title: [Living with Parkinson's disease from the perspective of parkinsonians and their relatives].
abstract: The objective of the study is to investigate what it is like for the patients and relatives to live with Parkinson's disease This was a qualitative descriptive study, developed with ten individuals with Parkinson's disease and their relatives, summing up twenty informers, through semistructured interviews. Through discourse analysis, we verified that in spite of the difficulties, many patients show acceptance or conformity regarding to the limitations imposed by the disease, while others still experience anger and hope for a cure. The greatest changes demonstrated by patients and family members regard to the question of dependence and loss of autonomy for work, daily life and leisure activities, which impact on the entire family dynamic. This way, small interventions could contribute to a better coexistence with the disease.
authors.affiliation: Unidade de Ensino Superior Ingá (UNINGA), Maringá, Paraná, Brasil. navarrofabiana@gmail.com
authors.forename: Fabiana Magalhães
authors.initials: FM
authors.lastname: Navarro-Peternella
authors.forename: Sonia Silva
authors.initials: SS
authors.lastname: Marcon
mesh_terms: D000368:Aged; D001294:Attitude to Health; D005192:Family Health; D005195:Family Relations; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D010300:Parkinson Disease