title: Exploring quality of life in families of children living with and without a severe food allergy.
abstract: This study aimed to explore the impact of food allergy on quality of life in children with food allergy and their primary caregivers, compared to a healthy non-food allergy comparison group. Food allergy children (n=34) and control children (n=15), aged 8-12, and their respective primary caregivers (n=30/n=13), completed generic quality of life scales (PedsQL™ and WHOQOLBREF) and were asked to take photographs and keep a diary about factors that they believed enhanced and/or limited their quality of life, over a one-week period. Questionnaire analysis showed that parents of children with food allergy had significantly lower quality of life in the social relationships domain and lower overall quality of life than the comparison parents. In contrast, children with food allergy had similar or higher quality of life scores compared to comparison children. Content analysis of photograph and diary data identified ten themes that influenced both child and parental quality of life. It was concluded that although food allergy influenced quality of life for some children, their parent's quality of life was hindered to a greater extent. The variability in findings highlights the importance of assessing quality of life in individual families, considering both children with allergies and their primary caregivers.
authors.affiliation: Institute of Work, Health and Organisations, International House, University of Nottingham, Jubilee Campus, Wollaton Road, Nottingham NG8 1BB, United Kingdom.
authors.forename: Althea Z
authors.initials: AZ
authors.lastname: Valentine
authors.forename: Rebecca C
authors.initials: RC
authors.lastname: Knibb
mesh_terms: D000203:Activities of Daily Living; D016022:Case-Control Studies; D002648:Child; D005190:Family; D005260:Female; D005502:Food; D005512:Food Hypersensitivity; D006304:Health Status; D006801:Humans; D008297:Male; D010290:Parents; D010865:Pilot Projects; D011788:Quality of Life; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires