title: The impact of early powered mobility on parental stress, negative emotions, and family social interactions.
abstract: Powered mobility has been found to have positive effects on young children with severe physical disabilities, but the impact on the family has been less well documented. We evaluated the impact of early powered mobility on parental stress, negative emotions, perceived social interactions, and parental satisfaction with wheelchair characteristics such as size and durability. The participants were parents of 23 children with disabilities-10 with orthopedic disabilities (average age 30.1 months) and 13 with cerebral palsy (average age 47.0 months). Pretest assessments were completed two times: at initial wheelchair evaluation and at wheelchair delivery. A posttest assessment was completed after each child had used the wheelchair for 4-6 months. Parents reported a lower perceived level of stress at the time of wheelchair delivery, although the magnitude of this effect was fairly small, standardized mean difference (δ) = .27. They also reported an increased satisfaction with their child's social and play skills (δ = .38), ability to go where desired (δ = .86), sleep/wake pattern (δ = .61), and belief that the general public accepts their child (δ = .39) after several months using the wheelchair. Parents reported an increase in interactions within the family at the time of wheelchair delivery (δ = .66). There was no decrease in negative emotions. Parents were satisfied with most factors relating to the wheelchair itself, with areas of concern being wheelchair size and difficulty adjusting the wheelchair. The findings suggest that self-initiated powered mobility for a young child had a positive impact on the family.
authors.affiliation: Communication Sciences and Disorders Department, Oklahoma State University, Stillwater, OK, USA. tefftd@sbcglobal.net
authors.forename: Donita
authors.initials: D
authors.lastname: Tefft
authors.forename: Paula
authors.initials: P
authors.lastname: Guerette
authors.forename: Jan
authors.initials: J
authors.lastname: Furumasu
mesh_terms: D002547:Cerebral Palsy / Q000523:psychology; D002648:Child; D002675:Child, Preschool; D003625:Data Collection; D002658:Developmental Disabilities / Q000523:psychology; D019988:Children with Disabilities / Q000523:psychology*; D004644:Emotions; D005195:Family Relations; D006801:Humans; D007223:Infant; D051346:Mobility Limitation; D010290:Parents / Q000523:psychology*; D012928:Social Desirability; D058992:Social Participation / Q000523:psychology; D013315:Stress, Psychological; D014910:Wheelchairs / Q000523:psychology*