title: The challenges of meeting nutritional requirements in children and adults with epidermolysis bullosa: proceedings of a multidisciplinary team study day.
abstract: This is a report of a study day held in London on 3 March 2010 to discuss measures with which to meet the nutritional requirements of patients with epidermolysis bullosa (EB). Members of national and international multidisciplinary teams (MDTs) caring for patients with EB attended this event. The study day focused on four challenging aspects of management intimately associated with nutritional status in EB, necessitating close cooperation between MDT members: iron-deficiency anaemia, gastrostomy placement and feeding, muscle mass and mobility, and dental health. The study day provided a unique forum for dietitians, doctors, nurses, physiotherapists, psychologists, psychotherapists, dentists, dental hygienists and occupational therapists to share knowledge and debate problems common to all who strive to promote best practice in this rare and complex group of conditions.
authors.affiliation: Dietetic Department, St Thomas' Hospital, London, UK.
authors.forename: L
authors.initials: L
authors.lastname: Hubbard
authors.forename: L
authors.initials: L
authors.lastname: Haynes
authors.forename: M
authors.initials: M
authors.lastname: Sklar
authors.forename: A E
authors.initials: AE
authors.lastname: Martinez
authors.forename: J E
authors.initials: JE
authors.lastname: Mellerio
mesh_terms: D000293:Adolescent; D000328:Adult; D018798:Anemia, Iron-Deficiency / Q000517:prevention & control; D002648:Child; D019033:Delivery of Health Care, Integrated / Q000458:organization & administration; D003752:Dental Health Services; D004820:Epidermolysis Bullosa / Q000150:complications / Q000178:diet therapy* / Q000503:physiopathology; D015444:Exercise; D005260:Female; D005774:Gastrostomy / Q000379:methods; D006801:Humans; D033183:Interdisciplinary Communication; D008297:Male; D009751:Nutritional Requirements; D009752:Nutritional Status; D018529:Nutritional Support / Q000379:methods*; D055815:Young Adult