title: Application of Australian clinical management guidelines: the current state of play in a sample of young people living with Type 1 diabetes in the state of New South Wales and the Australian Capital Territory.
abstract: OBJECTIVE
  To describe care provided to a sample of young Australians with Type 1 diabetes, and benchmark this against national guidelines.
  
  
  METHODS
  158 children and adolescents with Type 1 diabetes, aged 8-19 years, were recruited independent of their source of care as part of a three-year longitudinal study. Data were gathered annually regarding type of health-care services attended, demographic, health-care and self-care information. Participants were also telephoned quarterly to ascertain planned and actual attendance to diabetes services, and current diabetes management. A capillary sample was collected annually for HbA1c determination.
  
  
  RESULTS
  The mean HbA1c of participants was significantly higher than recommended levels. The annual number of visits to diabetes clinics also fell short of the stipulated 3-4 visits a year and less than 25% of participants received care from all recommended multidisciplinary team members. While the majority of care was provided through the publicly funded system, there was an increasing reliance on privately funded psychologists.
  
  
  CONCLUSIONS
  Standards of care received by this group of young Australians and levels of glycaemic control fall short of treatment guidelines, highlighting the need to identify ways to ensure equitable access to specialist multidisciplinary care for all young people affected by diabetes.
authors.affiliation: Faculty of Pharmacy, The University of Sydney, Sydney, NSW, 2006, Australia.
authors.forename: Kristy
authors.initials: K
authors.lastname: Hatherly
authors.forename: Lorraine
authors.initials: L
authors.lastname: Smith
authors.forename: Jane
authors.initials: J
authors.lastname: Overland
authors.forename: Christine
authors.initials: C
authors.lastname: Johnston
authors.forename: Lin
authors.initials: L
authors.lastname: Brown-Singh
mesh_terms: D000293:Adolescent; D000328:Adult; D001315:Australia; D020958:Australian Capital Territory; D002648:Child; D003922:Diabetes Mellitus, Type 1 / Q000097:blood / Q000378:metabolism / Q000503:physiopathology*; D005260:Female; D006442:Glycated Hemoglobin / Q000378:metabolism; D006801:Humans; D008297:Male; D009517:New South Wales; D017410:Practice Guidelines as Topic; D055815:Young Adult
chemical_list: D006442:Glycated Hemoglobin