title: Exploring the reasons urban and rural-dwelling older adults participate in memory research.
abstract: This study examines how underrepresented older urban and rural-dwelling individuals conceptualize participation in cognitive impairment studies. Nine focus groups were held with urban and rural-dwelling older adults who had participated in a community-based memory screening study. Expected and experienced benefits of research participation were motivators for study participation in all focus groups. Results indicate that participation in memory research was believed to lead to an understanding of memory function. Focus group participants expressed an active interest in research on dementia, and viewed research participation as a way to address memory concerns and provide a benefit to society.
authors.affiliation: School of Social Work, University of Pittsburgh, Pittsburgh, PA, USA. aeh30@pitt.edu
authors.forename: Amanda
authors.initials: A
authors.lastname: Hunsaker
authors.forename: C Elizabeth
authors.initials: CE
authors.lastname: Sarles
authors.forename: Daniel
authors.initials: D
authors.lastname: Rosen
authors.forename: Jennifer H
authors.initials: JH
authors.lastname: Lingler
authors.forename: Marla Bonacile
authors.initials: MB
authors.lastname: Johnson
authors.forename: Lisa
authors.initials: L
authors.lastname: Morrow
authors.forename: Judith
authors.initials: J
authors.lastname: Saxton
mesh_terms: D001741:Black or African American / Q000523:psychology*; D000368:Aged; D000369:Aged, 80 and over; D000533:Altruism; D001364:Awareness; D003072:Cognition Disorders / Q000175:diagnosis* / Q000523:psychology*; D003704:Dementia / Q000175:diagnosis* / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D008403:Mass Screening / Q000523:psychology; D008569:Memory Disorders / Q000175:diagnosis* / Q000523:psychology*; D009042:Motivation; D009483:Neuropsychological Tests; D010414:Pennsylvania; D035842:Research Subjects / Q000523:psychology*; D018570:Risk Assessment; D012424:Rural Population; D014505:Urban Population; D044465:White People / Q000523:psychology*