Quality of life for children with life-limiting and life-threatening illnesses: description and evaluation of a regional, collaborative model for pediatric palliative care.
The care of children in the U.S. with life-limiting illnesses is inadequate. Misallocated resources, flawed assumptions and models of care, and a lack of appropriate professional education foster a costly, inefficient system that falls short of its true potential. This article details the evolution of a regional, shared approach to address these issues, the District of Columbia Pediatric Palliative Care Collaboration (DCPPCC), and includes its evolution, preliminary clinical results, and assessment of barriers encountered.
Rogers
Susan K
SK
District of Columbia Pediatric Palliative Care Collaboration. srogers@dcppcc.org
Gomez
Carlos F
CF
Carpenter
Philip
P
Farley
Jean
J
Holson
Debbie
D
Markowitz
Miriam
M
Rood
Brian
B
Smith
Karen
K
Nigra
Peter
P
D000293:Adolescent; D035843:Biomedical Research / Q000458:organization & administration; D002648:Child; D002675:Child, Preschool; D003266:Continuity of Patient Care / Q000458:organization & administration; D004219:District of Columbia; D005260:Female; D006282:Health Personnel / Q000458:organization & administration* / Q000523:psychology; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007318:Inservice Training; D008297:Male; D010166:Palliative Care / Q000458:organization & administration* / Q000523:psychology; D010372:Pediatrics / Q000458:organization & administration*; D015397:Program Evaluation; D011787:Quality of Health Care / Q000458:organization & administration; D011788:Quality of Life; D012017:Referral and Consultation / Q000458:organization & administration; D013727:Terminal Care / Q000458:organization & administration* / Q000523:psychology