title: Is autonomy related to the quality of performance of everyday activities in children with spina bifida?
abstract: OBJECTIVE
  To investigate the relationship between the level of autonomy and the quality of performance of everyday activities in a population-based cohort of children with spina bifida and to study the agreement between the children's and the parents' ratings of autonomy.
  
  
  METHODS
  50 dyads of children (aged 6-14) with spina bifida and their parents rated the children's level of autonomy with an adapted, Swedish version of the Autonomy Scale from the Arc's Self-Determination Scale. Each child's quality of performance of everyday activities was assessed with the Assessment of Motor and Process Skills (AMPS).
  
  
  RESULTS
  The autonomy levels of the children with spina bifida were rated to be lowest in daily routines and highest in leisure activities. Binary logistic regression analyses revealed that age, motor skills and process skills were all significantly related to the autonomy level, but that process skills appeared to predominate in this respect. Concerning the perception of the autonomy level, little agreement was found between each child and his/her parent.
  
  
  CONCLUSIONS
  It is important to understand and support the development of process skills as expressed in task performance in children with spina bifida and to pay attention to both the parent's and the child's opinion when setting goals and plans for interventions.
authors: Institute of Neuroscience and Physiology at the Sahlgrenska Academy, University of Gothenburg, Sweden. marie.peny-dahlstrand@neuro.gu.se
authors: Marie
authors: M
authors: Peny-Dahlstrand
authors: Lena
authors: L
authors: Krumlinde-Sundholm
authors: Gunilla
authors: G
authors: Gosman-Hedström
mesh_terms: D000203:Activities of Daily Living; D000293:Adolescent; D000328:Adult; D000367:Age Factors; D002648:Child; D015331:Cohort Studies; D005260:Female; D006801:Humans; D016015:Logistic Models; D008297:Male; D009048:Motor Skills; D010290:Parents / Q000523:psychology; D010465:Perception; D026684:Personal Autonomy; D011159:Population Surveillance; D012044:Regression Analysis; D012649:Self Concept; D016135:Spinal Dysraphism / Q000503:physiopathology* / Q000523:psychology; D011795:Surveys and Questionnaires; D013548:Sweden; D013647:Task Performance and Analysis