title: [Information needs of people suffering from venous leg ulcer. Expertise of people concerned as a basis of patient-centered information].
abstract: Patient-centred information is orientated on the needs. The main objective of such information is coping with every-day life and learning to live with the chronic disease. Regarding the current knowledge, such information does not exist in German speaking countries for people suffering from venous leg ulceration. In order to generate the subject matter of such information, a literature search and a secondary analysis of 27 transcripts of interviews, given by people living with chronic leg ulceration, were conducted. Both analyses show the complex impact of leg ulceration on every-day live. The dimensions competences in every-day live, knowledge, techniques and skills and the meaning of family were generated. The secondary analysis points out that family members are an important part of the supporting system and are concerned by effects of chronic disease as well. After long-lasting disease-experience people consider themselves as experts. They obtain special competences in dealing with their disease and judge their experience-based knowledge higher than the knowledge of healthcare professionals. The participants describe individual concepts about their disease. Medical knowledge constitutes just one source of knowledge among others. People know about alternative medicine and use it. They feel that the healthcare professionals do not take them seriously in most cases. Patient-centred information can be a guide to people suffering from venous leg ulceration and their family members, but also a support for healthcare professionals to reflect their professional behaviour and understanding.
authors.affiliation: Department für Pflegewissenschaft, Universität Witten/Herdecke, Fakultät für Gesundheit, Witten. Astrid.Schmitz@uni-wh.de
authors.forename: Astrid
authors.initials: A
authors.lastname: Schmitz
mesh_terms: D017028:Caregivers / Q000523:psychology; D055318:Evidence-Based Nursing; D005858:Germany; D006801:Humans; D010353:Patient Education as Topic / Q000379:methods*; D018802:Patient-Centered Care; D011788:Quality of Life / Q000523:psychology; D012648:Self Care / Q000379:methods / Q000523:psychology; D012803:Sick Role; D012944:Social Support; D014647:Varicose Ulcer / Q000451:nursing* / Q000523:psychology / Q000628:therapy