title: Naming and understanding rare diseases: International Classification of Diseases coding and the epidemiologic designations of idiopathic pulmonary arterial hypertension.
authors.affiliation: Pulmonary Hypertension Center, University of Chicago Medical Center, Chicago, IL. Electronic address: mgomberg@medicine.bsd.uchicago.edu.
authors.forename: Mardi
authors.initials: M
authors.lastname: Gomberg-Maitland
mesh_terms: D059019:Clinical Coding / Q000639:trends; D065627:Familial Primary Pulmonary Hypertension; D006801:Humans; D006976:Hypertension, Pulmonary / Q000145:classification / Q000453:epidemiology / Q000401:mortality; D007391:International Cooperation; D015995:Prevalence; D035583:Rare Diseases / Q000145:classification* / Q000453:epidemiology* / Q000401:mortality; D016019:Survival Analysis; D009626:Terminology as Topic; D014481:United States / Q000453:epidemiology; D014944:World Health Organization