title: Inclusion of caregiver supports and services in home- and community-based service programs: recent reports from state units on aging.
abstract: Caregivers have an important role in assisting frail and/or disabled individuals to maintain their independence in the community. Support to assist caregivers in this often stressful and demanding role is critical to sustaining the caregivers' health and ability to provide care. This paper reviews federal policy changes since 2000 that have expanded and enhanced services for informal caregivers. Next, data collected from State Units on Aging and other state agencies are presented to describe the extent to which caregiver services are included in home- and community-based programs under three funding streams (Medicaid waivers, Centers for Medicare and Medicaid Services-funded programs, and state-funded programs). Program characteristics, such as eligibility and consumer-directed options, are included. Finally, the accomplishments and initiatives reported by state respondents related to supporting informal caregivers are also explained. Results indicate that services for informal caregivers are receiving greater attention and are frequently offered under home- and community-based service programs by the states that participated in this study.
authors.affiliation: Policy and Research Analyst, Katz Policy Institute, Benjamin Rose Institute on Aging, Cleveland, Ohio, USA. mrcbinkley@gmail.com
authors.forename: Melissa
authors.initials: M
authors.lastname: Castora-Binkley
authors.forename: Linda S
authors.initials: LS
authors.lastname: Noelker
authors.forename: Farida K
authors.initials: FK
authors.lastname: Ejaz
authors.forename: Miriam
authors.initials: M
authors.lastname: Rose
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D001294:Attitude to Health; D017028:Caregivers / Q000458:organization & administration*; D016330:Frail Elderly; D006299:Health Services for the Aged / Q000458:organization & administration*; D006701:Home Nursing / Q000458:organization & administration*; D006801:Humans; D019982:Organizational Case Studies; D017063:Outcome Assessment, Health Care; D011788:Quality of Life; D012944:Social Support; D013221:State Health Plans / Q000458:organization & administration; D014481:United States