title: [Structured care in an ISO certified centre for patients with cystic fibrosis and their families].
abstract: BACKGROUND
  Cystic fibrosis (CF) is a chronic, life-shortening disease of multiple organ systems. Guidelines recommend that patients should be treated in specialised CF centres with multi-professional teams. We describe the organisation of medical care at the CF centre of Innsbruck University as well as results of treatment.
  
  
  METHODS
  Procedures and delivery of multi-professional care have been elaborated and structured. Since 2006 the Centre has been repeatedly certified according to DIN ISO 9001:2000. The patient database is being used during the doctor's consultation and for the continuous monitoring of treatment results.
  
  
  RESULTS
  In 2010, 71 of the 148 patients (48%) were between 18 and 56 years old. The total number of patients has doubled and the proportion of adults tripled since 1995. Nevertheless, median FEV1 remained stable (>80% of predicted) during the last 15 years. Compared with 18 CF centres of the German Benchmarking Group, patients treated in Innsbruck had favourable FEV1 values: 52% of adults had a normal FEV1 (>80% pred.) and only 23% an FEV1 <50% of predicted.
  
  
  CONCLUSIONS
  A structured programme of multi-professional care was associated with favourable treatment results, both longitudinally and in comparison to other CF centres.
authors.affiliation: CF-Zentrum Innsbruck, Univ.-Klinik für Kinder- und Jugendheilkunde, Anichstraße 35, Innsbruck, Austria. helmut.ellemunter@i-med.ac.at
authors.forename: H
authors.initials: H
authors.lastname: Ellemunter
authors.forename: J
authors.initials: J
authors.lastname: Eder
authors.forename: G
authors.initials: G
authors.lastname: Steinkamp
mesh_terms: D000293:Adolescent; D000328:Adult; D001317:Austria; D019985:Benchmarking / Q000458:organization & administration; D002568:Certification / Q000458:organization & administration*; D003299:Cooperative Behavior; D003430:Cross-Sectional Studies; D003550:Cystic Fibrosis / Q000175:diagnosis / Q000453:epidemiology / Q000503:physiopathology / Q000534:rehabilitation*; D005260:Female; D005500:Follow-Up Studies; D005541:Forced Expiratory Volume / Q000502:physiology; D006782:Hospitals, Special / Q000458:organization & administration*; D006785:Hospitals, University; D006801:Humans; D033183:Interdisciplinary Communication; D008137:Longitudinal Studies; D008297:Male; D008875:Middle Aged; D010348:Patient Care Team / Q000458:organization & administration*; D055815:Young Adult