title: Trends in paediatric home parenteral nutrition and implications for service development.
abstract: OBJECTIVE
  The demand for home parenteral nutrition (HPN) services for children has risen over the past 20 years. To plan a strategy for delivery of care at regional level, we carried out a national point prevalence survey of HPN during February 2010.
  
  
  METHODS
  Paediatric gastroenterologists in 33 hospitals known to have provided HPN services were identified from their membership of the British Society of Paediatric Gastroenterology, Hepatology and Nutrition and participation in the British Intestinal Failure Survey (BIFS). Anonymised data were collated by the BIFS administrator and results compared with a similar study performed by the British Paediatric Surveillance Unit in 1993. Trends in underlying diagnosis were explored using the BIFS database for 2006-2009.
  
  
  RESULTS
  139 children on HPN were reported; a fourfold increase since 1993; six of these were older than 16 years. The regional point prevalence of HPN varied from 1.76 to 41.4 per million, with a mean of 13.7 patients per million. Short bowel syndrome had increased from 27% to 63% of cases.
  
  
  CONCLUSIONS
  The large overall increase in numbers of HPN patients suggests that a national strategy needs to be developed for the management of chronic IF.
authors.affiliation: Consultant Paediatric Hepatologist, Birmingham Children's Hospital, West Midlands B4 6NH, United Kingdom. sue.beath@nhs.net
authors.forename: S V
authors.initials: SV
authors.lastname: Beath
authors.forename: H
authors.initials: H
authors.lastname: Gowen
authors.forename: J W L
authors.initials: JW
authors.lastname: Puntis
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D005260:Female; D005843:Geography; D006699:Home Care Services / Q000592:standards / Q000639:trends*; D006801:Humans; D007223:Infant; D007410:Intestinal Diseases / Q000628:therapy; D008297:Male; D016331:Parenteral Nutrition, Home / Q000639:trends*; D010351:Patient Discharge; D011787:Quality of Health Care; D006113:United Kingdom