title: Shades of truth: cultural and psychological factors affecting communication in pediatric palliative care.
abstract: Communication with children who have life-threatening illnesses is a major challenge. Communication practices are greatly influenced by factors such as the child's age, the parents' wishes, and the cultural norms. This article presents the case of a 12-year-old Japanese boy with advanced hepatoblastoma. The patient also was diagnosed with Asperger's syndrome, which impairs interpersonal communication. The case is discussed from the perspective of clinical ethics, especially with regard to truth telling. The health care team faced an ethical dilemma because of the complications involved. Physicians treating children with cancer should be aware of these issues to be able to effectively communicate with their patients.
authors.affiliation: Department of Psychiatry, Graduate School of Medical Science, Kyoto Prefectural University of Medicine, Kawaramachi-Hirokoji, Kyoto, Japan. yhatano@koto.kpu-m.ac.jp
authors.forename: Yutaka
authors.initials: Y
authors.lastname: Hatano
authors.forename: Miwa
authors.initials: M
authors.lastname: Yamada
authors.forename: Kenji
authors.initials: K
authors.lastname: Fukui
mesh_terms: D020817:Asperger Syndrome / Q000150:complications* / Q000523:psychology; D002648:Child; D003142:Communication; D003469:Culture; D005190:Family / Q000523:psychology; D018197:Hepatoblastoma / Q000150:complications* / Q000523:psychology / Q000628:therapy; D006801:Humans; D008113:Liver Neoplasms / Q000150:complications* / Q000523:psychology / Q000628:therapy; D008297:Male; D010166:Palliative Care / Q000941:ethics* / Q000523:psychology; D010817:Physician-Patient Relations / Q000941:ethics; D011368:Professional-Family Relations / Q000941:ethics; D014342:Truth Disclosure / Q000941:ethics*