title: 'Because we see them naked' - nurses' experiences in caring for hospitalized patients with dementia: considering artificial nutrition or hydration (ANH).
abstract: The aim of this study was to explore and describe how Flemish nurses experience their involvement in the care of hospitalized patients with dementia, particularly in relation to artificial nutrition or hydration (ANH). We interviewed 21 hospital nurses who were carefully selected from nine hospitals in different regions of Flanders. 'Being touched by the vulnerability of the demented patient' was the central experience of the nurses, having great impact on them professionally as well as personally. This feeling can be described as encompassing the various stages of the care process: the nurses' initial meeting with the vulnerable patient; the intense decision-making process, during which the nurses experienced several intense emotions influenced by supporting or hindering contextual factors; and the final coping process, a time when nurses came to terms with this challenging experience. From our examination of this care process, it is obvious that nurses' involvement in ANH decision-making processes that concern patients with dementia is a difficult and ethically sensitive experience. On the one hand, the feeling of 'being touched' can imply strength, as it demonstrates that nurses are willing to provide good care. On the other hand, the feeling of 'being touched' can also imply weakness, as it makes nurses vulnerable to moral distress stemming from contextual influences. Therefore, nurses have to be supported as they carry out this ethically sensitive assignment. Practical implications are given.
authors.affiliation: Centre for Biomedical Ethics and Law, Centre for Health Services and Nursing Research, Catholic University of Leuven, Kapucijnenvoer 35/3, B-3000 Leuven, Belgium. els.bryon@med.kuleuven.be
authors.forename: Els
authors.initials: E
authors.lastname: Bryon
authors.forename: Bernadette
authors.initials: B
authors.lastname: Dierckx de Casterlé
authors.forename: Chris
authors.initials: C
authors.lastname: Gastmans
mesh_terms: D000328:Adult; D000368:Aged; D001530:Belgium; D003220:Conflict, Psychological; D003657:Decision Making / Q000941:ethics*; D003704:Dementia / Q000451:nursing*; D004644:Emotions; D005260:Female; D005440:Fluid Therapy / Q000941:ethics*; D006801:Humans; D008297:Male; D008875:Middle Aged; D033262:Narration; D009723:Nurse-Patient Relations / Q000941:ethics; D009741:Nursing Staff, Hospital / Q000941:ethics* / Q000523:psychology; D018529:Nutritional Support / Q000941:ethics*; D036301:Qualitative Research