title: National Cancer Information Service in Italy:  an information points network as a new model for providing information for cancer patients.
abstract: The international literature data report that good information and communication are fundamental components of a therapeutic process. They contribute to improve the patient-health care professional relationship, to facilitate doctor-patient relationships, therapeutic compliance and adherence, and to the informed consent in innovative clinical trials. We report the results of a multicentric national initiative that developed a 17-information-structure network: 16 Information Points located in the major state-funded certified cancer centers and general hospitals across Italy and a national Help-line at the nonprofit organization AIMaC (the Italian oncologic patients, families and friends association), and updated the already existing services with the aim to create the National Cancer Information Service (SION). The project is the result of a series of pilot and research projects funded by the Italian Ministry of Health. The Information Service model proposed is based on some fundamental elements: 1) human interaction with experienced operators, adequately trained in communication and information, complemented with 2) virtual interaction (Help line, Internet, blog, forum and social network); 3) informative material adequate for both scientific accuracy and communicative style; 4) adequate locations for appropriate positioning and privacy (adequate visibility); 5) appropriate advertising. First results coming from these initiatives contributed to introduce issues related to "Communication and Information to patients" as a "Public Health Instrument" to the National Cancer Plan approved by the Ministry of Health for the years 2010-2012.
authors: Biblioteca Scientifica e per i Pazienti, Centro di Riferimento Oncologico IRCCS, Aviano, Italy.
authors: Ivana
authors: I
authors: Truccolo
authors: Rosaria
authors: R
authors: Bufalino
authors: Maria Antonietta
authors: MA
authors: Annunziata
authors: Anita
authors: A
authors: Caruso
authors: Anna
authors: A
authors: Costantini
authors: Gaetana
authors: G
authors: Cognetti
authors: Antonio
authors: A
authors: Florita
authors: Dina
authors: D
authors: Pero
authors: Patrizia
authors: P
authors: Pugliese
authors: Roberta
authors: R
authors: Tancredi
authors: Francesco
authors: F
authors: De Lorenzo
mesh_terms: D002173:Cancer Care Facilities / Q000592:standards; D003142:Communication; D006282:Health Personnel; D006801:Humans; D033181:Information Dissemination; D007255:Information Services; D007558:Italy; D017146:Models, Organizational; D009369:Neoplasms