title: Perinatal loss and parental grief: the challenge of ambiguity and disenfranchised grief.
abstract: Following perinatal loss, a type of ambiguous loss, bereaved couples struggle with and experience distress due to various forms of ambiguity. Moreover, the juxtaposition of their grief with society's minimization often disenfranchises them from traditional grieving processes. The purpose of this study was to explore sources of ambiguity and disenfranchised grief related to perinatal loss. Audio-taped interviews with 13 bereaved couples at 2, 6, and 13 months following the death of their fetus or infant were analyzed. Several categories of ambiguity and disenfranchised grief emerged, pertaining to: (a) the viability of the pregnancy; (b) the physical process of pregnancy loss; (c) making arrangements for the remains; and (d) sharing the news. This study uncovers the many sources of ambiguity and disenfranchised grief that bereaved couples face in interactions with family, friends, society, and healthcare professionals. These insights may inform healthcare professionals in their attempts to ease distress related to perinatal loss.
authors.affiliation: VON Canada, Ottawa, Ontario. ariella.lang@sympatico.ca
authors.forename: Ariella
authors.initials: A
authors.lastname: Lang
authors.forename: Andrea R
authors.initials: AR
authors.lastname: Fleiszer
authors.forename: Fabie
authors.initials: F
authors.lastname: Duhamel
authors.forename: Wendy
authors.initials: W
authors.lastname: Sword
authors.forename: Kathleen R
authors.initials: KR
authors.lastname: Gilbert
authors.forename: Serena
authors.initials: S
authors.lastname: Corsini-Munt
mesh_terms: D000328:Adult; D000739:Anecdotes as Topic; D001293:Attitude to Death; D003717:Denial, Psychological; D005260:Female; D005313:Fetal Death; D006117:Grief; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology; D049590:Postpartum Period / Q000523:psychology; D012944:Social Support; D050497:Stillbirth / Q000523:psychology*; D055815:Young Adult