title: Family members' expectation of the psychiatric healthcare professionals' approach towards them.
abstract: The importance of involving family members in the care of individuals with schizophrenia or other psychotic illnesses has received increasing attention within psychiatric healthcare services. However, several studies suggest that family members often experience a lack of involvement. Furthermore, research indicates that family members' experience of the professional's approach has bearing on whether they feel involved or not. Thus, the aims of this study were to investigate the level of importance that the family members of individuals with schizophrenia or other psychotic illnesses ascribe to the professionals' approach, the level of agreement between their experiences and what they consider as important, and aspects they consider to be important with regards to contact with professionals. Seventy family members from various parts of Sweden participated. Data were collected by the Family Involvement and Alienation Questionnaire and open-ended questions. The median level and quartiles were used to describe the distribution, and percentage agreement was analysed. Open-ended questions were analysed by qualitative content analysis. The results reveal that the majority of the participants consider Openness, Confirmation, and Cooperation as important aspects of a professional's approach. Continuity emerged as an additional aspect. The results show a low level of agreement between the participants' experience and what they consider as important.
authors.affiliation: School of Health and Social Studies, Dalarna University, Falun, Sweden. mew@du.se
authors.forename: M
authors.initials: M
authors.lastname: Ewertzon
authors.forename: B
authors.initials: B
authors.lastname: Andershed
authors.forename: E
authors.initials: E
authors.lastname: Svensson
authors.forename: K
authors.initials: K
authors.lastname: Lützén
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001291:Attitude of Health Personnel; D003142:Communication; D003299:Cooperative Behavior; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011368:Professional-Family Relations; D011618:Psychotic Disorders / Q000628:therapy*; D012559:Schizophrenia / Q000628:therapy*; D011795:Surveys and Questionnaires; D013548:Sweden; D055815:Young Adult