title: Emotions and personal health information management: some implications for design.
abstract: This work reflects on the translation of a paper-based information system into an electronic one, taking account of the emotional dimension of material artifacts. A qualitative analysis carried out through semi-structured interviews enabled us to describe laypeople's healthcare practices, and specifically the use of "pediatric booklets", which are paper health diaries designed to provide parents with a repository of the most relevant clinical data about their children. Our analysis reveals that parents' use of the booklet does not depend only on the clinical relevance of the information contained in it. Its success rather depends on practices that reshape the booklet's original meaning. In particular, parents use booklets as containers for other clinical records, and they consider them more as objects of affection and symbols of their caring for their children than as clinical tools with instrumental value in themselves. In the discussion we consider the risks of dematerializing health information tools by underestimating the relevance of the emotional side.
authors: e-Health unit; Fondazione Bruno Kessler, Italy. piras@fbk.eu
authors: Enrico Maria
authors: EM
authors: Piras
authors: Alberto
authors: A
authors: Zanutto
mesh_terms: D022126:Access to Information; D000293:Adolescent; D002648:Child; D003142:Communication; D003625:Data Collection; D004644:Emotions; D005260:Female; D055991:Health Records, Personal; D006801:Humans; D008297:Male; D010290:Parents; D010372:Pediatrics