title: Commentary.
authors.affiliation: Nick.Fahy@ec.europa.eu
authors.forename: Nick
authors.initials: N
authors.lastname: Fahy
mesh_terms: D003550:Cystic Fibrosis / Q000453:epidemiology* / Q000628:therapy*; D005060:Europe / Q000453:epidemiology; D006801:Humans; D035583:Rare Diseases / Q000453:epidemiology; D012042:Registries / Q000592:standards*