Usefulness of a centralized system of data collection for the development of an international multicentre registry of spondyloarthritis.
OBJECTIVE
To present the usefulness of a centralized system of data collection for the development of an international multicentre registry of SpA.


METHODS
The originality of this registry consists in the creation of a virtual network of researchers in a computerized Internet database. From its conception, the registry was meant to be a dynamic acquiring system.


RESULTS
REGISPONSER has two developing phases (Conception and Universalization) and gathers several evolving secondary projects (REGISPONSER-EARLY, REGISPONSER-AS, ESPERANZA and RESPONDIA). Each sub-project answered the necessity of having more specific and complete data of the patients even from the onset of the disease so, in the end, obtaining a well-defined picture of SpAs spectrum in the Spanish population.


CONCLUSIONS
REGISPONSER is the first dynamic SpA database composed of cohorts with a significant number of patients distributed by specific diagnosis, which provides basic specific information of the sub-cohorts useful for patients' evaluation in rheumatology ambulatory consulting.
Schiotis
Ruxandra
R
Rheumatology Department, Hospital Universitario Reina Sofía, Avda. Menendez Pidal s/n, 14004 Córdoba, Spain.
Font
Pilar
P
Escudero
Alejandro
A
Zarco
Pedro
P
Almodovar
Raquel
R
Gratacós
Jordi
J
Mulero
Juan
J
Juanola
Xavier
X
Montilla
Carlos
C
Moreno
Estefanía
E
Ariza Ariza
Rafael
R
Collantes-Estevez
Eduardo
E
D016208:Databases, Factual / Q000592:standards*; D006801:Humans; D007391:International Cooperation; D016347:Medical Records Systems, Computerized / Q000592:standards*; D012042:Registries / Q000592:standards*; D013030:Spain / Q000453:epidemiology; D025241:Spondylarthritis / Q000145:classification / Q000453:epidemiology* / Q000503:physiopathology
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