title: Disentangling the exposure experience: the roles of community context and report-back of environmental exposure data.
abstract: This article examines participants' responses to receiving their results in a study of household exposure to endocrine disrupting compounds and other pollutants. The authors study how the "exposure experience"-the embodied, personal experience and understanding of chronic exposure to environmental pollutants-is shaped by community context and the report-back process itself. In addition, the authors investigate an activist, collective form of exposure experience. The authors analyze themes of expectations and learning, trust, and action. The findings reveal that while participants interpret scientific results to affirm lay knowledge of urban industrial toxics, they also absorb new information regarding other pollutant sources. By linking the public understanding of science literature to the illness and exposure experience concepts, this study unravels the complex relationship between lay experience and lay understanding of science. It also shows that to support policy development and/or social change, community-based participatory research efforts must attend to participants' understanding of science.
authors.affiliation: Brown University, Providence, RI 02912, USA.
authors.forename: Crystal
authors.initials: C
authors.lastname: Adams
authors.forename: Phil
authors.initials: P
authors.lastname: Brown
authors.forename: Rachel
authors.initials: R
authors.lastname: Morello-Frosch
authors.forename: Julia Green
authors.initials: JG
authors.lastname: Brody
authors.forename: Ruthann
authors.initials: R
authors.lastname: Rudel
authors.forename: Ami
authors.initials: A
authors.lastname: Zota
authors.forename: Sarah
authors.initials: S
authors.lastname: Dunagan
authors.forename: Jessica
authors.initials: J
authors.lastname: Tovar
authors.forename: Sharyle
authors.initials: S
authors.lastname: Patton
mesh_terms: D002140:California; D003153:Community Health Services; D003625:Data Collection / Q000379:methods*; D004781:Environmental Exposure / Q000009:adverse effects / Q000706:statistics & numerical data*; D004787:Environmental Pollution / Q000009:adverse effects*; D007722:Health Knowledge, Attitudes, Practice; D006801:Humans; D010465:Perception; D036301:Qualitative Research; D012111:Residence Characteristics / Q000706:statistics & numerical data*; D018570:Risk Assessment; D011795:Surveys and Questionnaires