title: Transfer of disability care of leprosy to the affected persons and the community members.
abstract: Bargarh district in the western Orissa had high leprosy burden and LEPRA India supported in control activities. Its main focus was on POD care with community participation. After motivation and capacity building, it transferred the responsibility of POD care to affected persons, family, community partners and GHS staff in 2006. The effectiveness of this approach was evaluated in 2009. With personal contact responses from 112 (17%) persons with disability and 18 stakeholders were obtained. Result shows 98% affected persons are staying with family; 92% are practicing self-care; 92% felt self-care is beneficial; 57% and 36% are using commercial and MCR footwear respectively. Surgical correction of deformity is maintained in 80% of cases. Difficulty in activity and in community participation was experienced in about one third of affected persons the latter is mostly due to self stigma. The facilitators were happy with their beneficiaries.
authors.affiliation: Regional Office, LEPRA India, Bhubaneswar-751015, Orissa, India. porichha@leprahealthinaction.in
authors.forename: D
authors.initials: D
authors.lastname: Porichha
authors.forename: V N
authors.initials: VN
authors.lastname: Rao
authors.forename: P
authors.initials: P
authors.lastname: Samal
authors.forename: A K
authors.initials: AK
authors.lastname: Rao
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D002648:Child; D003256:Community Participation; D006233:Persons with Disabilities / Q000534:rehabilitation*; D005260:Female; D006801:Humans; D007194:India; D007407:Interviews as Topic; D007918:Leprosy / Q000534:rehabilitation*; D008297:Male; D008875:Middle Aged; D015397:Program Evaluation; D012648:Self Care; D012944:Social Support; D012959:Socioeconomic Factors; D011795:Surveys and Questionnaires; D055815:Young Adult