title: Biobanks and the return of research results: out with the old and in with the new?
abstract: This article examines the complex and contemporary issue of the return of research results in biobanks. After suggesting the exclusion of some adjacent issues usually flanking the debate, this article reviews the current practices of biobanks on the disclosure of research results to participants. It then focuses more specifically on the debate in the literature before turning to a review of the typology of recent reforms being put forward.
authors.affiliation: Centre of Genomics and Policy at McGill University, Canada.
authors.forename: Ma'n H
authors.initials: MH
authors.lastname: Zawati
authors.forename: Amélie
authors.initials: A
authors.lastname: Rioux
mesh_terms: D018070:Biological Specimen Banks; D035843:Biomedical Research; D030881:Disclosure / Q000941:ethics*; D036281:Genetic Research; D005820:Genetic Testing; D017408:Guidelines as Topic; D006801:Humans; D033181:Information Dissemination; D035842:Research Subjects