title: An uncertain future: the unchanging views of care home residents about living and dying.
abstract: BACKGROUND
  Older people living in a care home have a limited life expectancy, and care homes are an important setting for end-of-life care provision.
  
  
  OBJECTIVE
  This research aimed to explore the views, experiences and expectations of end-of-life care among care home residents to understand if key events or living in a residential environment influenced their views.
  
  
  METHODS
  The research used a prospective design. The paper draws on the qualitative interviews of 63 care home residents who were interviewed up to three times over a year. This was a sub-sample of the larger data set of 121 care home residents.
  
  
  METHODS
  The residents were recruited from six care homes (providing personal care with no on-site nursing) in the UK.
  
  
  RESULTS
  Four main themes were identified; Living in the Past, Living in the Present, Thinking about the Future and Actively Engaged with planning the future. Many residents said they had not spoken to the care staff about end-of-life care; many assumed their family or General Practitioner would take responsibility.
  
  
  CONCLUSIONS
  Core to the older person's ability to discuss end-of-life care is their acceptance of being in a care home, the involvement of family members in making decisions and the extent to which they believed they could influence decision making within their everyday lives. Advance care plans should document ongoing dialogue. These findings can inform how primary health and palliative care services introduce, discuss and tailor existing frameworks and programmes of end-of-life care.
authors.affiliation: CRIPACC, University of Hertfordshire, Hatfield, UK. E.J.Mathie@herts.ac.uk
authors.forename: Elspeth
authors.initials: E
authors.lastname: Mathie
authors.forename: Claire
authors.initials: C
authors.lastname: Goodman
authors.forename: Clare
authors.initials: C
authors.lastname: Crang
authors.forename: Katherine
authors.initials: K
authors.lastname: Froggatt
authors.forename: Steve
authors.initials: S
authors.lastname: Iliffe
authors.forename: Jill
authors.initials: J
authors.lastname: Manthorpe
authors.forename: Stephen
authors.initials: S
authors.lastname: Barclay
mesh_terms: D000368:Aged; D000369:Aged, 80 and over; D000704:Analysis of Variance; D001293:Attitude to Death; D003657:Decision Making; D005260:Female; D006707:Homes for the Aged; D006801:Humans; D008297:Male; D008875:Middle Aged; D009735:Nursing Homes; D010342:Patient Acceptance of Health Care; D011446:Prospective Studies; D036301:Qualitative Research; D020377:Self Efficacy; D013727:Terminal Care / Q000523:psychology*; D006113:United Kingdom