title: The views of relatives of young people with psychosis on how to design a Relatives Education And Coping Toolkit (REACT).
abstract: BACKGROUND
  Relatives of people with psychosis experience high levels of distress. Interventions are needed which can reduce distress and are widely available.
  
  
  OBJECTIVE
  This study presents the views of relatives on how to design a supported self-management intervention for relatives.
  
  
  METHODS
  Four focus groups were carried out and relatives were asked for their views on the content, format, support required, likely barriers and potential impact on the outcome of a self-management toolkit.
  
  
  RESULTS
  Relatives were generally very positive about the development of a toolkit. Relatives had clear ideas about the design, emphasising particularly that it needs to be comprehensive, modular, supported and able to translate general information into the specific detail they require for their family member. Many of the ideas informed the development of Relatives Education And Coping Toolkit. Some suggestions, such as multiple modes of delivery, earlier access to the toolkit in primary care and peer support from other relatives, were not possible in this study but should be considered for future development.
  
  
  CONCLUSIONS
  Relatives supported the development of a supported self-management toolkit intervention. They also emphasised the importance of offering such interventions alongside other valued aspects of services including face-to-face contact with clinicians, peer support from other relatives and crisis support.
authors: Spectrum Centre for Mental Health Research, School of Health and Medicine, Lancaster University, UK. f.lobban@lancaster.ac.uk
authors: Fiona
authors: F
authors: Lobban
authors: Dave
authors: D
authors: Glentworth
authors: Gillian
authors: G
authors: Haddock
authors: Laura
authors: L
authors: Wainwright
authors: Anna
authors: A
authors: Clancy
authors: Ros
authors: R
authors: Bentley
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D005190:Family / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006266:Health Education / Q000379:methods*; D006297:Health Services Accessibility; D006801:Humans; D008297:Male; D008605:Mental Health Services; D008875:Middle Aged; D011618:Psychotic Disorders / Q000523:psychology / Q000628:therapy*; D012648:Self Care; D013315:Stress, Psychological / Q000209:etiology / Q000517:prevention & control; D055815:Young Adult