title: OMERACT 10 Patient Perspective Virtual Campus: valuing health; measuring outcomes in rheumatoid arthritis fatigue, RA sleep, arthroplasty, and systemic sclerosis; and clinical significance of changes in health.
abstract: This workshop reviewed progress in a number of areas related to patient perspective outcomes that were not specifically included within other areas of the program. A substantial review of the work of the valuing health outcomes group (the "QALY" working group) with participation and feedback from the plenary audience resulted in guidance to refocus on the use of patient preferences in the elaboration of more robust outcome measures for patient-reported outcomes and life impact measures. Progress and developments in the areas of fatigue and sleep in rheumatoid arthritis, outcome measures in hip and knee arthroplasty clinical trials, and scleroderma were outlined, and the challenge of truly understanding the nature of clinically important improvement was reviewed.
authors.affiliation: Academic Rheumatology Unit, University of Bristol, Bristol Royal Infirmary, Bristol, UK. john.kirwan@bristol.ac.uk
authors.forename: John R
authors.initials: JR
authors.lastname: Kirwan
authors.forename: Annelies
authors.initials: A
authors.lastname: Boonen
authors.forename: Mark J
authors.initials: MJ
authors.lastname: Harrison
authors.forename: Sarah E
authors.initials: SE
authors.lastname: Hewlett
authors.forename: George A
authors.initials: GA
authors.lastname: Wells
authors.forename: Jasvinder A
authors.initials: JA
authors.lastname: Singh
authors.forename: Daniel E
authors.initials: DE
authors.lastname: Furst
authors.forename: Robert H
authors.initials: RH
authors.lastname: Dworkin
mesh_terms: D001172:Arthritis, Rheumatoid / Q000191:economics / Q000503:physiopathology / Q000628:therapy; D001178:Arthroplasty; D002986:Clinical Trials as Topic; D003362:Cost-Benefit Analysis; D005221:Fatigue / Q000503:physiopathology* / Q000628:therapy; D006801:Humans; D017063:Outcome Assessment, Health Care / Q000379:methods*; D017060:Patient Satisfaction; D019057:Quality-Adjusted Life Years; D012219:Rheumatology / Q000379:methods; D012595:Scleroderma, Systemic / Q000503:physiopathology / Q000628:therapy; D012890:Sleep / Q000502:physiology*; D016896:Treatment Outcome