title: Parent perspectives on rehabilitation services for their children with disabilities: a mixed methods approach.
abstract: ABSTRACT Health care providers have adopted a family-centered care (FCC) approach. Parent satisfaction is an indicator of the effectiveness of FCC. The purpose of this project was to describe parent perceptions of the extent to which FCC behaviors occurred in an outpatient pediatric rehabilitation facility. The Measure of Processes of Care (MPOC)-20, a quantitative measure of parent perceptions related to FCC, was completed by 246 families with children receiving outpatient rehabilitation services. Eleven parents were randomly selected to participate in individual interviews. Four themes emerged, which are as follows: (a) parents were satisfied; (b) parents valued personal and sustained connections with professionals; (c) parents expressed a desire to interact with other parents; and (d) some parents may benefit from additional written information. Sustained connections with professionals and opportunities to interact with other parents were important aspects of care provision. Provision of written information was ranked lower than other domains on the MPOC-20.
authors.affiliation: Department of Physical Therapy, Chatham University, Pittsburgh, PA 15232, USA. jschreiber@chatham.edu
authors.forename: Joseph
authors.initials: J
authors.lastname: Schreiber
authors.forename: Jennifer
authors.initials: J
authors.lastname: Benger
authors.forename: Joyce
authors.initials: J
authors.lastname: Salls
authors.forename: Gregory
authors.initials: G
authors.lastname: Marchetti
authors.forename: Lindsey
authors.initials: L
authors.lastname: Reed
mesh_terms: D000293:Adolescent; D000328:Adult; D000553:Ambulatory Care / Q000592:standards; D002648:Child; D002662:Child Health Services / Q000592:standards*; D002675:Child, Preschool; D003142:Communication; D003695:Delivery of Health Care / Q000592:standards*; D019988:Children with Disabilities / Q000534:rehabilitation*; D005260:Female; D006801:Humans; D007223:Infant; D007407:Interviews as Topic; D008297:Male; D010290:Parents / Q000523:psychology*; D017060:Patient Satisfaction; D010465:Perception; D017064:Process Assessment, Health Care; D011368:Professional-Family Relations; D012944:Social Support; D018709:Statistics, Nonparametric; D011795:Surveys and Questionnaires; D055815:Young Adult