title: The Turbid Crystal Ball: Life Plans Affected by MS.
abstract: Since multiple sclerosis (MS) has its onset at a young age, it is valuable to know how it affects life plans and future perspectives of patients. Through two narratives, this aspect is discussed in this article. The first is the autobiographical journal: The Journal of a Disappointed Man by WNP Barbellion, published in 1920, and the other one is from a contemporary patient. Despite the fact that both narratives are derived from different centuries, clear similarities have been perceived in the patients life plans and future perspectives. The narratives show that the life plans of both patients were adjusted due to physical limitations. Additionally, both patients experienced sorrows for losing the ability to perform passionate hobbies during their life. Moreover, a strong sense of uncertainty was expressed in both narratives concerning their future.
authors.affiliation: Tridib Das Leiden University Medical Centre (LUMC) Medical Psychology LUMC Postzone J9, PO Box 9600, 2300 RC Leiden, the Netherlands Tel: +31 6 4963 4144 E-mail: t.das@umail.leidenuniv.nl.
authors.forename: T
authors.initials: T
authors.lastname: Das
authors.forename: Aa
authors.initials: A
authors.lastname: Kaptein
authors.forename: J
authors.initials: J
authors.lastname: Haan
mesh_terms: D000339:Affect; D006801:Humans; D019369:Life; D009103:Multiple Sclerosis; D033262:Narration; D019150:Neuroaxonal Dystrophies; D035501:Uncertainty