title: Patterns of social support among lymphoma patients considering stem cell transplantation.
abstract: There is lack of literature addressing factors that influence the process of care for patients with hematological malignancies. We evaluated the forms of social support available for patients with relapsed lymphoma considering stem cell transplantation and examined the influence of support on treatment delay. Data were collected from 119 patients with relapsed lymphoma using a questionnaire to capture sociodemographic information and emotional, informational, and instrumental forms of social support. Sixty-four percent of the patients were married, 56% had children over 18 years of age, 43% were employed, and 72% had private health insurance. Family members formed a major source of emotional support (83%), while 47% of patients considered personal prayers to be important. While 79% of patients received clinical support from nurses, few received formal group support or formal peer support (6.7% and 1.7% respectively). Support from extended family and peer groups reduced the likelihood of treatment delays. The potential benefits of peer group support should be reinforced for patients considering transplantation given how infrequent this form of social support is utilized and its positive impact on the process of care. Future studies should test the impact of social support on health outcomes especially among the underserved population.
authors.affiliation: Department of Hematology/Oncology and Winship Cancer Institute, Emory University, Atlanta, Georgia 30322, USA.
authors.forename: Roni
authors.initials: R
authors.lastname: Glover
authors.forename: Pareen Jaideep
authors.initials: PJ
authors.lastname: Shenoy
authors.forename: Grishma A
authors.initials: GA
authors.lastname: Kharod
authors.forename: Allison
authors.initials: A
authors.lastname: Schaefer
authors.forename: Kevin
authors.initials: K
authors.lastname: Bumpers
authors.forename: Jamillah T M
authors.initials: JT
authors.lastname: Berry
authors.forename: Christopher R
authors.initials: CR
authors.lastname: Flowers
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D005260:Female; D005845:Georgia; D006689:Hodgkin Disease / Q000517:prevention & control / Q000601:surgery*; D006801:Humans; D008228:Lymphoma, Non-Hodgkin / Q000517:prevention & control / Q000601:surgery*; D008297:Male; D008875:Middle Aged; D010358:Patient Participation; D010361:Patients / Q000523:psychology*; D012008:Recurrence; D012944:Social Support; D033581:Stem Cell Transplantation; D055815:Young Adult