title: Validation study of a scale of life quality evaluation in a group of pediatric patients infected by HIV.
abstract: With the advent of potent antiretroviral therapy and the increase in life expectancy of pediatric patients infected with HIV, the quest for the promotion of enhanced quality of life should currently be the main focus in care of children with HIV/Aids. The scope of this study was to validate the Scale of Children's Quality of Life in a group of children infected with HIV receiving clinical care in Aids Service Units in Rio de Janeiro, Brazil. This scale consists of 26 questions and was tested on 100 children, with ages varying between 4 and 12, and their respective parents or guardians. Statistical analysis was conducted using canonical correlation and confidence interval analysis and the X² test. The results showed that the cut-off point obtained was 49; the internal consistency with Cronbach's alpha was 0.73 for the children and 0.67 for parents or guardians. The response profile revealed marked satisfaction with aspects such as vacations and birthdays, though less satisfaction with items including hospitalization and playing alone. The conclusion was that the scale revealed satisfactory psychometric measurements, proving to be a reliable, consistent, valid and recommended instrument for measuring the quality of life of children infected with HIV.
authors.affiliation: Setor de Doenças Sexualmente Transmissíveis, Universidade Federal Fluminense. Outeiro de São João Batista s/nº, Campus do Valonguinho, Centro. 24210-150. Niterói RJ. carvalhoferr@yahoo.com.br
authors.forename: Dennis de Carvalho
authors.initials: Dde C
authors.lastname: Ferreira
authors.forename: Mauro Romero Leal
authors.initials: MR
authors.lastname: Passos
authors.forename: Norma de Paula Motta
authors.initials: Nde P
authors.lastname: Rubini
authors.forename: Rosiangela Ramalho de Souza
authors.initials: RR
authors.lastname: Knupp
authors.forename: José Alexandre da Rocha
authors.initials: JA
authors.lastname: Curvelo
authors.forename: Helena Lucia Barroso
authors.initials: HL
authors.lastname: dos Reis
authors.forename: Gesmar Volga Haddad
authors.initials: GV
authors.lastname: Herdy
mesh_terms: D002648:Child; D002675:Child, Preschool; D005260:Female; D015658:HIV Infections; D006801:Humans; D008297:Male; D011788:Quality of Life; D011795:Surveys and Questionnaires