title: Psychosocial burden and quality of life in parents of children with anorectal malformation.
abstract: OBJECTIVE
  To assess the psychosocial burden and quality of life in parents of children with anorectal malformation.
  
  
  METHODS
  This is a prospective study conducted in a tertiary care specialty hospital. Sample consisted of 50 parents (care givers), having children with anorectal malformation in the age group of 0-14 years. Data were collected through a semi structured interview with the care givers, using Zarit Burden Interview for assessing extent of burden and WHOQOL-BREF for assessing different aspects of quality of life.
  
  
  METHODS
  frequencies, percentages, mean and standard deviations were calculated for analyzing the data.
  
  
  RESULTS
  The study reveals greater psychosocial burden and poor quality of life, in terms of the psychological and environmental aspects as compared to the physical and social aspects, among the care givers.
  
  
  CONCLUSIONS
  The study found increased psychosocial burden and negative impact on the quality of life of parents, which varies with the stages of management and proper continuous counseling is recommended.
authors.affiliation: Departments of Clinical Psychology and Pediatric Surgery, Chacha Nehru Bal Chikitsalaya (affiliated to Maulana Azad Medical College), Geeta Colony, Delhi-110031, India.
authors.forename: Gavneet K
authors.initials: GK
authors.lastname: Pruthi
authors.forename: Anup
authors.initials: A
authors.lastname: Mohta