title: Evaluation of an education day for families of children with obstetrical brachial plexus palsy.
abstract: Children with obstetrical brachial plexus palsy may have chronic physical impairment in their affected upper extremity. Affected children and their families may benefit from psychosocial interventions including therapeutic relationships with health professionals, meeting other families living with obstetrical brachial plexus palsy, support groups, and social work. One method of addressing psychosocial needs is through a support and education day. The purpose of this quality improvement project is to evaluate parental perceptions of a support and education day called the "Brachial Plexus Family Day." Families of children with obstetrical brachial plexus palsy who attended the Brachial Plexus Family Day completed a questionnaire to evaluate the different programs offered during the day. The families also ranked the importance of different psychosocial supports offered in the clinic. Sixty-three out of 69 families completed the questionnaire. Each program of the Brachial Plexus Family Day was rated as good or excellent by the respondents. Ninety-seven percent of respondents rated meeting other families and children with obstetrical brachial plexus palsy as helpful supports. Attending a Brachial Plexus Family day event (86%), followed by connecting with a doctor (60%), and physical or occupational therapist (59%) were the highest ranked supports reported by the families. The parents and caregivers that attended the Brachial Plexus Family Day rated the program highly. This group also valued the opportunity to connect with other families and children affected with the same condition.
authors.affiliation: Division of Plastic and Reconstructive Surgery, The Hospital for Sick Children,Toronto, Ontario, Canada. emily.ho@sickkids.ca
authors.forename: Emily S
authors.initials: ES
authors.lastname: Ho
authors.forename: Alissa A
authors.initials: AA
authors.lastname: Ulster
mesh_terms: D000293:Adolescent; D001917:Brachial Plexus / Q000293:injuries*; D020516:Brachial Plexus Neuropathies / Q000209:etiology / Q000503:physiopathology / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D005196:Family Therapy / Q000379:methods; D005260:Female; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D010246:Paralysis, Obstetric; D010290:Parents / Q000193:education / Q000523:psychology*; D011368:Professional-Family Relations; D015397:Program Evaluation; D058996:Quality Improvement; D012944:Social Support; D011795:Surveys and Questionnaires