title: Patient perspective: choosing or developing instruments.
abstract: Previous Outcome Measures in Rheumatology (OMERACT) meetings recognized that patients view outcomes of intervention from a different perspective. This preconference position paper briefly sets out 2 patient-reported outcome (PRO) instrument approaches, the PROMISE computer adaptive testing (CAT) system and development of a rheumatoid arthritis-specific questionnaire to measure fatigue; a tentative proposal for a PRO instrument development pathway is also made.
authors.affiliation: University of Bristol, Academic Rheumatology Unit, Bristol Royal Infirmary, Bristol, UK. john.kirwan@bristol.ac.uk
authors.forename: John R
authors.initials: JR
authors.lastname: Kirwan
authors.forename: James F
authors.initials: JF
authors.lastname: Fries
authors.forename: Sarah
authors.initials: S
authors.lastname: Hewlett
authors.forename: Richard H
authors.initials: RH
authors.lastname: Osborne
mesh_terms: D001172:Arthritis, Rheumatoid / Q000150:complications / Q000503:physiopathology / Q000628:therapy; D003226:Congresses as Topic; D005221:Fatigue / Q000209:etiology / Q000503:physiopathology; D006801:Humans; D017063:Outcome Assessment, Health Care / Q000379:methods*; D017060:Patient Satisfaction; D012219:Rheumatology / Q000379:methods*; D011795:Surveys and Questionnaires; D016896:Treatment Outcome