title: Implementation of a patient education program on multiple sclerosis relapse management.
abstract: OBJECTIVE
  To study the implementation of a patient education program on relapses and relapse therapy into routine care.
  
  
  METHODS
  31 health care professionals took part in a one day train-the-trainer program (TTTP) and subsequently 261 persons with MS (pwMS) took part in the education program. Evaluation was carried out in trainers and pwMS.
  
  
  RESULTS
  Participants (health professionals) in the TTTP understood the program's main goals and reported that the TTTP enabled them to successfully perform the program. The majority of participants in the program (pwMS) understood the core messages. Also, they showed increased risk knowledge and increased decision autonomy preferences. Treatment decisions were reported as autonomous or as "informed choice" in 49%, and as "shared decisions" by 45%. Overall, effects were less marked compared to the results of the underlying randomized-controlled trial.
  
  
  CONCLUSIONS
  PwMS! appreciate evidence-based information about relapse management and view the unbiased presentation of scientific uncertainty as a chance for decision autonomy.
  
  
  CONCLUSIONS
  The implementation study confirms the program's transferability into clinical practice.
authors.affiliation: Institute of Neuroimmunology and Clinical MS Research (inims), University Medical Center Hamburg-Eppendorf, Hamburg, Germany. sascha.koepke@uni-hamburg.de
authors.forename: Sascha
authors.initials: S
authors.lastname: Köpke
authors.forename: Tanja
authors.initials: T
authors.lastname: Richter
authors.forename: Jürgen
authors.initials: J
authors.lastname: Kasper
authors.forename: Ingrid
authors.initials: I
authors.lastname: Mühlhauser
authors.forename: Peter
authors.initials: P
authors.lastname: Flachenecker
authors.forename: Christoph
authors.initials: C
authors.lastname: Heesen
mesh_terms: D003661:Decision Support Techniques; D004522:Educational Status; D019317:Evidence-Based Medicine; D017144:Focus Groups; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D009103:Multiple Sclerosis / Q000517:prevention & control* / Q000523:psychology; D010353:Patient Education as Topic / Q000379:methods*; D026684:Personal Autonomy; D016730:Program Development / Q000379:methods*; D015397:Program Evaluation; D011594:Psychometrics; D018570:Risk Assessment; D055502:Secondary Prevention; D011795:Surveys and Questionnaires; D035501:Uncertainty