title: The repeated appeal to return home in older adults with dementia: developing a model for practice.
abstract: Dementia care has been trapped in a "trial and error" type of practice due to difficulty understanding the needs of older adults with severe dementia. Behavioral and Psychological Signs and Symptoms of Dementia (BPSD) can be quite difficult for residential staff. However, some experienced care workers succeed in establishing effective relationships. The goal of this study was to: 1) develop a process to identify needs behind BPSD; 2) find solutions using a team approach; and 3) apply the results to educate new workers. The KJ method was employed to reach decision-making about best practices in residential dementia care. This qualitative method is used to organize group data collected in the field and is based on understanding complex situations. A group process of 12 Japanese care workers experienced in understanding and responding to the "repeated appeal to return home" of residents in nursing care facilities is highlighted along with an illustrative case example. The workgroup met over two years. The study revealed five steps in understanding the needs behind the appeal, which include: (1) Listen to the voice and go with the flow of the behavior; (2) Learn about the inner experience; (3) Learn about the contextual environment of "here and now" situations; (4) Reflect on the care environment; and (5) Find the keyword. This needs identification process has application to other cultural contexts. The implications of this study for practitioners who work with people with dementia in residential settings will be discussed.
authors.affiliation: The University of Kansas Center for Research Methods and Data Analysis and School of Social Welfare, 1545 Lilac Lane, Lawrence, KS 66044-3184, USA. fsadaaki@ku.edu
authors.forename: Sadaaki
authors.initials: S
authors.lastname: Fukui
authors.forename: Shinichi
authors.initials: S
authors.lastname: Okada
authors.forename: Yukio
authors.initials: Y
authors.lastname: Nishimoto
authors.forename: Holly B
authors.initials: HB
authors.lastname: Nelson-Becker
mesh_terms: D000328:Adult; D001291:Attitude of Health Personnel; D001526:Behavioral Symptoms / Q000523:psychology*; D003142:Communication; D003657:Decision Making; D003704:Dementia / Q000175:diagnosis / Q000451:nursing* / Q000523:psychology; D006301:Health Services Needs and Demand; D006801:Humans; D007564:Japan; D011369:Professional-Patient Relations; D036301:Qualitative Research; D012112:Residential Facilities / Q000458:organization & administration*; D012931:Social Environment