title: Working without a net: leukemia and lymphoma survivors' perspectives on care delivery at end-of-treatment and beyond.
abstract: This study explored survivors' perspectives on care delivery and supportive care needs during reentry. Fifty-one individual interviews were conducted with adult leukemia and lymphoma survivors, 3 to 48 months from treatment cessation. Survivors reported poor continuity of care across the patient-survivor transition, difficulty finding appropriate information/services, lack of preparation, lack of support for survivorship issues, and inadequate or poorly timed follow-up as factors contributing to adjustment difficulties at end of treatment and beyond. Improved care coordination is needed after active treatment, including use of an exit interview and delivery of services that are more congruent and better timed to meet ongoing and emergent survivorship needs.
authors.affiliation: Division of Health Care Policy and Research, University of Colorado Denver School of Medicine, Aurora, CO, USA. Carla.Parry@ucdenver.edu
authors.forename: Carla
authors.initials: C
authors.lastname: Parry
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Morningstar
authors.forename: Jeffery
authors.initials: J
authors.lastname: Kendall
authors.forename: Eric A
authors.initials: EA
authors.lastname: Coleman
mesh_terms: D000328:Adult; D000359:Aftercare / Q000523:psychology*; D000368:Aged; D000369:Aged, 80 and over; D003266:Continuity of Patient Care; D003695:Delivery of Health Care; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D007406:Interview, Psychological; D007938:Leukemia / Q000523:psychology* / Q000628:therapy*; D008223:Lymphoma / Q000523:psychology* / Q000628:therapy*; D008297:Male; D008875:Middle Aged; D010348:Patient Care Team; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D011788:Quality of Life / Q000523:psychology; D016079:Refusal to Treat; D012944:Social Support; D017741:Survivors / Q000523:psychology*; D055815:Young Adult