Challenges in identifying Native Hawaiians and Pacific Islanders in population-based cancer registries in the U.S.
Lack of disaggregated data for Native Hawaiians and Pacific Islanders (NHPIs) in the U.S. has resulted in severe gaps in understanding health disparities and unique health needs of NHPIs. Telephone interviews were conducted with 272 cancer patients identified by a population-based cancer registry. The self-reported NHPIs status was compared with that identified by the registry. Sensitivity, Specificity, Positive Predictive Value (PPV), and Negative Predictive Value (NPV) were calculated. Alternative NHPIs identification methods were explored. The registry had acceptable sensitivity (89%), specificity (96%) and NPV (99%), but low PPV (62%) in identifying NHPIs. Using additional information on surname and birthplace from the registry improved the identification of NHPIs, but either increased the false positive or decreased the counts of true NHPIs cases. Improved data collection methods and practices in identifying NHPIs in population-based cancer registries are needed and caution in interpreting cancer data for NHPIs is warranted.
Liu
Lihua
L
Department of Preventive Medicine, Keck School of Medicine, University of Southern California, Los Angeles, CA 90033, USA. lihualiu@usc.edu
Tanjasiri
Sora Park
SP
Cockburn
Myles
M
D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D006254:Hawaii / Q000208:ethnology; D006801:Humans; D007407:Interviews as Topic; D015141:Los Angeles / Q000453:epidemiology; D008297:Male; D008875:Middle Aged; D044468:Native Hawaiian or Pacific Islander; D009369:Neoplasms / Q000453:epidemiology / Q000208:ethnology*; D011159:Population Surveillance / Q000379:methods*; D012042:Registries; D014481:United States; D055815:Young Adult
Health Soc Work. 1995 Feb;20(1):46-51
9154425
Am J Public Health. 2000 Nov;90(11):1731-4
11076241
Cancer Causes Control. 2004 Apr;15(3):243-53
15090719
Cancer Causes Control. 2006 Nov;17(9):1155-62
17006721
Cancer Causes Control. 2006 Aug;17(6):771-81
16783605
Ethn Dis. 2005 Autumn;15(4 Suppl 5):S5-111-9
16312944
Am J Public Health. 2002 Mar;92(3):443-4
11867327
J Clin Oncol. 2007 Dec 20;25(36):5738-41
18089868
Ann Epidemiol. 2000 Nov;10(8 Suppl):S22-34
11189089
Pac Health Dialog. 2007 Mar;14(1):119-27
19772147
Am J Clin Nutr. 1991 Jun;53(6 Suppl):1586S-1594S
2031491
Asian Am Pac Isl J Health. 1994 Summer;2(3):195-211
11567272
Am J Phys Anthropol. 1997 Oct;104(2):201-10
9386827
Am J Public Health. 2003 Dec;93(12):2093-8
14652340
Am J Public Health. 1991 Feb;81(2):164-7
1990852
J Natl Cancer Inst. 1996 Jun 19;88(12):812-6
8637047
Cancer Causes Control. 2007 Sep;18(7):713-22
17562192
Cancer Causes Control. 2005 Aug;16(6):713-23
16049810