title: Parental reporting of quality of care as a determinant of health related quality of life of ill adolescents at a tertiary care hospital in northern India.
abstract: OBJECTIVE
  To assess if Quality of Care (QoC) is a determinant of Health Related Quality of Life (HRQoL) in ill adolescents.
  
  
  METHODS
  This Cross-sectional study, at a tertiary care hospital of Northern India was conducted after institutional ethical approval on ill adolescents availing ambulatory or in-patient care from Pediatrics department. From August 2009 through November 2010, 300 patients availing ambulatory or in-patient care were recruited, with mean age 11.5 years ±1.5SD, of which 65.7% were males. After obtaining parental written consent and oral assent from subjects, parents reported their perception of QoC as well as adolescent's HRQoL through Pyramid and culturally modified WHOQOL-BREF, respectively. Pyramid (score range 0-1) has 43 questions about awareness of 8 indices; namely illness, routines, accessibility, medical treatment, care processes, staff attitude, participation and staff work environment. WHOQOL-BREF (score range 0-100) has 4 domains: physical, psychological, social relations and environment.
  
  
  RESULTS
  Mean HRQoL was 42.5 ± 5.6, mean QoC was 0.67 ± 0.07 and mean scores were not significantly different for patients on ambulatory and in-patient care. Correlation between overall HRQoL and QoC was 0.32 (p < 0.0001). Information about illness index was the only significant determinant of good HRQoL in binary logistic regression (Odd's Ratio 4.19, 95% CI 2.39-7.33; p < 0.0001).
  
  
  CONCLUSIONS
  QoC is a significant determinant of ill adolescent's HRQoL at a tertiary care hospital.
authors.affiliation: Department of Pediatrics, Chhatrapati Shahuji Maharaj Medical University (Erstwhile King George's Medical University), Shahmina Road, Chowk, Lucknow, UP 226003, India.
authors.forename: Kasturi
authors.initials: K
authors.lastname: Agnihotri
authors.forename: Shally
authors.initials: S
authors.lastname: Awasthi
mesh_terms: D000293:Adolescent; D016497:Adolescent Health Services / Q000592:standards*; D002648:Child; D003430:Cross-Sectional Studies; D005260:Female; D006761:Hospitals; D006801:Humans; D007194:India; D008297:Male; D017060:Patient Satisfaction / Q000706:statistics & numerical data*; D010465:Perception; D011787:Quality of Health Care / Q000706:statistics & numerical data*; D011788:Quality of Life; D011795:Surveys and Questionnaires; D055815:Young Adult