title: Expressing ethical principles of treatment and care in a charter: what value?
abstract: More than ever before, public institutions are expected to have accessible guidelines on what they do, both for their staff and for those served by them. With this in mind, some principles of treatment and care of sick children were drafted for the Children's Hospital at Westmead. These were centred on ethics, primarily of what was best for the child. They were neither all-inclusive nor specific. They were labelled as a charter. They were rejected by a parent committee and met with unenthusiastic responses at meetings of hospital and ethics professionals. Reasons for this are unclear, but it is speculated that fear of the unknown and distrust of institutions may be factors. To date, the charter has not proved useful, except in provoking further discussion on how general guidelines are written, used and valued and on end-of-life decision-making more generally.
authors.affiliation: General Medicine and Clinical Ethics, The Children's Hospital at Westmead, New South Wales, Australia. henryk@chw.edu.au
authors.forename: Henry A
authors.initials: HA
authors.lastname: Kilham
mesh_terms: D001294:Attitude to Health; D002648:Child; D003657:Decision Making / Q000941:ethics; D004991:Ethics, Institutional; D006776:Hospitals, Pediatric / Q000941:ethics*; D006801:Humans; D008020:Life Support Care / Q000941:ethics; D009517:New South Wales; D010290:Parents; D017410:Practice Guidelines as Topic; D013727:Terminal Care / Q000941:ethics*