title: Embrace: addressing anticipatory grief and bereavement in the perinatal population: a palliative care case study.
abstract: Anticipatory grief is experienced by families who are informed that their unborn child may not survive in utero or during or after delivery. The child who survives delivery, but is critically ill, brings a combination of emotions to the family: joy in welcoming a new life and fear for the future. The healthcare team members caring for the patient and family often witness this grief and are impacted. In the perinatal setting, the care continuum for these patients begins at diagnosis, typically in the prenatal setting, and continued support extends beyond the presumed life expectancy of the child. This case study is provided to demonstrate the utilization of a palliative care interdisciplinary approach to meeting the complex bereavement needs of a family who was expecting a child with a life-impacting congenital condition.
authors.affiliation: Avera McKennan Hospital & University Health Center, Sioux Falls, South Dakota 57117, USA.
authors.forename: Joann
authors.initials: J
authors.lastname: Bennett
authors.forename: Janet
authors.initials: J
authors.lastname: Dutcher
authors.forename: Michele
authors.initials: M
authors.lastname: Snyders
mesh_terms: D000223:Adaptation, Psychological; D001601:Bereavement; D003266:Continuity of Patient Care / Q000458:organization & administration*; D003376:Counseling / Q000379:methods; D005190:Family / Q000523:psychology*; D005260:Female; D006801:Humans; D007231:Infant, Newborn; D008297:Male; D018447:Medical Futility; D017283:Neonatal Nursing / Q000379:methods*; D010166:Palliative Care / Q000523:psychology; D011181:Postnatal Care / Q000379:methods*; D011247:Pregnancy; D011256:Pregnancy Outcome / Q000523:psychology*; D011296:Prenatal Diagnosis / Q000451:nursing; D012944:Social Support