title: Development and implementation of an Internet-based survivorship care program for cancer survivors treated with hematopoietic stem cell transplantation.
abstract: BACKGROUND
  The Internet provides a widely accessible modality for meeting survivorship care needs of cancer survivors. In this paper, we describe the development and implementation of an Internet site designed as a base from which to conduct a randomized controlled trial to meet psycho-educational needs of hematopoietic stem cell transplantation (HSCT) survivors.
  
  
  METHODS
  A cross-disciplinary team designed, wrote content, and programmed an Internet site for online study registration, consent, assessment, and study implementation. All survivors who were 3-18 years after HSCT for hematologic malignancy and treated at one transplant center were approached by mail for participation. All study activities could be conducted without study staff contact. However, participants had options for phone or email contact with study staff as desired.
  
  
  RESULTS
  Of 1,775 participants approached for the study, 775 (58% of those eligible) consented and completed baseline assessment. Mean age was 51.7 (SD, 12.5; age range, 18-79 years), with 56% male. Fifty-seven percent required staff contact one or more times; a majority were for minor technical issues or delays in completion of enrollment or baseline assessment.
  
  
  CONCLUSIONS
  This study demonstrated the potential for providing Internet-based survivorship care to long-term survivors of HSCT. Although building a survivorship Internet site requires a team with diverse expertise, once built, these resources can be implemented rapidly with large numbers of survivors.
  
  
  CONCLUSIONS
  While Internet-based services will not meet all the needs of cancer survivors, this methodology represents an important modality for augmenting onsite clinical services as a method for meeting psycho-educational, information, and resource needs of cancer survivors.
authors.affiliation: Clinical Research Division, Fred Hutchinson Cancer Research Center, 1100 Fairview Ave N, D5-220, P.O. Box 19024, Seattle, WA 98109, USA. ksyrjala@fhcrc.org
authors.forename: Karen L
authors.initials: KL
authors.lastname: Syrjala
authors.forename: Allison C
authors.initials: AC
authors.lastname: Stover
authors.forename: Jean C
authors.initials: JC
authors.lastname: Yi
authors.forename: Samantha B
authors.initials: SB
authors.lastname: Artherholt
authors.forename: Eleni M
authors.initials: EM
authors.lastname: Romano
authors.forename: Gary
authors.initials: G
authors.lastname: Schoch
authors.forename: Susan
authors.initials: S
authors.lastname: Stewart
authors.forename: Mary E D
authors.initials: ME
authors.lastname: Flowers
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D003695:Delivery of Health Care / Q000379:methods / Q000458:organization & administration; D005260:Female; D006284:Health Plan Implementation; D018380:Hematopoietic Stem Cell Transplantation; D006801:Humans; D020407:Internet / Q000706:statistics & numerical data*; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000401:mortality / Q000534:rehabilitation / Q000628:therapy*; D010353:Patient Education as Topic / Q000379:methods; D016730:Program Development; D015996:Survival Rate; D017741:Survivors; D055815:Young Adult