title: Comprehensive handbook for developing a bladder cancer cystectomy database.
abstract: OBJECTIVE
  In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection.
  
  
  METHODS
  Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group.
  
  
  RESULTS
  Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements.
  
  
  CONCLUSIONS
  Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.
authors: The University of Texas Southwestern Medical Center, Dallas, TX 75390, USA. Yair.Lotan@UTSouthwestern.edu
authors: Yair
authors: Y
authors: Lotan
authors: Gilad
authors: G
authors: Amiel
authors: Stephen A
authors: SA
authors: Boorjian
authors: Peter E
authors: PE
authors: Clark
authors: Michael
authors: M
authors: Droller
authors: Jeffrey R
authors: JR
authors: Gingrich
authors: Thomas J
authors: TJ
authors: Guzzo
authors: Brant A
authors: BA
authors: Inman
authors: Ashish M
authors: AM
authors: Kamat
authors: Larry
authors: L
authors: Karsh
authors: Matthew E
authors: ME
authors: Nielsen
authors: Norm D
authors: ND
authors: Smith
authors: Shahrokh F
authors: SF
authors: Shariat
authors: Robert S
authors: RS
authors: Svatek
authors: Jennifer M
authors: JM
authors: Taylor
mesh_terms: D015897:Comorbidity; D015653:Cystectomy / Q000379:methods* / Q000592:standards; D003625:Data Collection / Q000379:methods*; D016208:Databases, Factual; D003952:Diagnostic Imaging; D006801:Humans; D008495:Medical Oncology / Q000379:methods* / Q000592:standards; D009367:Neoplasm Staging; D011788:Quality of Life; D016896:Treatment Outcome; D001749:Urinary Bladder Neoplasms / Q000601:surgery*; D014572:Urology / Q000379:methods* / Q000592:standards