Role for the families in child involving research.
In a clinical research which involves disabled children, family plays a fundamental role for the stipulation of consent - according to international ethical guidelines - as well as it has to be considered one of the main caregivers in this context. Therefore this fundamental role has to be recognized when considering the development of pediatric research programs, in which the family should be involved. In fact, therapeutic alliance between families and researchers should be considered, not only as a fundamental basis for children health and well-being, but also as an important resource for better outcomes in terms of research, health care and efficacy.
Institute of Bioethics, A. Gemelli School of Medicine, Università Cattolica del Sacro Cuore, Rome, Italy. vmele@rm.unicatt.it
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D035843:Biomedical Research; D002648:Child; D005190:Family; D006801:Humans; D012380:Role; D009626:Terminology as Topic