title: MyOncofertility.org: a web-based patient education resource supporting decision making under severe emotional and cognitive overload.
abstract: Kristin, a 38-year-old female with breast cancer, was scheduled to begin treatment a week after receiving her diagnosis. Although she was in a four-year-long relationship, she had never thought about having kids. Kristin was told that embryo banking (IVF) was the best option for fertility preservation, and she had to decide immediately if she wanted biological children in order to start an egg-retrieval cycle. Because no other options were provided and she was uncertain about freezing embryos with her partner, she ended up foregoing fertility preservation prior to the treatments that ultimately left her infertile. Ethan, a 19-year-old male, was in the hospital for four days awaiting surgery to remove a pelvic sarcoma. The surgery required removal of his testes rendering him infertile. During those four days, no one talked to him or his family about sperm banking, even though it could hve been accomplished in a matter of minutes.
authors.affiliation: Office of STEM Education Partnerships - Learning Sciences and Computer Science, School of Education and Social Policy, Northwestern University, Evanston, IL, USA. kjona@northwestern.edu
authors.forename: Kemi
authors.initials: K
authors.lastname: Jona
authors.forename: Adam
authors.initials: A
authors.lastname: Gerber
mesh_terms: D000223:Adaptation, Psychological; D003071:Cognition; D003657:Decision Making; D005260:Female; D006801:Humans; D007246:Infertility / Q000209:etiology / Q000523:psychology*; D020407:Internet; D008297:Male; D009369:Neoplasms / Q000150:complications / Q000523:psychology*; D010353:Patient Education as Topic / Q000458:organization & administration*
references.citation: J Am Med Inform Assoc. 1997 Jul-Aug;4(4):285-300
references.pmid: 9223035
references.citation: J Cancer Surviv. 2007 Jun;1(2):146-55
references.pmid: 18648955
references.citation: J Pediatr Oncol Nurs. 2007 Sep-Oct;24(5):255-63
references.pmid: 17827491
references.citation: N Engl J Med. 2004 Jul 29;351(5):510; author reply 510
references.pmid: 15282363
references.citation: Med J Aust. 2009 Mar 2;190(5):247-9
references.pmid: 19296788
references.citation: J Clin Oncol. 2006 Jun 20;24(18):2917-31
references.pmid: 16651642
references.citation: J Clin Oncol. 2006 Nov 20;24(33):5334-5; author reply 5337-8
references.pmid: 17114671
references.citation: Diabetes Educ. 1996 Mar-Apr;22(2):140-5
references.pmid: 8697964
references.citation: Hum Reprod Update. 2004 May-Jun;10(3):251-66
references.pmid: 15140872
references.citation: J Am Med Inform Assoc. 1999 Jul-Aug;6(4):272-82
references.pmid: 10428001
references.citation: J Gen Intern Med. 1998 Mar;13(3):175-81
references.pmid: 9541374