title: TEDIS: an information system dedicated to patients with pervasive developmental disorders.
abstract: Pervasive Development Disorders (PDD) represent a life disorder which significantly affects individuals and families. It requires long term specialized institutions health care, education and social accompaniment. In France, 350,000 to 600,000 patients are estimated to be affected and 5,000 to 8,000 newborns will develop the disorder every year. In 2005, Autism Resource Centres were created in each of the 23 regions in France, to support the PDD hospital reference centres in providing formal clinical assessment for each patient. Such assessments will support the prescription of health care measures, educative and intuitional orientation and accompaniment. An information system called TEDIS was designed to assist the psychiatrists and multidisciplinary medical experts at Necker child-psychiatry hospital, in organizing PDD patient's information and providing ground for improving knowledge about the disorder, its epidemiology and underlying biological mechanisms. The professionals' involvement from the beginning in the development process facilitated TEDIS design and implementation. The results of first experimentations are encouraging. They are described as well as the short term and mid-term deployment planning.
authors.affiliation: Department of Biostatistics and Medical Informatics, APHP-Necker Enfants Malades Hospital, UPRES EA 4067-Paris Descartes University, Paris, France. mohamed.ben-said@ext.parisdescartes.fr
authors.forename: Mohamed
authors.initials: M
authors.lastname: Ben Saïd
authors.forename: Laurence
authors.initials: L
authors.lastname: Robel
authors.forename: Erwan
authors.initials: E
authors.lastname: Vion
authors.forename: Bernard
authors.initials: B
authors.lastname: Golse
authors.forename: Jean Philippe
authors.initials: JP
authors.lastname: Jais
authors.forename: Paul
authors.initials: P
authors.lastname: Landais
mesh_terms: D002908:Chronic Disease; D003628:Database Management Systems / Q000458:organization & administration*; D020000:Decision Support Systems, Clinical / Q000458:organization & administration*; D002658:Developmental Disabilities / Q000175:diagnosis* / Q000453:epidemiology* / Q000628:therapy; D057286:Electronic Health Records / Q000458:organization & administration*; D005602:France / Q000453:epidemiology; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D008498:Medical Record Linkage / Q000379:methods*