[Types of medical registries - definitions, methodological aspects and quality of the scientific work with registries].
This work presents a comprehensive list of registry definitions including broader and narrower definitions. Compared to each other different methodological issues can be identified. Some of these issues are common for all registry types; some can be assigned more easily to a specific registry type. Instruments for evaluating the quality of registers reflect many of the mentioned aspects. Generally, and especially at registers with a descriptive or exploratory research dimension it is important to consider their intended purpose and in about it was achieved. This includes, for instance, whether the purpose and the methodology are coordinated. From the start of registration an initiator should be - based on the purpose - aware of the methodological dimension of the registry. This helps to apply the correct type of the registry, the appropriate guidance and, ultimately, the arguments for the effort (cost-benefit ratio).
Ludwig Boltzmann Institut Health Technology Assessment (LBI HTA), Wien, Austria. stefan.mathis@hta.lbg.ac.at
Stefan
S
Mathis-Edenhofer
Brigitte
B
Piso
D001317:Austria; D003362:Cost-Benefit Analysis; D003625:Data Collection / Q000592:standards; D006801:Humans; D011785:Quality Assurance, Health Care / Q000592:standards; D019984:Quality Indicators, Health Care / Q000592:standards*; D012042:Registries / Q000145:classification / Q000592:standards*; D012107:Research Design