title: The compassion of concealment: silence between older caregivers and dying patients in the AIDS era, northwest Tanzania.
abstract: In northwest Tanzania, where AIDS has been present for 25 years, AIDS-related illness is a trigger through which community members discuss personal experiences of loss and assess social relationships. The terminal phase of AIDS demands intimate social relations between patients and caretakers. In this final phase of illness, caretakers are scrutinised for their behaviour towards the patient. In the moral world in which caregiving takes place, the act of concealing is considered an intrinsic part of proper care. Current debates on morality, stigma and secrecy inform my argument that acts of concealment around dying are not so much related to the exclusion and ostracism of patients but to inclusion and compassionate care.
authors.affiliation: Department of Social Anthropology, University of Amsterdam, Amsterdam, The Netherlands. j.deklerk@uva.nl
authors.forename: Josien
authors.initials: J
authors.lastname: de Klerk
mesh_terms: D000368:Aged; D001294:Attitude to Health; D017028:Caregivers / Q000523:psychology*; D017281:Cost of Illness; D008192:Deception; D004645:Empathy; D005239:Fear; D005260:Female; D015658:HIV Infections / Q000451:nursing / Q000523:psychology*; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D008875:Middle Aged; D012934:Social Isolation; D057545:Social Stigma; D013240:Stereotyping; D013636:Tanzania; D055815:Young Adult