title: Proceduralisation, choice and parental reflections on decisions to accept newborn bloodspot screening.
abstract: Newborn screening is the programme through which newborn babies are screened for a variety of conditions shortly after birth. Programmes such as this are individually oriented but resemble traditional public health programmes because they are targeted at large groups of the population and they are offered as preventive interventions to a population considered healthy. As such, an ethical tension exists between the goals of promoting the high uptake of supposedly 'effective' population-oriented programmes and the goal of promoting genuinely informed decision-making. There is, however, a lack of understanding with regard to how parents experience the tension between promoting uptake and facilitating informed choice. This paper addresses this issue, and data are presented to show how aspects of the timing, presentation of information and procedural routinisation of newborn screening serves to impact on the decisions made by parents.
authors.affiliation: Department of Epidemiology and Community Medicine, University of Ottawa, Ottawa, K1H 8M5, Canada. snicholl@uottawa.ca
authors.forename: Stuart G
authors.initials: SG
authors.lastname: Nicholls
mesh_terms: D002170:Canada; D002755:Choice Behavior; D003657:Decision Making; D005060:Europe; D006801:Humans; D007231:Infant, Newborn; D033181:Information Dissemination / Q000379:methods; D007258:Informed Consent; D033262:Narration; D015997:Neonatal Screening; D010290:Parents; D010342:Patient Acceptance of Health Care; D026684:Personal Autonomy; D012938:Social Perception; D013997:Time Factors; D006113:United Kingdom; D014481:United States