title: [Withdrawal of life-support from ALS patients in so called totally locked in state: from the viewpoint of clinical ethics].
abstract: In Japanese context, there has been a controversy concerning the withdrawal of life-support, i.e. respiratory system, from ALS patients when, along of the progress of the disease, they have become not able to express themselves at all to people around them, i.e. when they are in so called 'totally locked in state (TLS)'. Basing himself on the system of clinical ethics he has been developing in accord with Japanese culture, the author (1) reconstitutes the logic of justifying the withdrawal in dispute, (2) examines objections against officially recognizing such withdrawal, and (3) proposes an appropriate process of decision making which he hopes to be acceptable to both sides in the controversy.
authors.affiliation: Uehiro Endowed Chair for Death and Life Studies, Graduate School of Humanities and Sociology, The University of Tokyo.
authors.forename: Tetsuro
authors.initials: T
authors.lastname: Shimizu
mesh_terms: D000690:Amyotrophic Lateral Sclerosis / Q000503:physiopathology / Q000628:therapy*; D003469:Culture; D003657:Decision Making / Q000941:ethics; D026690:Ethics, Clinical; D006801:Humans; D007564:Japan; D008021:Life Support Systems / Q000941:ethics*; D012122:Ventilators, Mechanical / Q000941:ethics*; D028761:Withholding Treatment / Q000941:ethics*