title: Using the spina bifida life course model in clinical practice: an interdisciplinary approach.
abstract: The Life Course Model for patients, families, caregivers, teachers, and clinicians was developed with support by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, for individuals with spina bifida. The Life Course Model facilitates a developmental approach to assessment and intervention along life's trajectory. This Life Course Model provides information about key developmental milestones for particular age groups, validated assessments that can be performed by clinicians or teachers to determine if milestones have been reached, useful suggestions for intervening in creative ways at each step, and evidence-based references. In this article, the authors introduce the viewpoints of several key clinicians who are involved in the care of individuals with spina bifida and how the Life Course Model can assist them, their patients, and their families in the process of assessment, intervention, collaboration with other clinicians, and follow-up. A case study is used to demonstrate the experience of comprehensive and collaborative management in transitioning a child and his family from infancy to adulthood.
authors.affiliation: Department of Veterans Affairs, Human Engineering Research Laboratories, VA Pittsburgh Healthcare System, 7180 Highland Drive, Pittsburgh, PA 15206, USA. dicianno@pitt.edu
authors.forename: Brad E
authors.initials: BE
authors.lastname: Dicianno
authors.forename: Andrea D
authors.initials: AD
authors.lastname: Fairman
authors.forename: Shannon B
authors.initials: SB
authors.lastname: Juengst
authors.forename: Patricia G
authors.initials: PG
authors.lastname: Braun
authors.forename: T Andrew
authors.initials: TA
authors.lastname: Zabel
mesh_terms: D003266:Continuity of Patient Care / Q000458:organization & administration*; D006801:Humans; D033183:Interdisciplinary Communication; D017146:Models, Organizational; D015397:Program Evaluation / Q000379:methods*; D011788:Quality of Life; D016135:Spinal Dysraphism; D014481:United States