Women front and center: the opportunities of involving women in participatory health research worldwide.
Participatory research involving communities, especially women, is increasingly recognized as a valuable and scientifically sound approach to improve the relevance of a study, the accuracy of data collection and interpretation, the adherence to study procedures, and the likelihood of adopting any resulting intervention. This approach has interdisciplinary roots dating back more than half a century. Although widely used in community-based conservation and development projects worldwide, international public health research has yet to fully embrace this inclusive approach, which requires the sharing of power with research participants and a more involved relationship building process with communities. In return, the gap between publication and public action can be narrowed because ownership of the research process by an empowered community can lay the foundation for an accelerated implementation of interventions tailored to community needs and based on research results. This article draws on the professional experiences of the authors as well as published examples of international participatory health research with women. Factors critical for the success of participatory research are discussed, including attention to initial planning, early community involvement, conceptual clarity, defined community benefits, and joint interpretation of results, as well as translation to action. It includes common challenges and strategies to overcome them, such as conflict resolution and data ownership.
Decker
Martha
M
Department of Medicine, University of California, San Francisco, California 94143-0874, USA. mara@maradecker.com
Hemmerling
Anke
A
Lankoande
Fatimata
F
D057191:Capacity Building; D055812:Community-Based Participatory Research / Q000266:history / Q000458:organization & administration*; D003159:Community-Institutional Relations; D005260:Female; D014943:Global Health; D006302:Health Services Research / Q000458:organization & administration*; D049673:History, 20th Century; D006801:Humans; D012108:Research Personnel; D016387:Women's Health