Spina bifida: what we learned from consumers.
An overview of the importance of "listening to consumers" is the primary theme of this article. This article features perspectives of consumers as to their transition experiences with descriptions of its positive and challenging aspects as a means of illustrating this period of time in "real-life" terms. Summary reflections of the themes of consumers presented highlight the recommendations for professionals who provide services to youth and young adults.
Betz
Cecily L
CL
Department of Pediatrics, Keck School of Medicine, University of Southern California, 5000 Sunset Boulevard, Los Angeles, CA 90027, USA. CLBetz@aol.com
Linroth
Ronna
R
Butler
Carley
C
Caruso
Jill
J
Colgan-Niemeyer
Amy
A
Smith
Jamie
J
D003256:Community Participation / Q000379:methods*; D003266:Continuity of Patient Care / Q000458:organization & administration*; D006801:Humans; D011787:Quality of Health Care; D016135:Spinal Dysraphism / Q000534:rehabilitation*; D018511:Systems Integration