title: Feasibility of a pediatric cognitive-behavioral self-management intervention: Coping Openly and Personally with Epilepsy (COPE).
abstract: A pilot study was conducted to examine the feasibility and satisfaction of an integrated cognitive-behavioral and self-management intervention for youth with epilepsy (YWE) and caregivers. The Coping Openly and Personally with Epilepsy (COPE) intervention was based on empirically supported cognitive-behavioral techniques and theory driven self-management content. Content of the intervention consists of epilepsy education, primary and secondary coping skills. Children and adolescents ages 10-15, who had been diagnosed with epilepsy for at least six months (ICD-9345 codes), had at least average intelligence, no history of a serious mental illness, were not currently being treated for major depression, and lived within an 80 mile radius were considered eligible. Nine youth and their caregivers completed the COPE program and provided self-report data on feasibility, accuracy, and satisfaction of the COPE program. Caregivers and youth reported a high level of satisfaction with the COPE program, and findings support the feasibility and accuracy of the intervention content and delivery. Results provide a foundation for future randomized, controlled, clinical trials to examine the effectiveness of the COPE program for youth with epilepsy and their caregivers.
authors.affiliation: Medical University of South Carolina, College of Nursing, Charleston, SC 29425, USA. wagnerjl@musc.edu
authors.forename: Janelle L
authors.initials: JL
authors.lastname: Wagner
authors.forename: Gigi
authors.initials: G
authors.lastname: Smith
authors.forename: Pamela
authors.initials: P
authors.lastname: Ferguson
authors.forename: Karen
authors.initials: K
authors.lastname: van Bakergem
authors.forename: Stephanie
authors.initials: S
authors.lastname: Hrisko
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D017028:Caregivers; D002648:Child; D015928:Cognitive Behavioral Therapy; D003142:Communication; D004827:Epilepsy / Q000523:psychology*; D005240:Feasibility Studies; D005260:Female; D006801:Humans; D008297:Male; D010353:Patient Education as Topic; D017060:Patient Satisfaction; D010865:Pilot Projects; D011340:Problem Solving; D012648:Self Care; D020377:Self Efficacy; D011795:Surveys and Questionnaires