title: Patient advocacy in Diamond Blackfan anemia: facilitating translational research and progress towards the cure of a rare disease.
authors: Daniella Maria Arturi Foundation, PO Box 1434, Mattituck, NY 11952, USA. mcarturi@optonline.net
authors: Marie Clarke
authors: MC
authors: Arturi
mesh_terms: D029503:Anemia, Diamond-Blackfan / Q000191:economics* / Q000235:genetics / Q000628:therapy*; D000818:Animals; D006801:Humans; D010344:Patient Advocacy; D035583:Rare Diseases / Q000191:economics* / Q000235:genetics / Q000628:therapy*; D057170:Translational Research, Biomedical