title: Comparing the priorities of parents and young people with cerebral palsy.
abstract: OBJECTIVE
  Adolescence is a period of change and transition that may pose unique challenges for young people with cerebral palsy (CP). We compared statements of priorities, i.e. what adolescents (13-17) and youth (18-21) and their parents would like to be able to do to enable greater activity and participation.
  
  
  METHODS
  Participants were 198 parents and 135 young people with CP (45% males) from seven Children's Hospitals in the United States. The interviews were structured using The Canadian Occupational Performance Measure. Priority statements were categorised as Adult Tasks, Biology, Self-Identity or Physical Activity.
  
  
  RESULTS
  All parents identified more priorities for Biology and Adult Tasks (p  <  0.001). Adolescents identified the fewest priorities for Self-Identity (p  <  0.01). Youth identified, in descending order of frequency, priorities in Adult Tasks, Biology, Self-Identity and Physical Activity (p  <  0.05). In the parent-young people dyads when disagreements occurred, Self-Identity issues were identified more often by parents (p  <  0.05) and priorities for Physical Activity were identified more often by young people (p  <  0.01).
  
  
  CONCLUSIONS
  The shared and differing priorities of parents and young people with CP may reflect different roles, perceptions and experiences. The findings have implications for healthcare professionals, providing a framework to compare and contrast the priorities of young people and their parents.
authors.affiliation: Department of Physical Therapy and Rehabilitation Sciences, Drexel University, Philadelphia, Pennsylvania 19102, USA. jillmmaggs@gmail.com
authors.forename: Jill
authors.initials: J
authors.lastname: Maggs
authors.forename: Robert
authors.initials: R
authors.lastname: Palisano
authors.forename: Lisa
authors.initials: L
authors.lastname: Chiarello
authors.forename: Margo
authors.initials: M
authors.lastname: Orlin
authors.forename: Hui-Ju
authors.initials: HJ
authors.lastname: Chang
authors.forename: Marcia
authors.initials: M
authors.lastname: Polansky
mesh_terms: D000293:Adolescent; D000704:Analysis of Variance; D002547:Cerebral Palsy / Q000503:physiopathology / Q000523:psychology* / Q000534:rehabilitation*; D016009:Chi-Square Distribution; D015897:Comorbidity; D003430:Cross-Sectional Studies; D019988:Children with Disabilities / Q000145:classification* / Q000534:rehabilitation*; D005260:Female; D006292:Health Priorities; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D010290:Parents / Q000523:psychology*; D018709:Statistics, Nonparametric; D014481:United States; D055815:Young Adult