title: Editorial: genetic and genomic research-changing patterns of accountability.
abstract: Debates about genomic science have raised questions about the implications for ethics and accountability. Accountability has external and internal aspects. Whereas ethical review, including attention to appropriate consent procedures, has been central to 'giving an account' externally, there are also issues internal to the practice of science itself. The pursuit of truth is central to the scientific endeavour, but truths can sometimes be 'inconvenient', leading to complex questions of accountability that go beyond the issues of consent. This is illustrated by the case of the Havasupai.
authors.forename: Jeantine E
authors.initials: JE
authors.lastname: Lunshof
authors.forename: Ruth
authors.initials: R
authors.lastname: Chadwick
mesh_terms: D035843:Biomedical Research / Q000941:ethics* / Q000592:standards; D005260:Female; D005826:Genetics, Medical / Q000941:ethics* / Q000592:standards; D016678:Genome; D016045:Human Genome Project / Q000941:ethics*; D006801:Humans; D008297:Male; D011786:Quality Control; D012941:Social Responsibility