title: Power to the people: participant ownership of clinical trial data.
abstract: Participation in clinical trials is dismally low. In this age of electronic sharing of information of all sorts, trial participants can easily share clinical trial data. The benefits of participant ownership and sharing of trial data appear to outweigh the risks. Thus, the time has come to crowd-source data for diagnostic and therapy development.
authors.affiliation: Genetic Alliance, Washington, DC 20008, USA. sterry@geneticalliance.org
authors.forename: Sharon F
authors.initials: SF
authors.lastname: Terry
authors.forename: Patrick F
authors.initials: PF
authors.lastname: Terry
mesh_terms: D002986:Clinical Trials as Topic; D019992:Databases as Topic; D006801:Humans; D010067:Ownership