title: IBD patients need in health quality of care ECCO consensus.
abstract: BACKGROUND
  : Inflammatory bowel diseases (IBD) is a lifelong disorder with increasing incidence and prevalence. IBD primarily affects young people's productivity in addition to direct and indirect costs. The chronic nature of the disease and the patients' requirement of frequent and easy access to the Health Care providers regarding lifelong medication, social and psychological support and regular follow-up in out-patient clinics are important considerations to address.
  
  
  OBJECTIVE
  : To define IBD patient needs in Quality of Health Care (QoHC) in Europe based on up- to date available evidence. The working group consisted of doctors, nurses and patient organizations from 12 European countries and Israel. Pub Med searching was performed as defined in the Delta Method. Each recommendation was graded (RG) in accordance with level of evidence (EL) based on Evidence Based Medicine, Oxford Centre. During UEGW 2007 the group reconvened to agree on the final version for each chapter of guideline statement
  
  
  RESULTS
  : Pub Med search led to 6 RCT, 7 reviews, 63 original articles, but no meta-analysis regarding "Information"; "Education"; "Primary Care", "Quality of life", "Psychological help" and "Benchmarking of Health Care systems" in IBD. Seven ECCO statements have been worked out.
  
  
  CONCLUSIONS
  : Evidence-based medicine in QoHC is limited. It is concluded that optimizing QoHC by "information"; "education", "benchmarking" and "psychological analysis" helps the patient to understand the disease and comply with its therapy, increasing QoL, reducing depression and anxiety. Future aspects regarding more evidence-based science and optimization of QoHC in IBD throughout Europe have been proposed.
authors.affiliation: Digestive Disease Centre, Medical Section, Herlev University Hospital, Copenhagen, Denmark.
authors.forename: Margarita
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authors.lastname: Elkjaer
authors.forename: Gabrielle
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authors.lastname: Moser
authors.forename: Walter
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authors.lastname: Reinisch
authors.forename: Dana
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authors.lastname: Durovicova
authors.forename: Milan
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authors.forename: Boris
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authors.lastname: Frederic Colombel
authors.forename: Mary
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authors.lastname: Shuhaibar
authors.forename: Colm
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authors.lastname: O'Morain
authors.forename: Patrizia
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authors.lastname: Politi
authors.forename: Selwyn
authors.initials: S
authors.lastname: Odes
authors.forename: Tomm
authors.initials: T
authors.lastname: Bernklev
authors.forename: Tom
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authors.lastname: Oresland
authors.forename: Inna
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authors.lastname: Nikulina
authors.forename: Elena
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authors.lastname: Belousova
authors.forename: Ingrid
authors.initials: I
authors.lastname: Van der Eijk
authors.forename: Pia
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authors.lastname: Munkholm