title: [What being a mother of a child with cystic fibrosis is like].
abstract: Knowing what being a mother of a child with cystic fibrosis is like is essential to the care of these individuals, because she usually divides the responsibilities related to treatment with the child who has this grave and incurable illness. This paper aimed to know the experience of being a mother of a child with cystic fibrosis. This is a descriptive exploratory study of qualitative phenomenological nature. Were interviewed 14 women and the data collection was carried out through a semistructured interview. The analysis of the transcribed speeches followed directions proposed by phenomenology. This is an experience where sorrow, anguish, doubt, suffering and fear are present, making these women reflect on their lives and their children's, promoting changes in their world and a reorganization of the entire family.
authors.affiliation: Universidade Estadual do Oeste do Paraná (UNIOESTE), Cascavel, Paraná, Brasil. keilaokudatavares@gmail.com
authors.forename: Keila Okuda
authors.initials: KO
authors.lastname: Tavares
authors.forename: Maria Dalva de Barros
authors.initials: MD
authors.lastname: Carvalho
authors.forename: Sandra Marisa
authors.initials: SM
authors.lastname: Pelloso
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D002675:Child, Preschool; D003550:Cystic Fibrosis; D005192:Family Health; D005260:Female; D006801:Humans; D007223:Infant; D008875:Middle Aged; D009035:Mothers / Q000523:psychology*; D055815:Young Adult