title: Ethics in health care services for young persons with neurodevelopmental disabilities:  a focus on cerebral palsy.
abstract: In this article we review and discuss some of the key ethical and social challenges that young persons with cerebral palsy face in health care delivery. We identify and explain these challenges, some of which are rarely discussed in contemporary medicine and biomedical ethics, partly because they are not considered genuine "ethical" challenges per se. Most of these challenges are heavily shaped by broader social context and institutional practices, which highlights the importance of nonbiological aspects of the care of young persons with cerebral palsy from an ethics standpoint.
authors.affiliation: Neuroethics Research Unit, Institut de recherches cliniques de Montréal, QC, Canada.
authors.forename: Danaë
authors.initials: D
authors.lastname: Larivière-Bastien
authors.forename: Eric
authors.initials: E
authors.lastname: Racine
mesh_terms: D002547:Cerebral Palsy / Q000150:complications / Q000175:diagnosis / Q000628:therapy; D016208:Databases, Factual / Q000706:statistics & numerical data; D003695:Delivery of Health Care / Q000941:ethics*; D002658:Developmental Disabilities / Q000150:complications / Q000175:diagnosis / Q000628:therapy; D058015:Health Communication / Q000941:ethics; D006296:Health Services / Q000941:ethics*; D006801:Humans; D008490:Medical Informatics