title: [Fibromyalgia: from public issue to the patient experience].
abstract: Fibromyalgia is a health condition characterized by significant tiredness and pain. Its contours are not clearly specified, either from a biological point of view or from a clinical point of view. In this context of uncertainty, the prevalence of fibromyalgia is estimated at more than 1% of the population. This article draws on qualitative data to explore in sociological terms the relationship between the dynamics of public debate about fibromyalgia, which has been recurring since the 1980s, and the patient experience. The linking of these two types of elements, both collective and individual perspectives, highlights the difficulties associated with management and care of fibromyalgia.
authors.affiliation: CSO (CNRS-Sciences-Po), 12 rue du Roi de Sicile, 75004 Paris, France.
authors.forename: Alexandra
authors.initials: A
authors.lastname: Nacu
authors.forename: Daniel
authors.initials: D
authors.lastname: Benamouzig
mesh_terms: D034462:Dissent and Disputes; D005356:Fibromyalgia / Q000175:diagnosis* / Q000523:psychology*; D006801:Humans; D010817:Physician-Patient Relations