The quality of cancer patient experience: perspectives of patients, family members, providers and experts.
BACKGROUND
Anecdotes and limited evidence suggest that a significant percentage of cancer patients encounter troublesome problems in the course of their care.


METHODS
The authors collected data about barriers to and facilitators of high-quality cancer care and innovative solutions to improve quality from three sources: focus groups with patients, family members of cancer patients and providers; site visits to cancer care providers and organisations in three American communities; and expert interviews.


RESULTS
The authors' respondents consistently described a similar list of problems facing the individual with a suspicion or diagnosis of cancer and his/her family: delays in and lack of coordination of care, patient information gaps and passivity, inadequate attention to emotional and social problems, and difficulty accessing services because of inadequate insurance, limited financial resources or rural residence. The fragmentation and uncertain accountability of cancer care contribute to these issues. Respondents recommended linking patients with a care navigator or manager, using computer technology to better inform and support patients and connect providers, and reforming provider reimbursement to encourage more patient-centred care.


CONCLUSIONS
Cancer patients and their families have urgent needs for information and support especially early in their course. To meet these needs, early cancer care must be better organised, integrated, and patient centred. The Institute of Medicine's Model for the Delivery of Psychosocial Services appears to provide a relevant guide to delivering cancer care that better meets patient and family needs.
Group Health Research Institute, Seattle, Washington, USA. wagner.e@ghc.org
Edward H
EH
Wagner
Erin J
EJ
Aiello Bowles
Sarah M
SM
Greene
Leah
L
Tuzzio
Cheryl J
CJ
Wiese
Beth
B
Kirlin
Steven B
SB
Clauser
D005190:Family / Q000523:psychology*; D017144:Focus Groups; D006282:Health Personnel / Q000523:psychology*; D006801:Humans; D009369:Neoplasms / Q000628:therapy*; D017060:Patient Satisfaction; D011787:Quality of Health Care; D014481:United States