title: Qualitative analysis of parent experiences with achieving cystic fibrosis nutrition recommendations.
abstract: BACKGROUND
  A combined behavior-nutrition approach is recommended for children with CF with growth deficits. The present study aimed to use a qualitative approach to 1) understand families' experiences using behavior-nutrition intervention strategies and 2) identify the challenges with CF management families experienced during the developmental transition between toddlerhood and early school-age.
  
  
  METHODS
  Eight families (mean age of children=8.2 years) participated in a semistructured interview. Themes were independently identified by three coders, confirmed via consensus, and compared to a reliability coder.
  
  
  RESULTS
  Parents discussed behavior and nutrition strategies, ongoing challenges with nutrition and behavior, new challenges, and protective factors. Challenges included transition to school, transfer of treatment responsibility, picky eating, and parental stress.
  
  
  CONCLUSIONS
  Ongoing assessment and recommendations to address parent stress and child behavior are warranted. Providing families with anticipatory guidance can better prepare families for challenging developmental transitions including starting school and the transfer of treatment responsibility.
authors: Division of Behavioral Medicine and Clinical Psychology, Cincinnati Children's Hospital Medical Center 3333 Burnet Ave, MLC 3015, Cincinnati, OH 45229-3039, USA. stephanie.spear@cchmc.org
authors: Stephanie S
authors: SS
authors: Filigno
authors: Erin E
authors: EE
authors: Brannon
authors: Leigh Ann
authors: LA
authors: Chamberlin
authors: Stephanie M
authors: SM
authors: Sullivan
authors: Kimberly A
authors: KA
authors: Barnett
authors: Scott W
authors: SW
authors: Powers
mesh_terms: D000328:Adult; D002648:Child; D002652:Child Behavior; D003266:Continuity of Patient Care; D003550:Cystic Fibrosis / Q000150:complications / Q000628:therapy*; D005192:Family Health; D005260:Female; D015438:Health Behavior; D006801:Humans; D008297:Male; D009748:Nutrition Disorders / Q000209:etiology; D009751:Nutritional Requirements; D009752:Nutritional Status; D010290:Parents; D010349:Patient Compliance; D013315:Stress, Psychological