title: Developing an electronic health record for intractable diseases in Japan.
abstract: Because intractable diseases result from unidentifiable causes and are very difficult to treat, they require a lifelong epidemiology database. Japan does not use global unique identifiers, such as social security numbers, so we conducted a feasibility study regarding an electronic health record (EHR). An EHR can be used as a lifelong database and reduce conventional administrative work. However, it will be necessary to develop additional tools to overcome issues specific to Japan before an EHR can be implemented.
authors: Department Medical Informatics of Ehime University Hospital, Japan. ekimura@m.ehime-u.ac.jp
authors: Eizen
authors: E
authors: Kimura
authors: Shinji
authors: S
authors: Kobayashi
authors: Yasuhiro
authors: Y
authors: Kanatani
authors: Ken
authors: K
authors: Ishihara
authors: Tsuneyo
authors: T
authors: Mimori
authors: Ryousuke
authors: R
authors: Takahashi
authors: Tsutomu
authors: T
authors: Chiba
authors: Hiroyuki
authors: H
authors: Yoshihara
mesh_terms: D002908:Chronic Disease / Q000453:epidemiology*; D003201:Computers; D003625:Data Collection; D016208:Databases, Factual; D001330:Electronic Data Processing; D057286:Electronic Health Records; D006801:Humans; D007564:Japan; D008490:Medical Informatics / Q000379:methods*; D016730:Program Development; D012984:Software