title: A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia.
abstract: The Canadian Physiotherapists in Hemophilia Care (CPHC) sought to learn about attitudes and behaviours of young male adults with mild haemophilia towards their condition and care. Semi-structured in-person or telephone interviews were conducted with 18 young men from and across Canada. This report summarizes the participants' attitudes towards their haemophilia, previous injuries, perceived barriers to seeking treatment, as well as their decision-making process when self-assessing injury. The interviews demonstrated that communication between the young adults and the health care team was not optimal, with common reference to the ineffectiveness of lecture style education. Gaps in knowledge also emerged regarding bleed identification and management.
authors.affiliation: Saskatchewan Bleeding Disorders Program, Royal University Hospital, Saskatoon, Canada. joann.nilson@saskatoonhealthregion.ca
authors.forename: J
authors.initials: J
authors.lastname: Nilson
authors.forename: C
authors.initials: C
authors.lastname: Schachter
authors.forename: K
authors.initials: K
authors.lastname: Mulder
authors.forename: M
authors.initials: M
authors.lastname: Hahn
authors.forename: M
authors.initials: M
authors.lastname: Steele
authors.forename: P
authors.initials: P
authors.lastname: Hilliard
authors.forename: C
authors.initials: C
authors.lastname: Jarock
mesh_terms: D000293:Adolescent; D000328:Adult; D002170:Canada; D003142:Communication; D003657:Decision Making; D007722:Health Knowledge, Attitudes, Practice; D006297:Health Services Accessibility; D006467:Hemophilia A / Q000523:psychology*; D002836:Hemophilia B / Q000523:psychology*; D006801:Humans; D008297:Male; D010353:Patient Education as Topic / Q000592:standards; D017060:Patient Satisfaction; D011369:Professional-Patient Relations; D036301:Qualitative Research; D011795:Surveys and Questionnaires; D055815:Young Adult