title: Perceived support among families deciding about organ donation for their loved ones: donor vs nondonor next of kin.
abstract: BACKGROUND
  Families' experiences in the hospital influence their decisions about donating organs of brain-dead relatives. Meeting families' support needs during this traumatic time is an obligation and a challenge for critical care staff.
  
  
  OBJECTIVE
  (1) To elicit family members' accounts of various types of support received and perceived quality of care for themselves and their loved ones when they made the donation decision, and (2) to examine the relationship between these factors and the families' donation decision.
  
  
  METHODS
  Retrospective telephone interviews of 199 families from different regions of the country were completed. Aside from demographic data, the survey addressed perceptions of informational, emotional, and instrumental support and quality of care.
  
  
  RESULTS
  One hundred fifty-four study participants consented to donation; 45 declined. White next of kin were significantly more likely than African Americans to consent. Specific elements of reported support were significantly associated with consent to donate. Donor and nondonor families had differing perceptions of quality care for themselves and their loved ones. Receiving understandable information about organ donation was the strongest predictor of consent.
  
  
  CONCLUSIONS
  Specific supportive behaviors by staff as recounted by family members of potential donors were significantly associated with consent to donation. These behaviors lend themselves to creative training and educational programs for staff. Such interventions are essential not only for next of kin of brain-dead patients, but also for staff and ultimately for the public as a whole.
authors.affiliation: Department of Medical Education and the Alden March Bioethics Institute at Albany Medical College in Albany, New York 12208, USA. jacobyl@mail.amc.edu
authors.forename: Liva
authors.initials: L
authors.lastname: Jacoby
authors.forename: James
authors.initials: J
authors.lastname: Jaccard
mesh_terms: D000293:Adolescent; D000328:Adult; D001741:Black or African American; D000368:Aged; D000369:Aged, 80 and over; D002648:Child; D002675:Child, Preschool; D005190:Family; D005260:Female; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction / Q000208:ethnology; D011787:Quality of Health Care; D013727:Terminal Care; D014019:Tissue Donors / Q000523:psychology*; D009927:Tissue and Organ Procurement; D044465:White People; D055815:Young Adult