title: Patient reported late effects of gynecological cancer treatment.
abstract: OBJECTIVE
  There are a large number of gynecological cancer survivors in the United States living with long term sequelae of their treatment. Patient reported outcomes are essential in capturing patients' experiences in order to address survivorship issues; however, patient reported toxicities are not often collected or reported.
  
  
  METHODS
  A web-based survivorship care plan tool was used to collect patient reported toxicity data for 390 women who had undergone treatment for gynecological cancer. Demographic, diagnosis, treatment modality and toxicity data were reviewed.
  
  
  RESULTS
  Median age of diagnosis was 49 years, and 88% (n=334) of the women were Caucasian and had attended at least some college. Only 10% (n=38) had previously been offered a survivorship care plan or survivorship information. Almost half of the patients had ovarian cancer (46%, n=180), 23% had cervical cancer (n=92) and 28% had uterine cancer (n=109). Late effects most commonly reported for all gynecological malignancy survivors using this tool were cognitive changes, sexual side effects, changes in bowel patterns, peripheral neuropathy and skin changes.
  
  
  CONCLUSIONS
  Women with gynecological cancers experience a plethora of late effects; however, very few of them have access to a survivorship plan to cope with these issues. Patient reported side effects, especially sexual dysfunction, occur more commonly than previously reported. Patient-focused tools to evaluate these side effects and access to survivorship plans are needed for comprehensive care of gynecologic cancer survivors.
authors: Department of Radiation Oncology, University of Pennsylvania, Philadelphia, PA, USA. surbhi.grover@uphs.upenn.edu
authors: Surbhi
authors: S
authors: Grover
authors: Christine E
authors: CE
authors: Hill-Kayser
authors: Carolyn
authors: C
authors: Vachani
authors: Margaret K
authors: MK
authors: Hampshire
authors: Gloria A
authors: GA
authors: DiLullo
authors: James M
authors: JM
authors: Metz
mesh_terms: D000293:Adolescent; D000328:Adult; D000359:Aftercare / Q000379:methods; D000368:Aged; D000369:Aged, 80 and over; D003131:Combined Modality Therapy / Q000009:adverse effects; D005260:Female; D005833:Genital Neoplasms, Female / Q000150:complications* / Q000523:psychology / Q000628:therapy*; D006801:Humans; D008875:Middle Aged; D011788:Quality of Life; D012923:Social Class; D017741:Survivors; D055815:Young Adult