title: Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with CF.
abstract: BACKGROUND
  Adherence to CF treatments is poor, which can lead to negative health outcomes. The objective of our study was to qualitatively investigate the barriers and facilitators of self-management among older adolescents and adults with CF.
  
  
  METHODS
  Individual semi-structured interviews were conducted, audio-taped, transcribed verbatim and coded to identify common themes.
  
  
  RESULTS
  Twenty-five patients were interviewed. Four broad themes were identified: Barriers to Self-Management (e.g., treatment burden (identified by 64% of patients), accidental or purposeful forgetting (60%), no perceived benefit (56%)), Facilitators of Self-Management (e.g., CF clinic visits (76%), social support (68%), perceived benefit (68%)), Substitution of Alternative Approaches to Conventional Management (36%) and Planned Non-adherence (32%).
  
  
  CONCLUSIONS
  Older adolescents and adults with CF identified many barriers and facilitators of adherence that may be amenable to self-management counseling strategies, particularly the use of health feedback.
authors.affiliation: Family and Community Health Division, Center for Health Equity Research, University of Pennsylvania School of Nursing, Fagin Hall 418 Curie Blvd., Philadelphia, PA 19104-4217, United States.
authors.forename: Maureen
authors.initials: M
authors.lastname: George
authors.forename: Devin
authors.initials: D
authors.lastname: Rand-Giovannetti
authors.forename: Michelle N
authors.initials: MN
authors.lastname: Eakin
authors.forename: Belinda
authors.initials: B
authors.lastname: Borrelli
authors.forename: Melissa
authors.initials: M
authors.lastname: Zettler
authors.forename: Kristin A
authors.initials: KA
authors.lastname: Riekert
mesh_terms: D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D017281:Cost of Illness; D003550:Cystic Fibrosis / Q000503:physiopathology / Q000523:psychology*; D005246:Feedback; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D010349:Patient Compliance / Q000523:psychology*; D010465:Perception; D000297:Psychology, Adolescent; D011788:Quality of Life; D012648:Self Care / Q000523:psychology*; D012944:Social Support; D055815:Young Adult