title: For Xavier.
authors.affiliation: Eliot-Pearson Department of Child Development, Tufts University, Boston, Massachusetts, USA.
authors.forename: Divna
authors.initials: D
authors.lastname: Wheelwright
authors.forename: Tamara
authors.initials: T
authors.lastname: Vesel
authors.forename: W George
authors.initials: WG
authors.lastname: Scarlett
mesh_terms: D000293:Adolescent; D006801:Humans; D008297:Male; D028361:Mitochondrial Diseases / Q000503:physiopathology; D033262:Narration; D010166:Palliative Care; D011368:Professional-Family Relations; D013727:Terminal Care; D014342:Truth Disclosure