title: Moving to place: childhood cancer treatment decision making in single-parent and repartnered family structures.
abstract: Few researchers have studied how parents from diverse family structures cope with childhood chronic illness. We designed this study to discern the childhood cancer treatment decision-making (TDM) process in these families. Using grounded theory, we interviewed 15 custodial parents, nonresidential parents, and stepparents who had previously made a major treatment decision for their children with cancer. "Moving to place" was the central psychosocial process by which parents negotiated involvement in TDM. Parents moved toward or were moved away from involvement based on parent position in the family (custodial, nonresidential, and stepparent), prediagnosis family dynamics, and time since diagnosis. Parents used the actions of stepping up, stepping back, being pushed, and stepping away to respond to the need for TDM. Parents faced additional stressors because of their family situations, which affected the TDM process. Findings from this study provide important insight into diverse families and their unique parental TDM experiences.
authors.affiliation: Children's National Medical Center, Washington, DC 20010, USA. kakelly@cnmc.org
authors.forename: Katherine Patterson
authors.initials: KP
authors.lastname: Kelly
authors.forename: Lawrence
authors.initials: L
authors.lastname: Ganong
mesh_terms: D000293:Adolescent; D000328:Adult; D000367:Age Factors; D000465:Algorithms; D002648:Child; D002675:Child, Preschool; D002908:Chronic Disease; D003657:Decision Making; D005195:Family Relations; D005260:Female; D005843:Geography; D006305:Health Status Indicators; D006801:Humans; D007223:Infant; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology*; D016487:Parenting / Q000523:psychology*; D010372:Pediatrics; D013637:Tape Recording; D055815:Young Adult