title: Ethical issues in mental health research: the case for community engagement.
abstract: OBJECTIVE
  To describe community-engaged research (CEnR) and how it may improve the quality of a research study while addressing ethical concerns that communities may have with mental health and substance abuse research. This article includes a review of the literature as well as recommendations from an expert panel convened with funding from the US National Institute of Mental Health.
  
  
  RESULTS
  CEnR represents a broad spectrum of practices, including representation on institutional ethics committees, attitude research with individuals from the study population, engaging community advisory boards, forming research partnerships with community organizations, and including community members as co-investigators.
  
  
  CONCLUSIONS
  CEnR poses some challenges; for example, it requires funding and training for researchers and community members. However, it offers many benefits to researchers and communities, and some form of CEnR is appropriate and feasible in nearly every study involving human participants.
authors: Gnaegi Center for Healthcare Ethics, Salus 5th floor, Saint Louis University, 3545 Lafayette Avenue, St Louis, MO 63104, USA. duboisjm@slu.edu
authors: James M
authors: JM
authors: Dubois
authors: Brendolyn
authors: B
authors: Bailey-Burch
authors: Dan
authors: D
authors: Bustillos
authors: Jean
authors: J
authors: Campbell
authors: Linda
authors: L
authors: Cottler
authors: Celia B
authors: CB
authors: Fisher
authors: Whitney B
authors: WB
authors: Hadley
authors: Jinger G
authors: JG
authors: Hoop
authors: Laura
authors: L
authors: Roberts
authors: Erica K
authors: EK
authors: Salter
authors: Joan E
authors: JE
authors: Sieber
authors: Richard D
authors: RD
authors: Stevenson
mesh_terms: D035843:Biomedical Research / Q000941:ethics*; D028744:Ethics Committees, Research; D032984:Ethics, Research; D006801:Humans; D001523:Mental Disorders; D008603:Mental Health; D012111:Residence Characteristics