title: Respite care needs for families of children with life-limiting conditions.
abstract: The Framework for Respite in Partnership with Parents (FRiPP), developed by the Jessie May Trust is a tool to enable a standardised and equitable allocation of a limited resource. FRiPP reduces the opportunity for subjective allocation of respite-based care stemming from the professional-led model of telling families what they need. The tool is aimed at engaging families in identifying and articulating the support they require. After a successful pilot and evaluation, FRiPP is now used for all families on the Jessie May Trust's caseload. The authors reflect on the tool's development and implementation process in the context of promoting and protecting partnership working.
authors.affiliation: Jessie May Trust, Kingswood, Bristol.
authors.forename: Janet
authors.initials: J
authors.lastname: Bowman
authors.forename: Ruth
authors.initials: R
authors.lastname: Butcher
authors.forename: Sue
authors.initials: S
authors.lastname: Dolby
mesh_terms: D002648:Child; D005190:Family / Q000523:psychology*; D015276:Health Care Rationing; D006301:Health Services Needs and Demand; D006801:Humans; D017008:Negotiating; D012144:Respite Care; D019452:Terminally Ill