title: Dying well with dementia: qualitative examination of end-of-life care.
abstract: BACKGROUND
  People with dementia often die badly, receiving end-of-life care of poorer quality than that given to those who are cognitively intact.
  
  
  OBJECTIVE
  To define good end-of-life care for people with dementia and identify how it can be delivered across care settings in the UK.
  
  
  METHODS
  In-depth interviews were conducted with 27 bereaved family carers and 23 care professionals recruited from the community, care homes, general hospitals and continuing care units. Data were analysed using the constant comparison method.
  
  
  RESULTS
  The data highlighted the challenge and imperative of 'dementia-proofing' end-of-life care for people with dementia. This requires using dementia expertise to meet physical care needs, going beyond task-focused care and prioritising planning and communication with families.
  
  
  CONCLUSIONS
  The quality of end-of-life care exists on a continuum across care settings. Together, the data reveal key elements of good end-of-life care and that staff education, supervision and specialist input can enable its provision.
authors.affiliation: Section of Mental Health and Ageing, Health Service and Population Research Department, Institute of Psychiatry, King's College London UK.
authors.forename: Vanessa
authors.initials: V
authors.lastname: Lawrence
authors.forename: Kritika
authors.initials: K
authors.lastname: Samsi
authors.forename: Joanna
authors.initials: J
authors.lastname: Murray
authors.forename: Danielle
authors.initials: D
authors.lastname: Harari
authors.forename: Sube
authors.initials: S
authors.lastname: Banerjee
mesh_terms: D001291:Attitude of Health Personnel; D001293:Attitude to Death; D017028:Caregivers / Q000523:psychology*; D003704:Dementia / Q000451:nursing*; D005260:Female; D006301:Health Services Needs and Demand; D006801:Humans; D008134:Long-Term Care / Q000592:standards; D008297:Male; D010146:Pain / Q000517:prevention & control; D010166:Palliative Care / Q000458:organization & administration / Q000592:standards; D036301:Qualitative Research; D011787:Quality of Health Care; D013222:State Medicine; D013727:Terminal Care / Q000458:organization & administration / Q000592:standards*; D006113:United Kingdom