title: The International Pemphigus and Pemphigoid Foundation.
abstract: The International Pemphigus Pemphigoid Foundation (IPFF) was founded in 1997. The IPPF lists more than 4500 members. The IPPF provides peer health coaches to aid patients in the navigation of the health care system and recommends dermatologists and other specialists in their area who are experts in autoimmune bullous disease. The IPPF hosts the largest worldwide registry of pemphigus/pemphigoid patients with biospecimen collection opportunities are planned. Twice a year the IPPF hosts formal meetings with invited speakers.
authors.affiliation: Department of Dermatology, St George Hospital, University of New South Wales, Gray Street, Kogarah, Sydney, NSW 2217, Australia.
authors.forename: Dédée F
authors.initials: DF
authors.lastname: Murrell
authors.forename: Victoria P
authors.initials: VP
authors.lastname: Werth
authors.forename: Janet
authors.initials: J
authors.lastname: Segall
authors.forename: Will
authors.initials: W
authors.lastname: Zrnchik
authors.forename: Molly
authors.initials: M
authors.lastname: Stuart
authors.forename: David
authors.initials: D
authors.lastname: Sirois
mesh_terms: D005582:Foundations / Q000266:history; D058015:Health Communication / Q000379:methods*; D049673:History, 20th Century; D006801:Humans; D007391:International Cooperation; D020407:Internet; D010353:Patient Education as Topic / Q000379:methods*; D010391:Pemphigoid, Bullous; D010392:Pemphigus; D012657:Self-Help Groups; D000078329:Workforce