title: Engaging with children in research: Theoretical and practical implications of negotiating informed consent/assent.
abstract: At the outset of an ethnographic inquiry, we navigated national and international resources to search for theoretical and practical guidance on obtaining parents and children's informed consent/assent. While much theoretical guidance debating ethical issues to children's participation in research was found, a paucity of published papers offering practical guidance on assent processes and/or visual representations of child assent forms and information sheets was discovered. The purpose of this article is to describe our experiences, both theoretically and practically, of negotiating the process of obtaining informed consent and assent with parents and children for a non-therapeutic qualitative research study. We hope this article instigates a platform for others to explicate their experience and contributes to the construction of a coherent body of knowledge which will clearly delineate important elements that must be considered when negotiating children's agreement to participate in research.
authors.affiliation: School of Nursing, Dublin City University, Ireland. veronica.lambert@dcu.ie
authors.forename: Veronica
authors.initials: V
authors.lastname: Lambert
authors.forename: Michele
authors.initials: M
authors.lastname: Glacken
mesh_terms: D002648:Child; D017408:Guidelines as Topic; D006801:Humans; D057828:Informed Consent By Minors / Q000941:ethics; D017008:Negotiating / Q000379:methods*; D009723:Nurse-Patient Relations; D015404:Nursing Methodology Research; D015399:Nursing Research; D011368:Professional-Family Relations; D036301:Qualitative Research; D035842:Research Subjects; D020458:Third-Party Consent / Q000941:ethics