title: World Trade Center Health Registry--a model for a nanomaterials exposure registry.
abstract: OBJECTIVE
  To describe the development of and some of the early results from the World Trade Center Health Registry (WTCHR). Is the WTCHR a model for a nanomaterials exposure registry? What lessons may be learned from the WTCHR?
  
  
  METHODS
  We describe the steps involved in creation of the WTCHR, from design through implementation.
  
  
  RESULTS
  The lessons learned from the WTCHR include thorough documentation of exposure early in the registry, using multimode surveys to maximize response rate, establishing an institutional home with sufficient resources for core as well as in-depth longitudinal and intervention studies, meeting with stakeholders regularly, making data accessible, and timely publication of findings, including wide dissemination of clinical guidelines.
  
  
  CONCLUSIONS
  The process of creating and maintaining the WTCHR provides important lessons for the possible creation of a nanomaterials exposure registry.
authors.affiliation: World Trade Center Health Registry, New York City Department of Health and Mental Hygiene, NY, NY, USA. jcone@health.nyc.gov
authors.forename: James E
authors.initials: JE
authors.lastname: Cone
authors.forename: Mark
authors.initials: M
authors.lastname: Farfel
mesh_terms: D000393:Air Pollutants / Q000009:adverse effects*; D004781:Environmental Exposure / Q000009:adverse effects*; D006801:Humans; D049329:Nanostructures; D036103:Nanotechnology; D016273:Occupational Exposure; D011635:Public Health Administration; D012042:Registries; D047851:September 11 Terrorist Attacks
chemical_list: D000393:Air Pollutants