title: Shared decision-making in neonatology: an utopia or an attainable goal?
abstract: Medical decision making is sometimes considered as a relatively simple process in which a decision may be made by the physician, by the patient, or by both patient and physician working together. There are three main models of decision making--paternalism, patient informed choice, and shared decision-making (SDM), having each one of these drawbacks and limitations. Historically, the most adopted one was the paternalism (strongly 'Doctor knows best'), where the professional made the decision based on what he/she considered to be as the patient's best interest, not necessarily contemplating patient's will and wishes. Currently, at the antipodes, the patient informed choice, where the patient makes his/her decision based on information received from the physician with no possible interference of professional's own preferences, seems to be the preferred relationship standard. SDM represents an intermediate approach between the two above-mentioned opposite models, being a medical process that involves actively the doctor and the patient who both bring their own facts and preferences to reach an agreement on the decision on if, when and how to treat a disease. This model, being characterized by elements pertaining to both the others, is gaining popularity in several medical and surgical scenarios whenever a competent patient is able to actively participate into the decisional process. On this basis can this model be implemented also in a Neonatology Intensive Care Unit where little patients are--by nature--incompetent, being the diagnostic/therapeutic choices taken by parents? We focused on this complex item considering four possible different scenarios and it seems to us that it could be possible to introduce such an approach, providing that parents' empowerment, a good physician's communication skill and consideration of all cultural, religious, economic, and ethic values of every single actor have been fairly taken into account.
authors.affiliation: Forensic Science Department, Cagliari Teaching Hospital and University, SS 554 Bivio Sestu, Monserrato. ernestodaloja@medicina.unica.it
authors.forename: Ernesto
authors.initials: E
authors.lastname: D'Aloja
authors.forename: Laura
authors.initials: L
authors.lastname: Floris
authors.forename: Mima
authors.initials: M
authors.lastname: Muller
authors.forename: Francesca
authors.initials: F
authors.lastname: Birocchi
authors.forename: Vassilios
authors.initials: V
authors.lastname: Fanos
authors.forename: Francesco
authors.initials: F
authors.lastname: Paribello
authors.forename: Roberto
authors.initials: R
authors.lastname: Demontis
mesh_terms: D003142:Communication; D003657:Decision Making / Q000502:physiology*; D022143:Family Nursing / Q000379:methods / Q000639:trends; D006040:Goals; D006801:Humans; D007231:Infant, Newborn; D009359:Neonatology / Q000379:methods*; D011368:Professional-Family Relations; D014601:Utopias