title: Experiences with advance care planning: older people and family members' perspective.
abstract: OBJECTIVE
  The aim of this study is to report the findings of a case study that explored the phenomenon of advance care planning and advanced care directives in residential care settings in Australia. In particular, this study focuses on the experiences of residents' and family members'.
  
  
  BACKGROUND
  Understanding the phenomenon of advance care planning and advanced care directives is vital to end of life decision making. There are few studies that report the experiences of older people and family members in relation to advance care planning and advanced care directives.
  
  
  METHODS
  A case-study research was conducted and data was collected over 7 months involving participant observation, field notes, semi-structured interviews and document analysis.
  
  
  RESULTS
  The participants' early experiences with advance care planning were expressed in unpleasant, hostile and negative ways. However, those emotions and concerns were transformed to more stable, amenable and positive attitudes and feelings as issues were resolved. The factors that enhanced or inhibited the transition were described.
  
  
  CONCLUSIONS
  Older people and families view the end of life with broader psychosocial and spiritual meanings shaped by a lifetime of experiences. Advance care planning led to a different level of appreciation of personal entity and transcendence. However, advance care planning demands concerted action and support by everyone involved.
authors: School of Nursing & Midwifery, University of Newcastle, Ourimbah, NSW, Australia. Sarah.Jeong@newcastle.edu.au
authors: Sarah Yeun-Sim
authors: SY
authors: Jeong
authors: Isabel
authors: I
authors: Higgins
authors: Margaret
authors: M
authors: tMcMillan
mesh_terms: D000328:Adult; D016223:Advance Directives / Q000523:psychology*; D000368:Aged; D000375:Aging / Q000523:psychology*; D001294:Attitude to Health; D001315:Australia; D005190:Family / Q000523:psychology*; D005260:Female; D005851:Geriatric Nursing / Q000379:methods*; D006791:Hostility; D006801:Humans; D008297:Male; D008875:Middle Aged; D009103:Multiple Sclerosis / Q000451:nursing / Q000523:psychology; D009723:Nurse-Patient Relations; D015404:Nursing Methodology Research; D009740:Nursing Staff / Q000458:organization & administration / Q000523:psychology*; D019982:Organizational Case Studies; D012112:Residential Facilities / Q000458:organization & administration*; D012944:Social Support; D013727:Terminal Care / Q000458:organization & administration / Q000523:psychology