title: Radical cystectomy for bladder cancer: a qualitative study of patient experiences and implications for practice.
abstract: Patients being treated for bladder cancer share issues in common with other cancer patients, but also experience issues that are unique to their surgical treatment. This study used a descriptive qualitative approach to explore the experiences of patients who had undergone radical cystectomy for bladder cancer Twenty-two participants were interviewed in-depth on one occasion and were invited to attend a focus group session following the analysis of the interview transcripts. Participants described the shock of their diagnosis, their lack of information about bladder cancer, the importance of clear communication with care providers, and the types of adjustments they had to make following surgery. Specifically, changes in bodily function, body image, sexual relationships, and intimacy presented challenges for these participants. Although there was a sense of acceptance about the treatment-related events, there were still significant adjustments required by individuals following their surgery. Information, open communication, and support from family and friends were seen as important factors in helping patients adjust after surgery. Patients require clear, concise and consistent information about their cancer, treatment options, and course of care. Nurses caring for patients following surgery for bladder cancer need to understand the unique needs of these patients.
authors.affiliation: Odette Cancer Centre, Toronto, ON. marg.fitch@sunnybrook.ca
authors.forename: Margaret I
authors.initials: MI
authors.lastname: Fitch
authors.forename: Debbie
authors.initials: D
authors.lastname: Miller
authors.forename: Sharon
authors.initials: S
authors.lastname: Sharir
authors.forename: Alison
authors.initials: A
authors.lastname: McAndrew
mesh_terms: D000223:Adaptation, Psychological; D000368:Aged; D001828:Body Image; D015653:Cystectomy / Q000451:nursing* / Q000523:psychology / Q000534:rehabilitation; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D020380:Needs Assessment; D010353:Patient Education as Topic; D011788:Quality of Life; D019529:Sexuality; D012944:Social Support; D001749:Urinary Bladder Neoplasms / Q000451:nursing / Q000601:surgery*; D014549:Urinary Incontinence / Q000523:psychology