title: Usefulness of a centralized system of data collection for the development of an international multicentre registry of spondyloarthritis.
abstract: OBJECTIVE
  To present the usefulness of a centralized system of data collection for the development of an international multicentre registry of SpA.
  
  
  METHODS
  The originality of this registry consists in the creation of a virtual network of researchers in a computerized Internet database. From its conception, the registry was meant to be a dynamic acquiring system.
  
  
  RESULTS
  REGISPONSER has two developing phases (Conception and Universalization) and gathers several evolving secondary projects (REGISPONSER-EARLY, REGISPONSER-AS, ESPERANZA and RESPONDIA). Each sub-project answered the necessity of having more specific and complete data of the patients even from the onset of the disease so, in the end, obtaining a well-defined picture of SpAs spectrum in the Spanish population.
  
  
  CONCLUSIONS
  REGISPONSER is the first dynamic SpA database composed of cohorts with a significant number of patients distributed by specific diagnosis, which provides basic specific information of the sub-cohorts useful for patients' evaluation in rheumatology ambulatory consulting.
authors.affiliation: Rheumatology Department, Hospital Universitario Reina Sofía, Avda. Menendez Pidal s/n, 14004 Córdoba, Spain.
authors.forename: Ruxandra
authors.initials: R
authors.lastname: Schiotis
authors.forename: Pilar
authors.initials: P
authors.lastname: Font
authors.forename: Alejandro
authors.initials: A
authors.lastname: Escudero
authors.forename: Pedro
authors.initials: P
authors.lastname: Zarco
authors.forename: Raquel
authors.initials: R
authors.lastname: Almodovar
authors.forename: Jordi
authors.initials: J
authors.lastname: Gratacós
authors.forename: Juan
authors.initials: J
authors.lastname: Mulero
authors.forename: Xavier
authors.initials: X
authors.lastname: Juanola
authors.forename: Carlos
authors.initials: C
authors.lastname: Montilla
authors.forename: Estefanía
authors.initials: E
authors.lastname: Moreno
authors.forename: Rafael
authors.initials: R
authors.lastname: Ariza Ariza
authors.forename: Eduardo
authors.initials: E
authors.lastname: Collantes-Estevez
mesh_terms: D016208:Databases, Factual / Q000592:standards*; D006801:Humans; D007391:International Cooperation; D016347:Medical Records Systems, Computerized / Q000592:standards*; D012042:Registries / Q000592:standards*; D013030:Spain / Q000453:epidemiology; D025241:Spondylarthritis / Q000145:classification / Q000453:epidemiology* / Q000503:physiopathology
references.citation: J Rheumatol. 2009 Nov;36(11):2512-6
references.pmid: 19833749
references.citation: Rheumatology (Oxford). 2009 Apr;48(4):404-9
references.pmid: 19208685
references.citation: J Rheumatol. 1999 Apr;26(4):951-4
references.pmid: 10229426
references.citation: Rheumatology (Oxford). 2010 Jan;49(1):73-81
references.pmid: 19605374
references.citation: Ann Rheum Dis. 2001 Mar;60(3):199-206
references.pmid: 11171678
references.citation: Public Health Rev. 1993-1994;21(3-4):263-70
references.pmid: 8047653
references.citation: Rheumatology (Oxford). 2007 Aug;46(8):1309-15
references.pmid: 17526930
references.citation: Clin Exp Rheumatol. 2010 Nov-Dec;28(6 Suppl 63):S33-9
references.pmid: 21176420
references.citation: Clin Exp Rheumatol. 2009 May-Jun;27(3):439-45
references.pmid: 19604436