title: [Hemophilia patient education: teaching and assessment of 10 programs].
abstract: A group of health professionals and patients conducted a pedagogical assessment of Therapeutic Patient Education (TPE) in haemophilia in France, focused on 2 main subjects: "the objectives and aims of TPE programs" and "the health professionals' ability to lead and contribute to TPE programs" (3). The use of a research laboratory and a participatory methodology allowed for identifying the assessment's challenges and contributed to its smooth running. TPE is starting to be integrated with medical care for patients, and a multidisciplinary approach better meets patients' educational needs. Two prerequisites for improving the pedagogical quality of these programs are self-reported patient needs and coordination of the TPE activities. The parties involved in this study are now better prepared to meet the ARS (4) TPE program specifications in haemophilia, and, importantly, are better prepared to undergo the assessment that takes place every 4 years.
authors: Anne-Marie
authors: AM
authors: Ané
authors: Lydie
authors: L
authors: Wintz
authors: Thomas
authors: T
authors: Sannié
authors: Rémi
authors: R
authors: Gagnayre
mesh_terms: D000293:Adolescent; D002648:Child; D002675:Child, Preschool; D006467:Hemophilia A / Q000628:therapy*; D002836:Hemophilia B / Q000628:therapy*; D006801:Humans; D007223:Infant; D010353:Patient Education as Topic / Q000458:organization & administration*; D015397:Program Evaluation