title: Moral distress experienced by health care professionals who provide home-based palliative care.
abstract: Health care providers regularly encounter situations of moral conflict and distress in their practice. Moral distress may result in unfavorable outcomes for both health care providers and those in their care. The purpose of this study was to examine the experience of moral distress from a broad range of health care occupations that provide home-based palliative care as the initial step of addressing the issue. A critical incident approach was used in qualitative interviews to elicit the experiences on moral distress from 18 health care providers drawn from five home visiting organizations in south central Ontario, Canada. Most participants described at least two critical incidents in their interview generating a total of 47 critical incidents. Analyses of the critical incidents revealed 11 issues that triggered moral distress which clustered into three themes, (a) the role of informal caregivers, b) challenging clinical situations and (c) service delivery issues. The findings suggest that the training and practice environments for health care providers need to be designed to recognize the moral challenges related to day-to-day practice.
authors.affiliation: McMaster University, Kevin Brazil, 105 Main Street East, Level P1, Hamilton, Ontario L8N 1G6, Canada. brazilk@mcmaster.ca
authors.forename: Kevin
authors.initials: K
authors.lastname: Brazil
authors.forename: Sharon
authors.initials: S
authors.lastname: Kassalainen
authors.forename: Jenny
authors.initials: J
authors.lastname: Ploeg
authors.forename: Denise
authors.initials: D
authors.lastname: Marshall
mesh_terms: D017028:Caregivers; D003695:Delivery of Health Care; D005260:Female; D006282:Health Personnel / Q000523:psychology*; D006699:Home Care Services; D006801:Humans; D008875:Middle Aged; D009014:Morals; D009864:Ontario; D010166:Palliative Care / Q000523:psychology*; D036301:Qualitative Research; D012380:Role; D013315:Stress, Psychological