title: The first 5-year follow up of distal antegrade continence enema stomas.
abstract: OBJECTIVE
  We investigated 5-year results of distal sites for antegrade continence enemas (DACE).
  
  
  METHODS
  Patients with DACE sites placed more than 5 years previously were identified. Details of procedures were obtained. Parents, and patients over 18, were telephoned and asked to answer a standardised questionnaire.
  
  
  RESULTS
  31 patients were identified. Median age at DACE placement was 7 years (range 3-20). Median follow up was 92 months (range 66-145). 22 tubes were placed endoscopically, 7 were placed at open surgery and 2 at laparoscopic surgery. 28 responses to the telephone questionnaire were obtained. Of these, 15 were still using their DACE and 13 had stopped. Of those who had ceased washouts: 7 reported resolution of symptoms, 4 had a colostomy, 1 an ileostomy and 1 patient had abandoned their DACE. In patients using their stoma, washouts took a median of 5 min, with a median time to result of 25 min. 10 patients reported no soiling, 4 monthly and 1 daily soiling. Median satisfaction score was 8/10 (range 1-10/10). 24 (85%) said that they would recommend a DACE.
  
  
  CONCLUSIONS
  This is the first report of 5-year follow up of a series of patients performing DACE washouts. The results are encouraging.
authors.affiliation: Chelsea and Westminster Hospital, London, UK. sblackburn@doctors.org.uk
authors.forename: S C
authors.initials: SC
authors.lastname: Blackburn
authors.forename: J R
authors.initials: JR
authors.lastname: Fishman
authors.forename: N
authors.initials: N
authors.lastname: Geoghegan
authors.forename: K
authors.initials: K
authors.lastname: Dave
authors.forename: N
authors.initials: N
authors.lastname: Madden
authors.forename: M
authors.initials: M
authors.lastname: Haddad
mesh_terms: D000293:Adolescent; D001003:Anal Canal / Q000002:abnormalities / Q000601:surgery; D057785:Catheters; D002648:Child; D002675:Child, Preschool; D015331:Cohort Studies; D016208:Databases, Factual; D004733:Enema / Q000295:instrumentation / Q000379:methods*; D005242:Fecal Incontinence / Q000601:surgery / Q000628:therapy*; D005260:Female; D005500:Follow-Up Studies; D006801:Humans; D010535:Laparoscopy / Q000379:methods; D008297:Male; D010349:Patient Compliance; D017060:Patient Satisfaction / Q000706:statistics & numerical data; D012189:Retrospective Studies; D018570:Risk Assessment; D054047:Surgical Stomas; D011795:Surveys and Questionnaires; D013997:Time Factors; D016896:Treatment Outcome; D055815:Young Adult