title: Naming migraine and those who have it.
abstract: Medical language has implications for both public perception of and institutional responses to illness. A consensus panel of physicians, academics, advocates, and patients with diverse experiences and knowledge about migraine considered 3 questions: (1) What is migraine: an illness, disease, syndrome, condition, disorder, or susceptibility? (2) What ought we call someone with migraine? (3) What should we not call someone with migraine? Although consensus was not reached, the responses were summarized and analyzed quantitatively and qualitatively. Panelists participated in writing and editing the paper. The panelists agreed that "migraine," not "migraine headache," was generally preferable, that migraine met the dictionary definition for each candidate moniker, terms with psychiatric valence should be avoided, and "sufferer" should be avoided except in very limited circumstances. Overall, while there was no consensus, "disease" was the preferred term in the most situations, and illness the least preferred. Panelists disagreed strongly whether one ought to use the term "migraineur" at all or if "person with migraine" was preferable. Panelists drew upon a variety of principles when considering language choices, including the extent to which candidate monikers could be defended using biomedical evidence, the cultural meaning of the proposed term, and the context within which the term would be used. Panelists strove to balance the need for terms to describe the best science on migraine, with the desire to choose language that would emphasize the credibility of migraine. The wide range of symptoms of migraine and its diverse effects may require considerable elasticity of language.
authors.affiliation: Department of Neurology, Thomas Jefferson University, Philadelphia, PA, USA.
authors.forename: William B
authors.initials: WB
authors.lastname: Young
authors.forename: Joanna
authors.initials: J
authors.lastname: Kempner
authors.forename: Elizabeth W
authors.initials: EW
authors.lastname: Loder
authors.forename: Jason
authors.initials: J
authors.lastname: Roberts
authors.forename: Judy Z
authors.initials: JZ
authors.lastname: Segal
authors.forename: Miriam
authors.initials: M
authors.lastname: Solomon
authors.forename: Roger K
authors.initials: RK
authors.lastname: Cady
authors.forename: Laura
authors.initials: L
authors.lastname: Janoff
authors.forename: Robert D
authors.initials: RD
authors.lastname: Sheeler
authors.forename: Teri
authors.initials: T
authors.lastname: Robert
authors.forename: Jennifer
authors.initials: J
authors.lastname: Yocum
authors.forename: Fred D
authors.initials: FD
authors.lastname: Sheftell
mesh_terms: D006801:Humans; D008881:Migraine Disorders / Q000175:diagnosis* / Q000523:psychology*; D010465:Perception; D010820:Physicians / Q000523:psychology; D009626:Terminology as Topic