A fight for the right to life.
This paper describes the experience of 'Pamela*, mother of a child with spina bifida, diagnosed prenatally. It was disclosed during a research project exploring 'Family Centred Care' (FCC) with disabled children, and a very challenging ethical dilemma arose. This mother felt unsupported in her decision to go ahead with having her baby with spina bifida; this was in contrast to the support she received for her disabled child, once born. The discussion will focus around the challenge of supporting parents in decision making in midwifery and health care practice.
Cardiff University, School of Healthcare Studies.
Dawn
D
Pickering
D000328:Adult; D001294:Attitude to Health; D003657:Decision Making / Q000941:ethics*; D005260:Female; D006806:Human Rights; D006801:Humans; D011247:Pregnancy; D037841:Pregnant People / Q000523:psychology*; D011295:Prenatal Care / Q000941:ethics; D011296:Prenatal Diagnosis / Q000941:ethics*; D011369:Professional-Patient Relations; D016135:Spinal Dysraphism / Q000451:nursing / Q000523:psychology*; D026712:Value of Life