title: Relationships between community-based processes for research ethics review and institution-based IRBs: a national study.
abstract: Community groups are implementing research ethics review processes to determine whether and how research is conducted in their communities. We report on a survey of 109 of these community-based review processes about their relationships with institution based research ethics boards (I-REBs). Ninety-two percent reported that studies they review were also reviewed by an I-REB. Over half characterized their relationship with I-REBs positively. Those with positive relationships were significantly more likely to communicate with the involved I-REBs. Challenges when working with I-REBs included delays, communication problems, and lack of I-REB understanding of community-based participatory research. Strengthening relationships between community-based review processes and I-REBs could ultimately enhance reviews of community-engaged research.
authors.affiliation: University of New England School of Social Work, Portland, ME 04103, USA. nshore@une.edu
authors.forename: Nancy
authors.initials: N
authors.lastname: Shore
authors.forename: Elaine
authors.initials: E
authors.lastname: Drew
authors.forename: Ruta
authors.initials: R
authors.lastname: Brazauskas
authors.forename: Sarena D
authors.initials: SD
authors.lastname: Seifer
mesh_terms: D055812:Community-Based Participatory Research / Q000941:ethics*; D003625:Data Collection; D028744:Ethics Committees, Research; D032984:Ethics, Research; D005069:Evaluation Studies as Topic; D006801:Humans; D007407:Interviews as Topic; D009938:Organizations