title: Cancer worry among Norwegian male BRCA1/2 mutation carriers.
abstract: This qualitative study explored the experiences of Norwegian men after being identified as BRCA 1/2 mutation-positive. Only limited knowledge is available on this topic; therefore, the aim of this study was to gain a deeper insight from the men's own perspectives. Data were collected from in-depth interviews with 15 men and seven of their partners. The participants described fear of cancer development, and two main narrative patterns were identified: fear for their own health, including fear of developing cancer, and negative feelings about responsibility for others' health. The men expressed fear of developing cancer themselves and described a need for genetic risk information. They were also deeply concerned about how the mutation might affect their children and other relatives. There is a need for guidelines concerning genetic risk information and follow-up programs for male BRCA 1/2 mutation carriers. This study adds valuable contextual insights into their experiences of living with fear of cancer.
authors: Western Norway Familial Cancer Center, Haukeland University Hospital, 5021, Bergen, Norway. nina@tbt.no
authors: Nina
authors: N
authors: Strømsvik
authors: Målfrid
authors: M
authors: Råheim
authors: Eva
authors: E
authors: Gjengedal
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