Cross-survey differences in national estimates of numbers of caregivers of disabled older adults.
BACKGROUND
Public policy regarding family caregiving for disabled older adults is affected by their estimated number, their attributes, and the services provided. The available national surveys, however, do not have a uniform approach to ascertaining the number of family caregivers, so their estimated number varies widely.


METHODS
This article looks at nationally representative, population-based surveys of family caregivers conducted between 1985 and 2010 to find methods pertinent to ascertaining the number of caregivers. The surveys' design, definition of disability, and approach to identifying and defining caregivers of disabled adults aged sixty-five and older were identified, and cross-survey estimates were compared.


RESULTS
Published estimates of the numbers of caregivers of older disabled adults ranged from 2.7 million to 36.1 million in eight national surveys conducted between 1992 and 2009. The surveys were evenly divided between caregivers identified by disabled older adults (n= 4, "disability surveys") and self-identified (n= 4, "caregiver self-identification surveys"). The estimated number of family caregivers of disabled adults aged sixty-five and older was, on average, 4.8 million in disability surveys and 24.4 million in caregiver self-identification surveys.


CONCLUSIONS
The number of family caregivers of disabled older adults estimated by national surveys varied substantially. Greater consistency in defining caregivers could yield more informative estimates and also advance policy efforts to more effectively monitor and support family caregivers.
Giovannetti
Erin R
ER
Division of Geriatrics and Gerontology, Johns Hopkins University School of Medicine, Baltimore, MD 21224, USA. erandgil@jhmi.edu
Wolff
Jennifer L
JL
D000367:Age Factors; D000368:Aged; D000369:Aged, 80 and over; D017028:Caregivers / Q000145:classification / Q000706:statistics & numerical data*; D003430:Cross-Sectional Studies; D006233:Persons with Disabilities / Q000145:classification / Q000706:statistics & numerical data*; D015577:Geriatric Assessment; D019538:Health Care Surveys; D006291:Health Policy / Q000639:trends; D006801:Humans; D012106:Research; D014481:United States