title: Home enteral nutrition in children--2010 nationwide survey of the Polish Society for Clinical Nutrition of Children.
abstract: Published epidemiologic data on the administration rates of enteral/parenteral home nutrition is very limited. The aim of this first nationwide study was to assess the availability of pediatric home enteral nutrition (HEN) services in Poland. The questionnaire was sent to all regional centers providing pediatric HEN services in Poland (n = 14). The analysis included the number of pediatric patients who received HEN in 2010, their demographic characteristics and geographical distribution. Furthermore, the distributions of indications and methods of enteral nutrition administration were analyzed, along with the reasons of withdrawal from the HEN program. The number and fraction of children receiving HEN increased in 2010, from 433 (11.34 per 1 million inhabitants) on January 1st to 525 (13.75) on December 31st. Marked differences were observed in geographical distribution of this parameter, from zero to up to 30 pediatric patients per 1 million inhabitants. Median age of patients was 6 years (range: 9 months-18 years). In most cases, HEN was prescribed due to neurological disorders (n = 337, 64.2%), and administered by means of gastrostomy (n = 450, 85.71%). This study revealed the dynamic development of pediatric HEN services in Poland but also documented their potential regional shortages.
authors.affiliation: Department of Pediatrics, Gastroenterology, Hepatology and Nutrition, Medical University of Gdansk, ul. Nowe Ogrody 1-6, 80-03, Gdansk, Poland. aga1@gumed.edu.pl
authors.forename: Agnieszka
authors.initials: A
authors.lastname: Szlagatys-Sidorkiewicz
authors.forename: Katarzyna
authors.initials: K
authors.lastname: Popińska
authors.forename: Ewa
authors.initials: E
authors.lastname: Toporowska-Kowalska
authors.forename: Anna
authors.initials: A
authors.lastname: Borkowska
authors.forename: Marta
authors.initials: M
authors.lastname: Sibilska
authors.forename: Beata
authors.initials: B
authors.lastname: Gębora-Kowalska
authors.forename: Stanisław
authors.initials: S
authors.lastname: Kłęk
authors.forename: Ewa
authors.initials: E
authors.lastname: Hapyn
authors.forename: Jarosław
authors.initials: J
authors.lastname: Kierkuś
authors.forename: Urszula
authors.initials: U
authors.lastname: Grzybowska-Chlebowczyk
authors.forename: Sabina
authors.initials: S
authors.lastname: Więcek
authors.forename: Adam
authors.initials: A
authors.lastname: Daukszewicz
authors.forename: Marlena
authors.initials: M
authors.lastname: Jakubczyk
authors.forename: Mariola
authors.initials: M
authors.lastname: Lembas-Sznabel
authors.forename: Marek
authors.initials: M
authors.lastname: Wilczyński
authors.forename: Ilona
authors.initials: I
authors.lastname: Zagożdżon
authors.forename: Przemysław
authors.initials: P
authors.lastname: Matras
authors.forename: Anna
authors.initials: A
authors.lastname: Zmarzly
authors.forename: Janusz
authors.initials: J
authors.lastname: Książyk
mesh_terms: D000293:Adolescent; D002547:Cerebral Palsy / Q000628:therapy; D002648:Child; D002675:Child, Preschool; D004750:Enteral Nutrition / Q000706:statistics & numerical data*; D005260:Female; D019538:Health Care Surveys; D018575:Home Care Services, Hospital-Based; D006801:Humans; D007223:Infant; D008607:Intellectual Disability / Q000628:therapy; D065768:Lennox Gastaut Syndrome; D008297:Male; D011044:Poland; D012189:Retrospective Studies; D013036:Spasms, Infantile / Q000628:therapy; D014897:Spinal Muscular Atrophies of Childhood / Q000628:therapy