title: Validation of the extended ICF core set for stroke from the patient perspective using focus groups.
abstract: OBJECTIVE
  The extended international classification of functioning, disability and health (ICF) core set for stroke is an application of the ICF of the World Health Organisation (WHO) with the purpose to represent the typical spectrum of functioning of persons with stroke. The objective of the study was to add evidence to the validation of the extended ICF core set for stroke from the perspective of patients using focus groups to explore the aspects of functioning and health important to persons with stroke.
  
  
  METHODS
  The sampling of patients followed the maximum variation strategy. Sample size was determined by saturation. The focus groups were digitally recorded and transcribed verbatim. After qualitative data analysis, the resulting concepts were linked to ICF categories and compared to the categories included in the extended ICF core set for stroke.
  
  
  RESULTS
  Sixty patients participated in 15 focus groups. The content of 131 out of 166 ICF categories contained in the extended ICF core set for stroke was reported by the persons with stroke. The content of 31 additional categories that are not covered in the extended ICF core set for stroke was raised.
  
  
  CONCLUSIONS
  The existing version of the extended ICF core set for stroke could be confirmed almost entirely from patient perspective.
authors.affiliation: Swiss Paraplegic Research (SPF), Nottwil, Switzerland.
authors.forename: Andrea
authors.initials: A
authors.lastname: Glässel
authors.forename: Michaela
authors.initials: M
authors.lastname: Coenen
authors.forename: Barbara
authors.initials: B
authors.lastname: Kollerits
authors.forename: Alarcos
authors.initials: A
authors.lastname: Cieza
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D004185:Disability Evaluation; D006233:Persons with Disabilities / Q000534:rehabilitation; D005260:Female; D017144:Focus Groups; D006304:Health Status; D006801:Humans; D038801:International Classification of Diseases / Q000592:standards; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D010361:Patients / Q000523:psychology*; D036301:Qualitative Research; D020521:Stroke / Q000145:classification* / Q000175:diagnosis / Q000523:psychology; D000071939:Stroke Rehabilitation; D014944:World Health Organization