title: Are treatment satisfaction, quality of life, and self-assessed disease severity relevant parameters for patient registries? Experiences from Finnish and Swedish patients with psoriasis.
abstract: Patient registries often lack indicators of the disease as experienced by patients, e.g. treatment satisfaction and self-assessed disease severity. There is scarce information about the relationship between these assessments and currently existing instruments used in treatment evaluation. Our objective was to explore the importance of these indicators among patients with psoriasis in Finland and Sweden, in relation to treatment patterns and current measures of health-related quality of life. Data were collected from a patient survey and a retrospective chart review for 273 patients over 12 months. To assess psoriasis treatment completely, it is necessary to consider the impact of the disease on the patient in terms of treatment satisfaction, disease severity and health-related quality of life. The individual disease burden on patients should play a central role in formulating treatment goals. Clinician- and patient-based perspectives of the overall impact of psoriasis can assist clinical decision-making and evaluations of treatments.
authors: IHE, The Swedish Institute for Health Economics, Lund, Sweden.
authors: Catharina
authors: C
authors: Hjortsberg
authors: Annika
authors: A
authors: Bergman
authors: Anton
authors: A
authors: Bjarnason
authors: Hannele
authors: H
authors: Heikkilä
authors: Jonas
authors: J
authors: Hjelmgren
authors: Ake
authors: A
authors: Svensson
authors: Gunnel Ragnarson
authors: GR
authors: Tennvall
mesh_terms: D000328:Adult; D000368:Aged; D017281:Cost of Illness; D059026:Diagnostic Self Evaluation; D005260:Female; D005387:Finland; D006801:Humans; D008297:Male; D008875:Middle Aged; D017060:Patient Satisfaction; D011565:Psoriasis / Q000175:diagnosis / Q000523:psychology / Q000628:therapy*; D011788:Quality of Life; D012042:Registries; D012189:Retrospective Studies; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires; D013548:Sweden; D013997:Time Factors; D016896:Treatment Outcome; D055815:Young Adult