title: 'Nothing about us without us': considerations for research involving young people.
abstract: Research development in the adolescent health arena is increasingly called for, given the relative lack of robust data on the health of young people. However, specific issues need to be considered when researching this age group. Such issues include participation of young people in the research process, availability of adolescent-specific data, developmental considerations and the interface between paediatric and adult-orientated healthcare. The aim of this paper is to highlight the importance of participation of young people in research and to discuss the key areas for consideration for practitioners when conducting research involving young people.
authors.affiliation: Department of Paediatric and Adolescent Rheumatology, University of Birmingham, Birmingham Children's Hospital NHS Foundation Trust, Birmingham, UK. j.e.mcdonagh@bham.ac.uk
authors.forename: Janet E
authors.initials: JE
authors.lastname: McDonagh
authors.forename: Belinda
authors.initials: B
authors.lastname: Bateman
mesh_terms: D000293:Adolescent; D041923:Adolescent Development; D035843:Biomedical Research / Q000592:standards*; D001921:Brain / Q000254:growth & development; D003625:Data Collection / Q000592:standards; D006801:Humans; D010352:Patient Dropouts / Q000523:psychology; D010358:Patient Participation / Q000523:psychology*; D017410:Practice Guidelines as Topic; D000297:Psychology, Adolescent; D035844:Researcher-Subject Relations / Q000523:psychology; D012919:Social Behavior; D006113:United Kingdom