title: The European cystic fibrosis patient registry: the power of sharing data.
authors.forename: David N
authors.initials: DN
authors.lastname: Sheppard
mesh_terms: D003299:Cooperative Behavior; D003550:Cystic Fibrosis / Q000453:epidemiology* / Q000628:therapy*; D005060:Europe / Q000453:epidemiology; D006801:Humans; D012042:Registries / Q000706:statistics & numerical data*