title: Family management of a chronic health condition: perspectives of adolescents.
abstract: A growing number of adolescents and their families are dealing with a chronic health condition that impacts their daily life. Research using the Family Management Style Framework (FMSF) has added much to our understanding of how the family integrates chronic condition management into family life. Less clear, however, is the adolescent perspective of the FMSF components. The purpose of this secondary qualitative analysis was to explore 25 interviews of adolescents with spina bifida to uncover the adolescent's perspective of the three major FMSF components: Definition of the Situation, Management Behaviors, and Perceived Consequences. Adolescents were able to articulate their perspectives and their observations of their parents' behaviors that related to the three components and related dimensions of the framework. Data from this analysis led to proposed expansion of the FMSF definitions from an adolescent perspective. Implications for integrating the adolescent perspective into future research and clinical practice are discussed.
authors.affiliation: MSOE School of Nursing, Milwaukee, WI 53202, USA. wollenha@msoe.edu
authors.forename: Josanne
authors.initials: J
authors.lastname: Wollenhaupt
authors.forename: Beth
authors.initials: B
authors.lastname: Rodgers
authors.forename: Kathleen J
authors.initials: KJ
authors.lastname: Sawin
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D002648:Child; D002908:Chronic Disease; D005192:Family Health; D005260:Female; D006801:Humans; D008297:Male; D008960:Models, Psychological; D033262:Narration; D016487:Parenting; D036301:Qualitative Research; D016135:Spinal Dysraphism / Q000523:psychology / Q000534:rehabilitation*; D014481:United States; D055815:Young Adult