title: "I'm supposed to be in charge": self-advocates' perspectives on their self-determination support needs.
abstract: In this qualitative interview study, we explored the perceptions of adults with intellectual disability regarding interpersonal or social supports needed to express their own self-determination. Specifically, 10 adults, all members of a self-advocacy group, were asked to discuss their understanding of the term self-determination and ways in which support staff have either supported or inhibited their self-determination. Ten themes characterizing supportive and impeding staff actions were identified. The need for greater exploration of environmental and social influences on self-determination is emphasized.
authors: Bureau of Autism Services, Pennsylvania Department of Public Welfare, USA.
authors: Stacy L
authors: SL
authors: Nonnemacher
authors: Linda M
authors: LM
authors: Bambara
mesh_terms: D000328:Adult; D006233:Persons with Disabilities; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D026684:Personal Autonomy; D036301:Qualitative Research; D012944:Social Support