title: Auditory neuropathy spectrum disorder in the wider health context: experiences of parents whose infants have been identified through newborn hearing screening programme.
abstract: OBJECTIVE
  This paper presents an insight into the parental experiences of how parents made sense of having their child identified with auditory neuropathy spectrum disorder (ANSD), given the broader context of their child's other health issues.
  
  
  METHODS
  Qualitative narrative study.
  
  
  METHODS
  Twenty-one families participated whose children had been identified with ANSD through the newborn hearing screening programme.
  
  
  RESULTS
  The majority of parents in the sample were overwhelmed with perinatal health issues and initially gave the diagnosis of ANSD very low priority.
  
  
  CONCLUSIONS
  An understanding of parents' perspective is particularly relevant to everyone involved in early support and management of infants with ANSD.
authors: Audiology & Deafness Research Group, School of Psychological Sciences, Faculty of Medical & Human Sciences, The University of Manchester, Manchester, UK. kai.uus@manchester.ac.uk
authors: Kai
authors: K
authors: Uus
authors: Alys
authors: A
authors: Young
authors: Marianne
authors: M
authors: Day
mesh_terms: D000328:Adult; D002648:Child; D002675:Child, Preschool; D005260:Female; D006313:Hearing Loss, Central / Q000175:diagnosis / Q000523:psychology* / Q000628:therapy; D006320:Hearing Tests / Q000523:psychology; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D008297:Male; D015997:Neonatal Screening / Q000523:psychology; D010290:Parents; D012307:Risk Factors