Including the perspective of the adolescent in palliative care preferences.
Improving communication with an adolescent with a life-limiting or life-threatening disease is key to providing comprehensive care and support. A pediatric hospital in the Midwest uses a communication tool (CCCT) to facilitate conversations about the adolescent's wishes, beliefs, values, preferences and goals. Information gathered in a CCCT conversation becomes a key intervention to providing compassionate, appropriate care that is directed toward quality of life consistent with the adolescent's and family's goals.
Christenson
Kathy
K
Children's Mercy Hospitals and Clinics, Kansas City, MO, USA. kchristenson@cmh.edu
Lybrand
Sandra A
SA
Hubbard
Claudia Ricks
CR
Hubble
Rosemary A
RA
Ahsens
Leslie
L
Black
Phil
P
D000293:Adolescent; D003142:Communication; D003550:Cystic Fibrosis / Q000523:psychology / Q000628:therapy; D005260:Female; D006801:Humans; D010166:Palliative Care; D010358:Patient Participation; D057240:Patient Preference