title: A patient-prioritized ability assessment in haemophilia: the Canadian Occupational Performance Measure.
abstract: Assessment of musculoskeletal function in individuals with haemophilia has been attempted with clinimetric instruments, which use predetermined domains for assessing the same. This study introduces the application of an instrument, the Canadian Occupational Performance Measure (COPM), which is an open-ended questionnaire that allows patients to prioritize their needs and rate their performance in different tasks of daily living as well as their satisfaction in performing them. To study the utility of COPM in evaluating the musculoskeletal functional status of patients with haemophilia and to assess its effectiveness in planning individualized management plans for them. COPM was administered to 67 individuals with haemophilia aged 10-55 years and the data were compared with functional deficits identified through FISH (Functional Independence Score for Haemophilia). A total of 31 performance difficulties in the areas of self-care (62%), productivity (21%) and leisure (17%) were identified by COPM. All eight domains of FISH were identified in COPM as problems in self-care. In addition to these, COPM identified problems in the areas of productivity and leisure. In 78% of the responses on COPM, there was concordance between the performance and satisfaction scores. However, there was discordance between the two in the remaining 22% of responses. COPM is a useful tool for assessment of musculoskeletal dysfunction in haemophilia. It provides a greater insight into the needs of each patient and helps in planning individualized intervention strategies.
authors.affiliation: Department of Physical Medicine and Rehabilitation Hematology Orthopedics, Christian Medical College, Vellore, India.
authors.forename: S M
authors.initials: SM
authors.lastname: Padankatti
authors.forename: A S
authors.initials: AS
authors.lastname: Macaden
authors.forename: S M
authors.initials: SM
authors.lastname: Cherian
authors.forename: M
authors.initials: M
authors.lastname: Thirumugam
authors.forename: D
authors.initials: D
authors.lastname: Pazani
authors.forename: M
authors.initials: M
authors.lastname: Kalaiselvan
authors.forename: J A
authors.initials: JA
authors.lastname: John
authors.forename: E
authors.initials: E
authors.lastname: Subbian
authors.forename: H
authors.initials: H
authors.lastname: Prakash
authors.forename: P M
authors.initials: PM
authors.lastname: Poonnoose
authors.forename: M L
authors.initials: ML
authors.lastname: Kavitha
authors.forename: M
authors.initials: M
authors.lastname: Devadarasini
authors.forename: A
authors.initials: A
authors.lastname: Viswabandya
authors.forename: V
authors.initials: V
authors.lastname: Mathews
authors.forename: A
authors.initials: A
authors.lastname: Srivastava
mesh_terms: D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D002648:Child; D004185:Disability Evaluation; D006467:Hemophilia A / Q000503:physiopathology* / Q000523:psychology; D006801:Humans; D008875:Middle Aged; D009141:Musculoskeletal System / Q000503:physiopathology; D011446:Prospective Studies; D011795:Surveys and Questionnaires; D055815:Young Adult