Away from home: experiences of Mexican American families in pediatric palliative care.
In this study, the authors describe the experiences of Mexican American family members who immigrated to the United States and then experienced the death of a child. Participants described difficulties they encountered crossing the border, leaving the culture of their homeland, and then caring for a seriously ill child. Key themes that characterized their experience of being far from home included a backdrop of poverty, absence of traditional social support, and challenges caring for healthy siblings. Participants made comparisons between health care in Mexico and the United States and assessed the trade-off they made to come to the United States, discussing access to medical care and how they were able to relate to health care providers. Further, participants conveyed how rituals from their home country were important in maintaining connections with the child who died. Based on these themes, clinical implications and strategies that focus on understanding participants' experiences with past traumas, communication and literacy needs, and the challenges of living in poverty--especially with a critically ill child--are needed.
Pediatric Palliative Care Program, Lucile Packard Children's Hospital at Stanford, Palo Alto, California 94304, USA. ncontro@lpch.org
Nancy
N
Contro
Betty
B
Davies
Judith
J
Larson
Barbara
B
Sourkes
D000328:Adult; D001601:Bereavement; D002675:Child, Preschool; D003469:Culture; D005190:Family / Q000208:ethnology* / Q000523:psychology*; D006801:Humans; D007223:Infant; D017058:Mexican Americans / Q000523:psychology*; D008875:Middle Aged; D010166:Palliative Care / Q000523:psychology*; D010290:Parents / Q000523:psychology; D011203:Poverty; D012944:Social Support