title: [The development of health information with the involvement of consumers at the German Institute for Quality and Efficiency in Health Care (IQWiG)].
abstract: The German Institute for Quality and Efficiency in Health Care (IQWiG) began publishing free bi-lingual (German/English) evidence-based health information in February 2006 on the website, http://www.gesundheitsinformation.de http://www.informedhealthonline.org . The Institute aims to be a patient-centred and non-directive provider of health information to the public and patients. The point of view and information needs of the public are a central element in the development of health information. People can be involved implicitly or explicitly. People can participate directly or explicitly in health information, for example, by suggesting a topic, by helping shape the content and during the development process. We do this in several ways, including surveys, consultation with consumer representatives as well as through user-testing and reader online rating. In addition, implicit involvement of patients occurs indirectly through consideration of the experiences and information needs of patients via an analysis of qualitative research. A challenge here is the generalisability of information derived from research in other cultures. The Institute monitors methodological developments in the area of patient and health information, to keep its methods up-to-date. In addition, the colleagues involved in this work participate in an in-house training program on patient-centred health information.
authors.affiliation: Institut für Qualität und Wirtschaftlichkeit im Gesundheitswesen, Dillenburger Strasse 27, Köln. beate.zschorlich@iqwig.de
authors.forename: B
authors.initials: B
authors.lastname: Zschorlich
authors.forename: M
authors.initials: M
authors.lastname: Knelangen
authors.forename: H
authors.initials: H
authors.lastname: Bastian
mesh_terms: D003256:Community Participation / Q000379:methods*; D019317:Evidence-Based Medicine / Q000458:organization & administration*; D005260:Female; D005858:Germany; D018166:Health Care Reform / Q000458:organization & administration*; D006801:Humans; D020407:Internet / Q000458:organization & administration*; D008297:Male; D008490:Medical Informatics / Q000458:organization & administration*; D009313:National Health Programs / Q000458:organization & administration*; D018802:Patient-Centered Care / Q000458:organization & administration; D015397:Program Evaluation; D011785:Quality Assurance, Health Care / Q000458:organization & administration*