title: Development and reliability of the THAICLEFT Quality of Life Questionnaire for children with cleft lip/palate and families.
abstract: OBJECTIVE
  The objective of this study was to develop and test the reliability of the THAICLEFT Quality of Life (QoL) questionnaire for families of children coping with the problems associated with cleft lip/palate (CLP).
  
  
  METHODS
  After reviewing the literature on QoL measurements, the THAICLEFT QoL questionnaire was developed. The 27 families registered with the Tawanchai CLP service registry completed the questionnaire.
  
  
  RESULTS
  The Cronbach's alpha, i.e., the internal consistency and reliability, of 24 Quality of Life questionnaires was calculated. Values > 0.7 are considered acceptable and the value of the THAICLEFT QoL questionnaire was 0.861.
  
  
  CONCLUSIONS
  Using the THAICLEFT QoL questionnaire can help the healthcare provider to support parents and understand whether they are able to care for the patients and their psycho-economic needs.
authors.affiliation: Department of Psychiatry, Faculty of Medicine, Khon Kaen University, Khon Kaen, Thailand. npnirpat5@gmail.com
authors.forename: Niramol
authors.initials: N
authors.lastname: Patjanasoontorn
authors.forename: Suteera
authors.initials: S
authors.lastname: Pradubwong
authors.forename: Siriporn
authors.initials: S
authors.lastname: Mongkoltawornchai
authors.forename: Tharinee
authors.initials: T
authors.lastname: Phetcharat
authors.forename: Bowornsilp
authors.initials: B
authors.lastname: Chowchuen
mesh_terms: D000223:Adaptation, Psychological; D002648:Child; D002971:Cleft Lip / Q000175:diagnosis / Q000191:economics / Q000523:psychology*; D002972:Cleft Palate / Q000175:diagnosis / Q000191:economics / Q000523:psychology*; D005190:Family / Q000523:psychology*; D006301:Health Services Needs and Demand; D006801:Humans; D010865:Pilot Projects; D011788:Quality of Life / Q000523:psychology*; D012042:Registries; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires / Q000592:standards*; D055815:Young Adult