title: Oral health-related quality of life, and satisfaction with treatment and treatment outcomes of adolescents/young adults with cleft lip/palate: an exploration.
abstract: The objectives of this correlational study were to explore whether the oral health-related quality of life (ohrqol) of adolescents/young adults with cleft lip/palate (CL/P) relates to their own and their parents' satisfaction with treatment and treatment outcomes. Data were collected using mailed surveys from 30 parents and 27 patients who completed CL/P treatment. Patients' ohrqol was assessed with the Michigan Oral Health-Related Quality of Life (MOHRQoL) Scale, treatment satisfaction with Kiyak's Post-Surgical Patient Satisfaction Questionnaire, and satisfaction with treatment outcomes with Noor and Musa's Cleft Evaluation Profile. Overall, patients reported a positive ohrqol. Their satisfaction scores ranged from low to high. Patient and parent treatment satisfaction was related, while their outcome satisfaction did not correlate. Patients' MOHRQoL scores correlated with parent and patient treatment satisfaction and parents' outcome satisfaction. Patients' MOHRQoL scores did not correlate with patients' outcome satisfaction. The patients' level of discomfort was strongly correlated with patients' and parents' treatment satisfaction and parents' outcome satisfaction. In conclusion, regardless of outcome satisfaction, young patients with CL/P report a quite positive ohrqol after treatment completion. There is a clear relationship between the ohrqol of these patients with CL/P and their own as well as their parents' treatment satisfaction assessments.
authors.affiliation: School of Dentistry, University of Michigan, Ann Arbor, MI 48109-1078, USA.
authors.forename: S M
authors.initials: SM
authors.lastname: Munz
authors.forename: S P
authors.initials: SP
authors.lastname: Edwards
authors.forename: M R
authors.initials: MR
authors.lastname: Inglehart
mesh_terms: D000203:Activities of Daily Living; D000293:Adolescent; D001294:Attitude to Health; D002648:Child; D002971:Cleft Lip / Q000523:psychology / Q000601:surgery*; D002972:Cleft Palate / Q000523:psychology / Q000601:surgery*; D005260:Female; D006309:Hearing / Q000502:physiology; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D009909:Oral Health; D010147:Pain Measurement; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology; D017060:Patient Satisfaction; D010549:Personal Satisfaction; D011788:Quality of Life; D013060:Speech / Q000502:physiology; D016896:Treatment Outcome; D055815:Young Adult