title: American Indian/Alaska Native willingness to provide biological samples for research purposes.
abstract: This article examines the willingness of American Indian/Alaska Natives (AI/AN) to provide biological samples for research purposes. Prior cases of abuse and misuse of individuals, materials, and data highlight ethical research concerns. Investigators may be hesitant to engage AI/ANs in research projects. We conducted a survey of AI/ANs in the central plains region of the US over 1 year. This convenience sample completed a series of questions on biological samples and research. Survey results (N=998) indicate that 70.15% of AI/ANs would be willing to provide saliva/spit for a specific study with the proper consent and control of samples. In conclusion, researchers should find ways to work with and for AI/ANs, assuring participant input in the research process.
authors: Department of Preventive Medicine and Public Health, University of Kansas Medical Center, Kansas City, KS 66160, USA. mfilippi@kumc.edu
authors: Melissa K
authors: MK
authors: Filippi
authors: Kristin L
authors: KL
authors: Young
authors: Niaman
authors: N
authors: Nazir
authors: Chandler
authors: C
authors: Williams
authors: Travis
authors: T
authors: Brown
authors: Won S
authors: WS
authors: Choi
authors: K A
authors: KA
authors: Greiner
authors: Christine M
authors: CM
authors: Daley
mesh_terms: D000413:Alaska / Q000208:ethnology; D035843:Biomedical Research; D001769:Blood; D005260:Female; D006801:Humans; D007198:Indians, North American / Q000523:psychology*; D007615:Kansas; D008297:Male; D012463:Saliva; D014019:Tissue Donors / Q000523:psychology* / Q000706:statistics & numerical data