title: Psychosocial care for adolescent and young adult hematopoietic cell transplant patients.
abstract: Psychological issues following hematopoietic cell transplantation (HCT) are unfortunately common. Literature specific to the transplant experience for the needs of adolescents and young adults (AYA) is lacking. The purpose of this article is to (1) describe the allogeneic transplant experience for AYA transplant patients during the first year following transplantation including demographic and treatment characteristics, (2) present AYA data obtained during and following a six-part posttransplant discharge study, (3) illustrate typical AYA experiences using case studies, and (4) propose AYA intervention strategies within Erickson's stages of psychosocial development. A quality of life model provided the research conceptual framework, and the content analysis framework for the qualitative research. Themes that emerged within each domain were the following: sexuality/fertility, fatigue, depression/poor coping/habits,adherence issues, use of technology, dependency issues, changes in roles/relationships, issues with school/education, financial issues, family problems/issues, miscellaneous, religion/spirituality, fear of future, uncertainty, life, death, more life appreciation. These data guide us for providing targeted interventions for the needs of this AYA population. This paper has presented literature and developmental theory, qualitative and qualitative data from an intervention study, and clinical cases in order to propose a developmental treatment model for AYA transplant patients. A coordinated and multidisciplinary approach is needed for the HCT patient who is an AYA.
authors.affiliation: Division of Nursing Research and Education, City of Hope, 1500 East Duarte Road, Duarte, CA 91010, USA. lcooke@coh.org
authors.forename: Liz
authors.initials: L
authors.lastname: Cooke
authors.forename: Carol
authors.initials: C
authors.lastname: Chung
authors.forename: Marcia
authors.initials: M
authors.lastname: Grant
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D005260:Female; D006086:Graft vs Host Disease / Q000523:psychology; D019337:Hematologic Neoplasms / Q000523:psychology / Q000534:rehabilitation / Q000601:surgery; D018380:Hematopoietic Stem Cell Transplantation / Q000523:psychology*; D006801:Humans; D008297:Male; D020380:Needs Assessment; D010349:Patient Compliance / Q000523:psychology; D010353:Patient Education as Topic; D011788:Quality of Life; D012917:Social Adjustment; D016896:Treatment Outcome; D055815:Young Adult