title: Impact on parents of receiving individualized feedback of psychological testing conducted with children as part of a research study.
abstract: While many researchers accept the principle that participants have a right to receive information learned from their participation in research, there are few studies examining the impact of receiving results on participants. This study was developed to examine the impact on parents of the receipt of individual results of research-based psychological testing of their children. A summary of the child's individual results of standardized measures of language and development was sent by mail with the questionnaire designed to assess the impact of receiving results. Response rate from the mailed questionnaire was 55.6% (n=74/133). Most parents reported the results as helpful and positive. The majority would receive results again. Overall, the sharing of individualized feedback from psychological testing conducted as part of a research study was well accepted by parents. This practice appears ethically permissible with appropriate support options for addressing participant concerns upon receiving the results as well options for clinical follow-up for the child.
authors.affiliation: Department of Pediatrics, Dalhousie University, IWK Health Centre, Halifax, Nova Scotia, Canada.
authors.forename: Kelly
authors.initials: K
authors.lastname: Cox
authors.forename: Conrad V
authors.initials: CV
authors.lastname: Fernandez
authors.forename: Christine T
authors.initials: CT
authors.lastname: Chambers
authors.forename: Nancy F
authors.initials: NF
authors.lastname: Bandstra
authors.forename: Jennifer A
authors.initials: JA
authors.lastname: Parker
mesh_terms: D000293:Adolescent; D000328:Adult; D035843:Biomedical Research / Q000941:ethics*; D002648:Child; D002675:Child, Preschool; D004644:Emotions; D032984:Ethics, Research; D030141:Feedback, Psychological; D005260:Female; D019538:Health Care Surveys; D006379:Helping Behavior; D006801:Humans; D007223:Infant; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D011368:Professional-Family Relations; D011581:Psychological Tests; D002666:Psychology, Child / Q000379:methods*; D011594:Psychometrics; D011795:Surveys and Questionnaires; D055815:Young Adult