title: Family impact in intellectual disability, severe mental health disorders and mental health disorders in ID. A comparison.
abstract: Family impact (or family burden) is a concept born in the field of mental health that has successfully been exported to the ambit of intellectual disability (ID). However, differences in family impact associated with severe mental health disorders (schizophrenia), to ID or to mental health problems in ID should be expected. Seventy-two adults with intellectual disability clients of the Carmen Pardo-Valcarce Foundation's sheltered workshops and vocational employment programmes in Madrid (Spain), 203 adults diagnosed with schizophrenia from four Spanish Community Mental Health Services (Barcelona, Madrid, Granada and Navarra) and 90 adults with mental health problems in ID (MH-ID) from the Parc Sanitari Sant Joan de Déu Health Care Site in Sant Boi de Llobregat, Barcelona (Spain) were asked to participate in the present study along with their main caregivers. Family impact experienced by caregivers was assessed with the ECFOS-II/SOFBI-II scale (Entrevista de Carga Familiar Objetiva y Subjetiva/Objective and Subjective Family Burden Interview). In global terms, results showed that the higher family impact was found between caregivers to people with MH-ID. The interaction of both conditions (ID and mental health problems) results in a higher degree of burden on families than when both conditions are presented separately. There was also an impact in caregivers to people with schizophrenia, this impact being higher than the one detected in caregivers to people with intellectual disability. Needs of caregivers to people with disability should be addressed specifically in order to effectively support families.
authors.affiliation: Fundación Carmen Pardo-Valcarce, Monasterio de las Huelgas 15, 28049 Madrid, Spain. almudena.martorell@fcpv.es
authors.forename: Almudena
authors.initials: A
authors.lastname: Martorell
authors.forename: Pedro
authors.initials: P
authors.lastname: Gutiérrez-Recacha
authors.forename: Marcia
authors.initials: M
authors.lastname: Irazábal
authors.forename: Ferrán
authors.initials: F
authors.lastname: Marsà
authors.forename: Mercedes
authors.initials: M
authors.lastname: García
mesh_terms: D000328:Adult; D017028:Caregivers / Q000523:psychology; D017281:Cost of Illness; D005192:Family Health; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000523:psychology*; D008297:Male; D001523:Mental Disorders / Q000523:psychology*; D008875:Middle Aged; D012565:Schizophrenic Psychology; D012720:Severity of Illness Index; D012944:Social Support; D055815:Young Adult