title: A Kaupapa Māori approach to a community cohort study of heart disease in New Zealand.
abstract: OBJECTIVE
  To report the processes and protocols that were developed in the design and implementation of the Hauora Manawa Project, a cohort study of heart disease in New Zealand and to report the participation at baseline.
  
  
  METHODS
  This study utilised application of a Kaupapa Māori Methodology in gaining tribal and health community engagement, design of the project and random selection of participants from territorial electoral rolls, to obtain three cohorts: rural Māori, urban Māori and urban non-Māori. Logistic regression was used to model response rates.
  
  
  RESULTS
  Time invested in gaining tribal and health community engagement assisted in the development and design of clear protocols and processes for the study. Response rates were 57.6%, 48.3% and 57.2%. Co-operation rates (participation among those with whom contact was established) were 74.7%, 66.6% and 71.4%.
  
  
  CONCLUSIONS
  Use of electoral rolls enables straightforward sampling but results in low response rates because electors have moved. Co-operation rates highlight the acceptability of this research project to the participants; they indicate the strength of Kaupapa Māori Methodologies in engaging Māori participants and community.
  
  
  CONCLUSIONS
  This study provides a model for conducting clinical/biomedical research projects that are compatible with cultural protocols and methodologies, in which the primary aim of the research was Māori health gain.
authors.affiliation: Māori Indigenous Health Institute, University of Otago, New Zealand. suzanne.pitama@otago.ac.nz
authors.forename: Suzanne
authors.initials: S
authors.lastname: Pitama
authors.forename: J Elisabeth
authors.initials: JE
authors.lastname: Wells
authors.forename: Allamanda
authors.initials: A
authors.lastname: Faatoese
authors.forename: Karen
authors.initials: K
authors.lastname: Tikao-Mason
authors.forename: Paul
authors.initials: P
authors.lastname: Robertson
authors.forename: Tania
authors.initials: T
authors.lastname: Huria
authors.forename: Tawhirimatea
authors.initials: T
authors.lastname: Gillies
authors.forename: Rob
authors.initials: R
authors.lastname: Doughty
authors.forename: Gillian
authors.initials: G
authors.lastname: Whalley
authors.forename: Richard
authors.initials: R
authors.lastname: Troughton
authors.forename: Ian
authors.initials: I
authors.lastname: Sheerin
authors.forename: Mark
authors.initials: M
authors.lastname: Richards
authors.forename: Vicky A
authors.initials: VA
authors.lastname: Cameron
mesh_terms: D000328:Adult; D015331:Cohort Studies; D003256:Community Participation; D055812:Community-Based Participatory Research / Q000379:methods*; D003466:Cultural Characteristics; D005260:Female; D006302:Health Services Research; D006303:Health Services, Indigenous / Q000458:organization & administration*; D054625:Healthcare Disparities; D006331:Heart Diseases / Q000208:ethnology / Q000517:prevention & control*; D006801:Humans; D016015:Logistic Models; D008297:Male; D008875:Middle Aged; D009520:New Zealand; D010865:Pilot Projects; D011320:Primary Health Care / Q000458:organization & administration*; D055815:Young Adult