title: 'It burdens me': the impact of stroke in central Aceh, Indonesia.
abstract: The complex primary and secondary consequences of stroke have often been equated with the concept of biographical disruption, although a number of mediating factors have been identified. However, the research to date is almost exclusively based in western contexts, despite the fact that stroke is increasing most rapidly in low-income and middle-income countries. This research explores the experience of stroke in the rural community of central Aceh, Indonesia. The participants included 11 stroke survivors and 18 carers, with data collected through in-depth interviews and photographic facilitated interviews, supported with participant observation over a nine month period. The participants discussed and illustrated the disruptive result of their stroke, but for most, their ability to maintain religious duties and contribute to their family resulted in a form of biographical continuity. Their strategies and challenges are discussed alongside the implications for care in this context.
authors: School of Health Sciences and Social Care, Brunel University, Uxbridge, UK. meriel.norris@brunel.ac.uk
authors: Meriel
authors: M
authors: Norris
authors: Pascale
authors: P
authors: Allotey
authors: Geraldine
authors: G
authors: Barrett
mesh_terms: D000203:Activities of Daily Living / Q000523:psychology*; D000328:Adult; D000368:Aged; D001680:Biographies as Topic; D017028:Caregivers / Q000523:psychology; D017281:Cost of Illness; D005195:Family Relations; D005260:Female; D006801:Humans; D007214:Indonesia; D007407:Interviews as Topic; D008016:Life Change Events; D008297:Male; D008875:Middle Aged; D051346:Mobility Limitation; D008960:Models, Psychological; D033262:Narration; D036301:Qualitative Research; D011788:Quality of Life; D020127:Recovery of Function; D012069:Religion and Psychology; D012424:Rural Population; D012923:Social Class; D012944:Social Support; D020521:Stroke / Q000523:psychology*; D000071939:Stroke Rehabilitation; D017741:Survivors / Q000523:psychology*