title: Disorders of sex development-when and how to tell the patient.
abstract: Physicians and other providers are often confronted with difficult decisions in the area of disclosure. This article examines a hypothetical situation relevant to the practice of pediatric endocrinology. The parents of a child with a disorder of sex development (DSD) wish the physician to treat their child, but without revealing key medical information to the child. Herein, we will explore the legal and ethical responsibilities of a provider to disclose information to an under-age DSD patient and to provide insight on when and how to tell the patient.
authors.affiliation: Department of Pediatrics, Division of Pediatric Endocrinology, Long Beach Memorial and Miller Children's Hospital, Long Beach, CA. julianala@gmail.com
authors.forename: Juliana
authors.initials: J
authors.lastname: Austin
authors.forename: Anne
authors.initials: A
authors.lastname: Tamar-Mattis
authors.forename: Tom
authors.initials: T
authors.lastname: Mazur
authors.forename: Maria J
authors.initials: MJ
authors.lastname: Henwood
authors.forename: Wilma C
authors.initials: WC
authors.lastname: Rossi
mesh_terms: D000293:Adolescent; D002648:Child; D030881:Disclosure / Q000941:ethics / Q000331:legislation & jurisprudence; D012734:Disorders of Sex Development / Q000175:diagnosis; D004704:Endocrinology / Q000941:ethics / Q000331:legislation & jurisprudence; D005260:Female; D006801:Humans; D007258:Informed Consent; D008297:Male; D010290:Parents; D028701:Patient Rights; D010372:Pediatrics / Q000941:ethics / Q000331:legislation & jurisprudence; D010817:Physician-Patient Relations; D014342:Truth Disclosure / Q000941:ethics