title: Ethical and legal aspects of management for disorders of sex development.
abstract: Intense controversy surrounds the management of disorders of sex development, particularly in relation to the validity of parental consent for genital surgery and the removal of gonadal tissue carried out during infancy or childhood. Past practices have been heavily criticised on ethical grounds by patient advocacy organisations, who have demanded a moratorium on these kinds of operations unless authorised by a court. Some doctors and hospital administrators have been influenced by the controversy and have referred cases to the Family Court of Australia, where a series of judgements have now established legal precedents that apply across Australia, restricting the circumstances in which parents can give consent for surgery. An alternative approach is to use a hospital-based Clinical Ethics Response Group and, if necessary, Clinical Ethics Committee, which has lay and legal representatives as well as health professionals, as a semi-independent committee of review. Finding a solution that protects the human rights and best interests of children is an ongoing challenge.
authors.affiliation: Department of Endocrinology and Diabetes, Royal Children's Hospital Melbourne, Melbourne, Victoria, Australia. garry.warne@rch.org.au
authors.forename: Garry L
authors.initials: GL
authors.lastname: Warne
authors.forename: Annabelle
authors.initials: A
authors.lastname: Mann
mesh_terms: D000367:Age Factors; D001315:Australia; D012734:Disorders of Sex Development / Q000601:surgery*; D005783:Gender Identity; D006806:Human Rights / Q000331:legislation & jurisprudence*; D006801:Humans; D007223:Infant; D033282:Parental Consent / Q000941:ethics* / Q000331:legislation & jurisprudence*; D010344:Patient Advocacy / Q000941:ethics / Q000331:legislation & jurisprudence; D013519:Urogenital Surgical Procedures / Q000941:ethics*