title: A review of social and relational aspects of deep brain stimulation in Parkinson's disease informed by healthcare provider experiences.
abstract: Background. Although the clinical effectiveness of deep brain stimulation (DBS) in Parkinson's disease is established, there has been less examination of its social aspects. Methods and Results. Building on qualitative comments provided by healthcare providers, we present four different social and relational issues (need for social support, changes in relationships (with self and partner) and challenges with regards to occupation and the social system). We review the literature from multiple disciplines on each issue. We comment on their ethical implications and conclude by establishing the future prospects for research with the possible expansion of DBS for psychiatric indications. Conclusions. Our review demonstrates that there are varied social issues involved in DBS. These issues may have significant impacts on the perceived outcome of DBS by patients. Moreover, the fact that the social impact of DBS is still not well understood in emerging psychiatric indications presents an important area for future examination.
authors.affiliation: Neuroethics Research Unit, Institut de recherches cliniques de Montréal (IRCM), Montréal, QC, Canada H2W lR7.
authors.forename: Emily
authors.initials: E
authors.lastname: Bell
authors.forename: Bruce
authors.initials: B
authors.lastname: Maxwell
authors.forename: Mary Pat
authors.initials: MP
authors.lastname: McAndrews
authors.forename: Abbas F
authors.initials: AF
authors.lastname: Sadikot
authors.forename: Eric
authors.initials: E
authors.lastname: Racine