title: Quality of life in parents/caretakers of children with cerebral palsy in Kampong Cham, Cambodia.
abstract: The purpose of this study was to investigate QOL in parents/caretakers of children with cerebral palsy in the province of Kampong Cham, Cambodia. Forty parents/caretakers of children with cerebral palsy aged 1-13 years (F19/M21) participated in this study. The study was carried out using the Comprehensive Quality of life Scale A5 (ComQOL-A5) questionnaire. Results point out three major domains where quality of life is unsatisfactory: health, material well-being and emotional well-being. Of these areas, QOL in the health domain demonstrates the lowest scores. Results support a further commitment in providing comprehensive rehabilitation for parents and their children with CP in Kampong Cham. This study identifies the need for further research on QOL in parents/caretakers of children with CP in Cambodia and the need for development of valid and reliable QOL instruments targeting the developing world.
authors.affiliation: Institute of neuroscience and physiology, Section for clinical neuroscience and rehabilitation, Department of Physiotherapy, University of Gothenburg, Sweden. helena.strom@vgregion.se
authors.forename: Helena
authors.initials: H
authors.lastname: Ström
authors.forename: Margareta
authors.initials: M
authors.lastname: Kreuter
authors.forename: Susanne
authors.initials: S
authors.lastname: Rosberg
mesh_terms: D000293:Adolescent; D002160:Cambodia; D017028:Caregivers / Q000523:psychology*; D002547:Cerebral Palsy / Q000523:psychology / Q000534:rehabilitation; D002648:Child; D002675:Child, Preschool; D005260:Female; D006304:Health Status; D006801:Humans; D007223:Infant; D008297:Male; D010290:Parents / Q000523:psychology*; D011569:Psychiatric Status Rating Scales; D011788:Quality of Life / Q000523:psychology*; D012720:Severity of Illness Index; D012959:Socioeconomic Factors; D013315:Stress, Psychological; D011795:Surveys and Questionnaires