title: Perceptions of fever and fever management practices in parents of children with Dravet syndrome.
abstract: OBJECTIVE
  The first seizure in Dravet syndrome is often considered a febrile seizure (FS), but shortly thereafter, both FSs and seizures without fever occur, leading to diagnosis. Fever remains a factor that easily precipitates seizures. We studied the perception and management of fever of parents of children with Dravet syndrome.
  
  
  METHODS
  We conducted this survey using an anonymous, self-administered questionnaire.
  
  
  RESULTS
  A total of 20 parents returned the questionnaire. Fever remains a trigger of seizures in 90% of patients. All parents have an accurate knowledge of fever and its management. The familial and socioprofessional impact of fever attacks appears to be very strong.
  
  
  CONCLUSIONS
  Fever represents a significant concern of parents of children with Dravet syndrome. The level of parental anxiety is high in case of fever. The anxiety seems related to fear of seizure recurrence leading to significant modification of parental behavior.
authors.affiliation: Inserm, U676, Paris, France.
authors.forename: Béatrice
authors.initials: B
authors.lastname: Desnous
authors.forename: Estelle
authors.initials: E
authors.lastname: Goujon
authors.forename: Vanina
authors.initials: V
authors.lastname: Bellavoine
authors.forename: Dana
authors.initials: D
authors.lastname: Merdariu
authors.forename: Stéphane
authors.initials: S
authors.lastname: Auvin
mesh_terms: D058633:Antipyretics / Q000627:therapeutic use*; D002675:Child, Preschool; D005260:Female; D005334:Fever / Q000150:complications / Q000175:diagnosis* / Q000188:drug therapy*; D006801:Humans; D008297:Male; D020190:Myoclonic Epilepsy, Juvenile / Q000209:etiology*; D003294:Seizures, Febrile / Q000209:etiology*; D011795:Surveys and Questionnaires
chemical_list: D058633:Antipyretics