title: A new approach to clinical care of juvenile idiopathic arthritis: the Juvenile Arthritis Multidimensional Assessment Report.
abstract: OBJECTIVE
  To develop and test a new multidimensional questionnaire for assessment of children with juvenile idiopathic arthritis (JIA) in standard clinical care.
  
  
  METHODS
  The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) includes 15 parent or patient-centered measures or items that assess well-being, pain, functional status, health-related quality of life, morning stiffness, disease activity, disease status and course, joint disease, extraarticular symptoms, side effects of medications, therapeutic compliance, and satisfaction with illness outcome. The JAMAR is proposed for use as both a proxy-report and a patient self-report, with the suggested age range of 7-18 years for use as a self-report. From March 2007 to September 2009, the questionnaire was completed by the parents of 618 children with JIA in 1814 visits and by 332 children in 749 visits.
  
  
  RESULTS
  The JAMAR was found to be feasible and to possess face and content validity. All parents and children reported that the questionnaire was simple and easy to understand. Completion and scoring appeared to be quick, requiring < 15 minutes. There were very few missing data. Parents' proxy-reported and children's self-reported data were remarkably concordant. The JAMAR provided thorough information for the study patients about recent medical history and current health status. It performed similarly across different children's ages and characterized the level of disease activity and disability well.
  
  
  CONCLUSIONS
  The development of the JAMAR introduces a new approach in pediatric rheumatology practice. This new questionnaire may help enhance the quality of care of children with JIA.
authors.affiliation: Pediatria II, Istituto G. Gaslini, Largo G. Gaslini 5, Genoa, Italy.
authors.forename: Giovanni
authors.initials: G
authors.lastname: Filocamo
authors.forename: Alessandro
authors.initials: A
authors.lastname: Consolaro
authors.forename: Benedetta
authors.initials: B
authors.lastname: Schiappapietra
authors.forename: Sara
authors.initials: S
authors.lastname: Dalprà
authors.forename: Bianca
authors.initials: B
authors.lastname: Lattanzi
authors.forename: Silvia
authors.initials: S
authors.lastname: Magni-Manzoni
authors.forename: Nicolino
authors.initials: N
authors.lastname: Ruperto
authors.forename: Angela
authors.initials: A
authors.lastname: Pistorio
authors.forename: Silvia
authors.initials: S
authors.lastname: Pederzoli
authors.forename: Adele
authors.initials: A
authors.lastname: Civino
authors.forename: Dinara
authors.initials: D
authors.lastname: Guseinova
authors.forename: Ester
authors.initials: E
authors.lastname: Masala
authors.forename: Stefania
authors.initials: S
authors.lastname: Viola
authors.forename: Alberto
authors.initials: A
authors.lastname: Martini
authors.forename: Angelo
authors.initials: A
authors.lastname: Ravelli
mesh_terms: D000553:Ambulatory Care; D001171:Arthritis, Juvenile / Q000628:therapy*; D002648:Child; D005260:Female; D006801:Humans; D008297:Male; D020380:Needs Assessment; D010290:Parents; D011788:Quality of Life; D057566:Self Report; D011795:Surveys and Questionnaires