title: Survey report of gamete donors' and recipients' preferences regarding disclosure of third party reproduction outcomes and genetic risk information.
abstract: OBJECTIVE
  Issues surrounding egg donation informed consent have recently been spotlighted due to advances in medical genetics. We sought information on attitudes and desires of donors and recipients to craft a program policy on counseling, disclosures, and re-contacting participants.
  
  
  METHODS
  Between April 2003 and September 2006 we conducted a questionnaire-based evaluation in our oocyte donor program. Donors pre-donation (n=265) and those undergoing the process (n=60), and recipients either ante- or postpartum (n=57), were asked about their desire to know/disclose obstetric outcomes (Question 1); willingness for contact in the event of a medical emergency (Question 2); and wish to know/disclose a liveborn's medical condition (Question 3).
  
  
  RESULTS
  Pre-donation questioning among all donors generally revealed reticence to Question 1 (31% [n=83]), but were overall amenable with Questions 2 and 3 (83% [n=220] and 83% [n=219]). Following the donation process, no differences in Questions 1 and 2 were noted, but fewer donors were amenable with Question 3 (pre-donation 93% [n=56] versus post-donation 38% [n=23]; P<0.01). Overall, recipients were amenable to all three questions (88% [n=50], 74% [n=42] and 88% [n=50]), with similar responses both ante- and postpartum.
  
  
  CONCLUSIONS
  All programs participating in gamete donation should establish a comprehensive disclosure policy, including consents that are built upon effective lines of communication between clinical staff and legal counsel assuring that parentage, relinquishment, and re-contact information in donor-recipient agreements are consistent with clinic consent documents and desires of both parties; All decisions must be adequately documented and honored and long-term counseling needs should be addressed.
authors.affiliation: Fertility Specialists Medical Group, San Diego, CA, USA. steven.lindheim@uc.edu
authors.forename: Steven R
authors.initials: SR
authors.lastname: Lindheim
authors.forename: Natalie
authors.initials: N
authors.lastname: Porat
authors.forename: Ami S
authors.initials: AS
authors.lastname: Jaeger
mesh_terms: D000328:Adult; D001294:Attitude to Health; D003219:Confidentiality / Q000523:psychology; D030881:Disclosure / Q000941:ethics*; D005260:Female; D030661:Genetic Privacy / Q000523:psychology*; D006801:Humans; D007258:Informed Consent / Q000523:psychology; D007316:Insemination, Artificial, Heterologous / Q000523:psychology*; D008297:Male; D018587:Oocyte Donation / Q000523:psychology*; D011247:Pregnancy; D011256:Pregnancy Outcome; D046269:Reproductive Rights / Q000523:psychology*; D014019:Tissue Donors / Q000523:psychology*; D016896:Treatment Outcome; D055815:Young Adult