title: The everyday routines of families of children with autism: examining the impact of sensory processing difficulties on the family.
abstract: The purpose of this qualitative study was to explore the lived experience of how sensory-related behaviors of children with autism affected family routines. In-depth semi-structured interviews were conducted with four primary caregivers regarding the meaning and impact of their child's sensory-related behaviors on family routines that occurred inside and outside the home. Findings indicated that sensory behaviors are one factor that limited family participation in work, family and leisure activities; and that parents employed specific strategies to manage individual and family routines in light of the child's sensory-related behaviors. This information has important implications for professionals who work with families of children with autism to decrease caregiver stress and to increase life satisfaction for the child and family.
authors.affiliation: Thomas Jefferson University, Philadelphia, Pennsylvania 19107, USA. roseann.schaaf@jefferson.edu
authors.forename: Roseann C
authors.initials: RC
authors.lastname: Schaaf
authors.forename: Susan
authors.initials: S
authors.lastname: Toth-Cohen
authors.forename: Stephanie L
authors.initials: SL
authors.lastname: Johnson
authors.forename: Gina
authors.initials: G
authors.lastname: Outten
authors.forename: Teal W
authors.initials: TW
authors.lastname: Benevides
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology*; D001288:Attention; D001321:Autistic Disorder / Q000175:diagnosis* / Q000523:psychology*; D002648:Child; D002653:Child Behavior Disorders / Q000175:diagnosis / Q000523:psychology*; D017281:Cost of Illness; D005260:Female; D006801:Humans; D007389:Internal-External Control; D012678:Sensation Disorders / Q000175:diagnosis / Q000523:psychology*; D012931:Social Environment; D012951:Socialization; D013239:Stereotyped Behavior; D019956:Stereotypic Movement Disorder / Q000175:diagnosis / Q000523:psychology*; D013315:Stress, Psychological / Q000150:complications