title: Parental experience of childhood cancer using Interpretative Phenomenological Analysis.
abstract: Whilst survival rates for childhood cancer have improved dramatically over the past three decades, it is still a devastating diagnosis for family members and an illness which severely disrupts the lifestyle of the family unit. Developing an understanding of the impact of the illness on the family is crucial to better support families' deal with the demands of the illness. In this study nine families in which a child was diagnosed with cancer were interviewed twice over a 12 month period, approximately 6 months apart. Using Interpretative Phenomenological Analysis, a semi-structured interview was used to explicate parent's experience of childhood cancer. The results revealed five super-ordinate themes; (1) a pivotal moment in time, (2) the experience of adaptation in relation to having a sick child, (3) the nature of support, (4) re-evaluation of values during a critical life experience and (5) the experience of optimism and altruism. Findings indicate that parents express both negative and positive experiences as they re-evaluate the meaning and purpose of life, seek to redefine themselves, often in terms of priorities, relationships, sense of community and achieve degrees of optimism and altruism. Implications for addressing the needs of parents and for further research are discussed.
authors.affiliation: Institute of Health & Biomedical Innovation and School of Psychology & Counselling, Queensland University of Technology, Queensland, Australia. r.schweitzer@qut.edu.au
authors.forename: Robert
authors.initials: R
authors.lastname: Schweitzer
authors.forename: Maya
authors.initials: M
authors.lastname: Griffiths
authors.forename: Patsy
authors.initials: P
authors.lastname: Yates
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D002648:Child; D004651:Employment; D005190:Family; D005260:Female; D006801:Humans; D007407:Interviews as Topic; D008016:Life Change Events; D008297:Male; D008875:Middle Aged; D009369:Neoplasms / Q000175:diagnosis / Q000523:psychology*; D009786:Occupational Health Services / Q000706:statistics & numerical data; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D010332:Paternal Behavior / Q000523:psychology*; D036301:Qualitative Research; D012944:Social Support