In the public interest: assessing expert and stakeholder influence in public deliberation about biobanks.
Providing technical and experiential information without overwhelming participants' perspectives presents a major challenge to public involvement in policy decisions. This article reports the design and analysis of a case study on incorporating expert and stakeholder knowledge without including them as deliberators, while supporting deliberative participants' ability to introduce and critically assess different perspectives. Analysis of audio-recorded deliberations illustrates how expert and stakeholder knowledge was cited, criticized and incorporated into deliberations. In conclusion, separating experts and stakeholders from deliberations may be an important prima facie principle when the goal is to enhance citizen representation on technical issues and related policy.
Department of Clinical Epidemiology and Biostatistics, McMaster University, Hamilton, ON, Canada. macleast@mcmaster.ca
Samantha
S
MacLean
Michael M
MM
Burgess
D018070:Biological Specimen Banks; D001955:British Columbia; D003256:Community Participation; D005104:Expert Testimony; D006801:Humans; D011050:Policy Making; D011639:Public Opinion