title: Pediatric research and the return of individual research results.
abstract: The return of individual research results to participants raises many socio-ethical issues and is even more challenging when the participant is a child. The objective of this article is to present an overview of the few ethical guidelines and relevant literature addressing the return of individual results in pediatric research. By reviewing policies and the literature, we present some overarching considerations and delineate contextual issues in order to propose a framework.
authors.affiliation: Centre of Genomics and Policy at McGill University, Canada.
authors.forename: Denise
authors.initials: D
authors.lastname: Avard
authors.forename: Karine
authors.initials: K
authors.lastname: Sénécal
authors.forename: Parvaz
authors.initials: P
authors.lastname: Madadi
authors.forename: Daniel
authors.initials: D
authors.lastname: Sinnett
mesh_terms: D018070:Biological Specimen Banks; D002648:Child; D002651:Child Advocacy; D030881:Disclosure / Q000941:ethics*; D036281:Genetic Research / Q000941:ethics*; D006801:Humans; D057828:Informed Consent By Minors; D026684:Personal Autonomy