title: FACT-MNG: tumor site specific web-based outcome instrument for meningioma patients.
abstract: To formulate Functional Assessment of Cancer Therapy-Meningioma (FACT-MNG), a web-based tumor site-specific outcome instrument for assessing intracranial meningioma patients following surgical resection or stereotactic radiosurgery. We surveyed the relevant literature available on intracranial meningioma surgery and subsequent outcomes (38 papers), making note of which, if any, QOL/outcome instruments were utilized. None of the surgveyed papers included QOL assessment specific to tumor site. We subsequently developed questions that were relevant to the signs and symptoms that characterize each of 11 intracranial meningioma sites, and incorporated them into a modified combination of the Functional Assessment of Cancer Therapy-Brain (FACT-BR) and SF36 outcome instruments, thereby creating a new tumor site-specific outcome instrument, FACT-MNG. With outcomes analysis of surgical and radiosurgical treatments becoming more important, measures of the adequacy and success of treatment are needed. FACT-MNG represents a first effort to formalize such an instrument for meningioma patients. Questions specific to tumor site will allow surgeons to better assess specific quality of life issues not addressed in the past by more general questionnaires.
authors.affiliation: University of Calfiornia, Irvine, 3034 Hewitt Hall, Bldg. 843, Irvine, CA 92697-4120, USA.
authors.forename: D
authors.initials: D
authors.lastname: Zlotnick
authors.forename: S N
authors.initials: SN
authors.lastname: Kalkanis
authors.forename: A
authors.initials: A
authors.lastname: Quinones-Hinojosa
authors.forename: K
authors.initials: K
authors.lastname: Chung
authors.forename: M E
authors.initials: ME
authors.lastname: Linskey
authors.forename: R L
authors.initials: RL
authors.lastname: Jensen
authors.forename: F
authors.initials: F
authors.lastname: DeMonte
authors.forename: F G
authors.initials: FG
authors.lastname: Barker
authors.forename: C A
authors.initials: CA
authors.lastname: Racine
authors.forename: M S
authors.initials: MS
authors.lastname: Berger
authors.forename: P M
authors.initials: PM
authors.lastname: Black
authors.forename: M
authors.initials: M
authors.lastname: Cusimano
authors.forename: L N
authors.initials: LN
authors.lastname: Sekhar
authors.forename: A
authors.initials: A
authors.lastname: Parsa
authors.forename: M
authors.initials: M
authors.lastname: Aghi
authors.forename: Michael W
authors.initials: MW
authors.lastname: McDermott
mesh_terms: D006801:Humans; D020407:Internet; D008577:Meningeal Neoplasms / Q000601:surgery*; D008579:Meningioma / Q000601:surgery*; D017063:Outcome Assessment, Health Care; D011788:Quality of Life; D016634:Radiosurgery