.initials: CR
authors.lastname: Hubbard
authors.forename: Rosemary A
authors.initials: RA
authors.lastname: Hubble
authors.forename: Leslie
authors.initials: L
authors.lastname: Ahsens
authors.forename: Phil
authors.initials: P
authors.lastname: Black
mesh_terms: D000293:Adolescent; D003142:Communication; D003550:Cystic Fibrosis / Q000523:psychology / Q000628:therapy; D005260:Female; D006801:Humans; D010166:Palliative Care; D010358:Patient Participation; D057240:Patient Preference