title: The diagnosis and management of von Willebrand disease in Canada.
abstract: In Canada, care for individuals with inherited bleeding disorders, including Von Willebrand disease, is provided by 26 tertiary care multidisciplinary Inherited Bleeding Disorders clinics geographically spread across the country. The Association of Hemophilia Clinic Directors of Canada, the Canadian Association of Nurses in Hemophilia Care, the Canadian Physiotherapists in Hemophilia Care, the Canadian Social Workers in Hemophilia Care, and the Canadian Hemophilia Society all collaborate to provide optimal management for patients with inherited bleeding disorders. The standards of care for these patients were explicitly laid out in a 2007 document published by the Canadian Hemophilia Standards Group (with representation from all of the groups just mentioned) entitled Canadian Comprehensive Care Standards for Hemophilia and Other Inherited Bleeding Disorders. Separate Canadian guidelines for the management of patients with Hemophilia and Von Willebrand disease also exist, focused on diagnosis, comprehensive care, assessment, and treatment.
authors.affiliation: Department of Medicine, Queen's University, Kingston, Ontario, Canada. jamesp@queensu.ca
authors.forename: Paula D
authors.initials: PD
authors.lastname: James
authors.forename: David P
authors.initials: DP
authors.lastname: Lillicrap
mesh_terms: D002170:Canada; D003191:Comprehensive Health Care / Q000379:methods / Q000458:organization & administration* / Q000592:standards; D003894:Deamino Arginine Vasopressin / Q000627:therapeutic use; D005169:Factor VIII / Q000627:therapeutic use; D005820:Genetic Testing; D006474:Hemorrhagic Disorders / Q000175:diagnosis / Q000188:drug therapy / Q000235:genetics; D006490:Hemostatics / Q000627:therapeutic use; D006801:Humans; D017410:Practice Guidelines as Topic; D014842:von Willebrand Diseases / Q000175:diagnosis* / Q000188:drug therapy* / Q000235:genetics; D014841:von Willebrand Factor / Q000627:therapeutic use
chemical_list: D006490:Hemostatics; D014841:von Willebrand Factor; D005169:Factor VIII; D003894:Deamino Arginine Vasopressin