title: Use of the international classification of functioning, disability and health to describe patient-reported disability: a comparison of motor neurone disease, Guillain-Barré syndrome and multiple sclerosis in an Australian cohort.
abstract: OBJECTIVE
  To compare patient-reported disability across three long-term neurological conditions [motor neurone disease (MND), Guillain-Barré syndrome (GBS) and multiple sclerosis (MS)] using the International Classification of Functioning, Disability and Health (ICF).
  
  
  METHODS
  A prospective cross-sectional survey of Australian community-based persons with MND (n = 44). Their MND-related problems were linked with ICF categories (second level) using open-ended questionnaires and 'linkage rules' and compared to similar data collected for GBS (n = 77) and MS (n = 101) participants.
  
  
  RESULTS
  MND participants were older (mean age 61 years, GBS 55, MS 49) with more males (66%, GBS 59%, MS 29%). Seventy ICF categories in MND were identified (GBS 41, MS 63): "body function" 15 (GBS 7; MS 18); "body structure" 5 (GBS 3, MS 5); "activities and participation" 40 (GBS 25, MS 30); "environmental factors" 10 (GBS 6, MS 10). The main areas linked in "activities and participation" were mobility, self care, general tasks and demands, domestic life, interpersonal interactions and relationships, major life areas and community, social and civic life; environmental factors included products and technology, natural environment, support and relationships, services, systems and policies.
  
  
  CONCLUSIONS
  Comparison of three long-term neurological conditions will assist with development of a core set of categories to optimise consensus of care and communication amongst treating clinicians.
authors: Department of Rehabilitation Medicine, Royal Melbourne Hospital, Parkville, Australia. louisa.ng@mh.org.au
authors: Louisa
authors: L
authors: Ng
authors: Fary
authors: F
authors: Khan
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D000369:Aged, 80 and over; D001315:Australia; D003430:Cross-Sectional Studies; D004185:Disability Evaluation; D006233:Persons with Disabilities / Q000145:classification*; D005260:Female; D020275:Guillain-Barre Syndrome / Q000145:classification* / Q000175:diagnosis / Q000503:physiopathology / Q000523:psychology; D006801:Humans; D038801:International Classification of Diseases; D007407:Interviews as Topic; D008297:Male; D008875:Middle Aged; D016472:Motor Neuron Disease / Q000145:classification* / Q000175:diagnosis / Q000503:physiopathology / Q000523:psychology; D009103:Multiple Sclerosis / Q000145:classification* / Q000175:diagnosis / Q000503:physiopathology / Q000523:psychology; D017063:Outcome Assessment, Health Care; D011446:Prospective Studies; D012649:Self Concept; D017678:Sex Distribution; D011795:Surveys and Questionnaires