title: Pediatric cardiac surgery under the parents sight: a qualitative study.
abstract: BACKGROUND
  Congenital heart defects can often be corrected through surgery, providing for parents to expect a normal life, but the hospitalization experience often early, causes more pain, for which surgery is the worst moment.
  
  
  OBJECTIVE
  The aim of this study was to analyze the experience of families of children undergoing cardiac surgery and to identify the coping resources used by the families.
  
  
  METHODS
  A qualitative approach was the metodology of choice for this study, which took place with six semi-structured interviews and 100 hours of observation. Thematic analysis was used to understand the data.
  
  
  RESULTS
  The results were categorized into four themes: feelings and emotions facing the illness of the child; heart disease under the watchful mother, mother and child on the ICU and coping resources. The speech of mothers demonstrated the importance of the heart due to its symbolism that enhances their emotional fragility in the face of illness. Religiosity and a solid social network of support were contributing factors for the maintenance of the adaptive behaviors. The presence of mothers in all stages of the child's treatment contributed to minimizing the suffering generated by hospitalization.
  
  
  CONCLUSIONS
  The experience of families was characterized by ambivalent feelings such as fear of death, guilt and helplessness against the different stages of treatment. The anguish and anxiety prevailed in the face of unknown situations when information were required before therapeutic procedures, hospital routines and the actual life situation of the families.
authors: Service of Psychology at Federal University Hospital of Maranhão.
authors: Christiana Leal
authors: CL
authors: Salgado
authors: Zeni Carvalho
authors: ZC
authors: Lamy
authors: Rachel Vilela de Abreu Haickel
authors: RV
authors: Nina
authors: Lívia Arruda
authors: LA
authors: de Melo
authors: Fernando
authors: F
authors: Lamy Filho
authors: Vinicus José da Silva
authors: VJ
authors: Nina
mesh_terms: D000223:Adaptation, Psychological / Q000502:physiology*; D006348:Cardiac Surgical Procedures / Q000523:psychology*; D002648:Child; D005260:Female; D006330:Heart Defects, Congenital / Q000523:psychology / Q000601:surgery*; D006801:Humans; D008297:Male; D009035:Mothers / Q000523:psychology; D010290:Parents / Q000523:psychology*; D036301:Qualitative Research