title: Spina bifida: what we learned from consumers.
abstract: An overview of the importance of "listening to consumers" is the primary theme of this article. This article features perspectives of consumers as to their transition experiences with descriptions of its positive and challenging aspects as a means of illustrating this period of time in "real-life" terms. Summary reflections of the themes of consumers presented highlight the recommendations for professionals who provide services to youth and young adults.
authors.affiliation: Department of Pediatrics, Keck School of Medicine, University of Southern California, 5000 Sunset Boulevard, Los Angeles, CA 90027, USA. CLBetz@aol.com
authors.forename: Cecily L
authors.initials: CL
authors.lastname: Betz
authors.forename: Ronna
authors.initials: R
authors.lastname: Linroth
authors.forename: Carley
authors.initials: C
authors.lastname: Butler
authors.forename: Jill
authors.initials: J
authors.lastname: Caruso
authors.forename: Amy
authors.initials: A
authors.lastname: Colgan-Niemeyer
authors.forename: Jamie
authors.initials: J
authors.lastname: Smith
mesh_terms: D003256:Community Participation / Q000379:methods*; D003266:Continuity of Patient Care / Q000458:organization & administration*; D006801:Humans; D011787:Quality of Health Care; D016135:Spinal Dysraphism / Q000534:rehabilitation*; D018511:Systems Integration