title: The Knowledge Program: an innovative, comprehensive electronic data capture system and warehouse.
abstract: Data contained in the electronic health record (EHR) present a tremendous opportunity to improve quality-of-care and enhance research capabilities. However, the EHR is not structured to provide data for such purposes: most clinical information is entered as free text and content varies substantially between providers. Discrete information on patients' functional status is typically not collected. Data extraction tools are often unavailable. We have developed the Knowledge Program (KP), a comprehensive initiative to improve the collection of discrete clinical information into the EHR and the retrievability of data for use in research, quality, and patient care. A distinct feature of the KP is the systematic collection of patient-reported outcomes, which is captured discretely, allowing more refined analyses of care outcomes. The KP capitalizes on features of the Epic EHR and utilizes an external IT infrastructure distinct from Epic for enhanced functionality. Here, we describe the development and implementation of the KP.
authors.affiliation: Neurological Institute, Cleveland Clinic, OH, USA.
authors.forename: Irene
authors.initials: I
authors.lastname: Katzan
authors.forename: Micheal
authors.initials: M
authors.lastname: Speck
authors.forename: Chris
authors.initials: C
authors.lastname: Dopler
authors.forename: John
authors.initials: J
authors.lastname: Urchek
authors.forename: Kay
authors.initials: K
authors.lastname: Bielawski
authors.forename: Cheryl
authors.initials: C
authors.lastname: Dunphy
authors.forename: Lara
authors.initials: L
authors.lastname: Jehi
authors.forename: Charles
authors.initials: C
authors.lastname: Bae
authors.forename: Alandra
authors.initials: A
authors.lastname: Parchman
mesh_terms: D057286:Electronic Health Records; D006304:Health Status; D006801:Humans; D016247:Information Storage and Retrieval / Q000379:methods*; D051188:Knowledge Bases