title: The experiences of patients with pulmonary arterial hypertension receiving continuous intravenous infusion of epoprostenol (Flolan) and their support persons.
abstract: OBJECTIVE
  Little is known about the day-to-day experiences of patients and their support persons during the course of epoprostenol treatment for pulmonary arterial hypertension (PAH). The study objective was to describe the experiences of patients and their support persons adjusting to PAH and continuous intravenous epoprostenol.
  
  
  METHODS
  A qualitative descriptive design with semistructured interviews was conducted jointly with the patient and his/her support person. Seven patients and their support persons (spouse, child, friend) were included.
  
  
  RESULTS
  Patients demonstrated personal growth and resilience as they adapted to PAH. Four patient themes emerged: initial shock, figuring it out, giving life, and ongoing struggles. Themes specific to the support person included "their life is in my hands," pressure to perform, and continuation of my role.
  
  
  CONCLUSIONS
  Nurses may assist these patients and support persons by teaching technical skills, problem-solving and troubleshooting strategies, mobilizing social support, and providing opportunities to reflect on lifestyle changes and long-term adjustment to PAH.
authors.affiliation: Jewish General Hospital, School of Nursing, McGill University, Montreal, Quebec, Canada. hhall@jgh.mcgill.ca
authors.forename: Heather
authors.initials: H
authors.lastname: Hall
authors.forename: Joanne
authors.initials: J
authors.lastname: Côté
authors.forename: Althea
authors.initials: A
authors.lastname: McBean
authors.forename: Margaret
authors.initials: M
authors.lastname: Purden
mesh_terms: D000328:Adult; D000368:Aged; D000959:Antihypertensive Agents / Q000008:administration & dosage / Q000627:therapeutic use*; D017028:Caregivers; D011464:Epoprostenol / Q000008:administration & dosage / Q000627:therapeutic use*; D005260:Female; D006801:Humans; D006976:Hypertension, Pulmonary / Q000188:drug therapy* / Q000451:nursing / Q000523:psychology; D007406:Interview, Psychological; D008297:Male; D008875:Middle Aged; D036301:Qualitative Research; D012944:Social Support; D013315:Stress, Psychological; D011795:Surveys and Questionnaires
chemical_list: D000959:Antihypertensive Agents; D011464:Epoprostenol