title: How confident are young adult cancer survivors in managing their survivorship care? A report from the LIVESTRONG™ Survivorship Center of Excellence Network.
abstract: BACKGROUND
  This study examined the association between sociodemographic, cancer treatment, and care delivery factors on young adult cancer survivors' confidence in managing their survivorship care.
  
  
  METHODS
  Survivors aged 18-39 years (n = 376) recruited from the LIVESTRONG™ Survivorship Center of Excellence Network sites completed a survey assessing self-reported receipt of survivorship care planning, expectations of their providers, and confidence in managing their survivorship care. Multivariate logistic regression identified characteristics of those reporting low confidence in managing their survivorship care.
  
  
  RESULTS
  Mean age was 28 years; mean interval from diagnosis was 9 ± 8 years. Seventy-one percent reported currently attending an oncology survivorship clinic. Regarding survivorship care planning, 33% did not have copies of their cancer-related medical records, 48% did not have a treatment summary, and 55% had not received a survivorship care plan. Seventy percent identified the oncologist as the most important health care provider for decisions regarding test and treatment decisions while 10% reported using a "shared-care model" involving both primary care providers and oncologists. Forty-one percent were classified as having low confidence in managing survivorship care. In multivariate analysis, low confidence was associated with non-white ethnicity and lack of a survivorship care plan (both p < 0.05).
  
  
  CONCLUSIONS
  Findings suggest that provision of survivorship care plans for young adult cancer survivors can be used to improve confidence in managing survivorship care, particularly for ethnic minorities.
  
  
  CONCLUSIONS
  Survivors should consider advocating for receipt of a survivorship care plan as it may facilitate confidence as a consumer of survivorship care.
authors: Department of Pediatrics, Division of Hematology/Oncology, David Geffen School of Medicine at University of California, Los Angeles (UCLA), Los Angeles, CA 90095, USA. jcasillas@mednet.ucla.edu
authors: Jacqueline
authors: J
authors: Casillas
authors: Karen L
authors: KL
authors: Syrjala
authors: Patricia A
authors: PA
authors: Ganz
authors: Emy
authors: E
authors: Hammond
authors: Alfred C
authors: AC
authors: Marcus
authors: Kerry M
authors: KM
authors: Moss
authors: Catherine M
authors: CM
authors: Crespi
authors: Peiyun
authors: P
authors: Lu
authors: Mary S
authors: MS
authors: McCabe
authors: Jennifer S
authors: JS
authors: Ford
authors: Linda A
authors: LA
authors: Jacobs
authors: Donna
authors: D
authors: Pucci
authors: Steven C
authors: SC
authors: Palmer
authors: Amanda M
authors: AM
authors: Termuhlen
authors: Lisa
authors: L
authors: Diller
authors: Marci
authors: M
authors: Campbell
authors: Barbara
authors: B
authors: Jones
authors: Debra L
authors: DL
authors: Friedman
mesh_terms: D000293:Adolescent; D000328:Adult; D003695:Delivery of Health Care; D005260:Female; D006801:Humans; D008297:Male; D015969:National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division; D054547:National Cancer Institute (U.S.); D009369:Neoplasms / Q000401:mortality* / Q000523:psychology* / Q000628:therapy; D010347:Patient Care Planning; D012959:Socioeconomic Factors; D015996:Survival Rate; D017741:Survivors; D014481:United States; D055815:Young Adult