title: A journey within a journey: the lived experience of parents who do not live near their child's tertiary cancer center.
abstract: Much research has been directed at childhood cancer survivors and their families to learn how to best provide care. However, little is known about parents' experiences of transitioning to a time when their child has completed treatment for cancer when living at a distance to the tertiary cancer center. The purpose of this study was to talk to such parents about their experiences. Five Canadian parents of children who had completed treatment for cancer in the past 3 months to 5 years took part in qualitative opened-ended interviews using a phenomenological hermeneutic approach. Data analysis revealed the essence of the parents' lived experience as a journey within a journey; 4 themes characterized the essence. Parents living a 2.5- to 5-hour drive from the cancer center expressed a willingness to travel wherever necessary in order to receive specialized care for their child. Parents emphasized the importance of having a local health care provider in whom they trusted. Assessing families' needs, support systems, and readiness to return home are important nursing roles throughout the cancer trajectory.
authors.affiliation: Faculty of Nursing, Helen Glass Centre, University of Manitoba, Winnipeg, Manitoba, R3T 2N2, Canada. erin_shepherd@umanitoba.ca
authors.forename: Erin Jennifer Watt
authors.initials: EJ
authors.lastname: Shepherd
authors.forename: Roberta Lynn
authors.initials: RL
authors.lastname: Woodgate
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D001294:Attitude to Health; D002170:Canada; D002648:Child; D005260:Female; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000523:psychology / Q000628:therapy*; D016522:Oncology Service, Hospital / Q000706:statistics & numerical data*; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D011369:Professional-Patient Relations; D036301:Qualitative Research; D013997:Time Factors