title: Seeing the glass half full: benefits to the lived experiences of female primary caregivers of children with autism.
abstract: OBJECTIVE
  Autism spectrum disorders are the most common developmental disorders, affecting 1 in 165 Canadian children. Although the experiences of the caregivers of children with autism have been examined to some extent, a thorough investigation of the benefits of this experience is warranted.
  
  
  METHODS
  The lived experiences of 8 married female primary caregivers of children with autism were assessed through a phenomenological study involving background questionnaires and one-on-one, semistructured interviews. All recruited participants completed the study.
  
  
  RESULTS
  Benefits were found in all areas of questioning, including financial, social, familial, health, and employment implications, in addition to benefits arising from activities and involvements taken on as a result of raising a child with autism. The findings shed light on an unconventional aspect of the effects of raising a child with autism.
  
  
  CONCLUSIONS
  Costs to these women's experiences were not predominant, and benefits arising from the caregiving role lead to positive accounts of their lived experiences. Results have broader implications for the understanding of the primary caregiver situation and the improvement of interactions with individuals with these lived experiences. In this way, clinical nurse specialists may encourage and contribute to support systems that foster a positive experience for caregivers of children with autism spectrum disorder, the children they care for, and their families.
authors.affiliation: Graduate Department of Rehabilitation Science, University of Toronto, Toronto, ON, Canada M5G1V7. roula.markoulakis@utoronto.ca
authors.forename: Roula
authors.initials: R
authors.lastname: Markoulakis
authors.forename: Paula
authors.initials: P
authors.lastname: Fletcher
authors.forename: Pamela
authors.initials: P
authors.lastname: Bryden
mesh_terms: D000223:Adaptation, Psychological; D000328:Adult; D001321:Autistic Disorder; D002170:Canada; D017028:Caregivers / Q000523:psychology*; D002648:Child; D002675:Child, Preschool; D019988:Children with Disabilities; D005260:Female; D006801:Humans; D007223:Infant; D008016:Life Change Events; D008875:Middle Aged; D009034:Mother-Child Relations; D036301:Qualitative Research