title: Promoting independence for children on long-term ventilation.
abstract: It is the responsibility of children's nurses to enable children and young people who are on long-term ventilation (LTV) to live independent and varied lives. This article considers the common challenges faced by such children and reflects on personal experience in planning and undertaking a respite week for a young person on LTV with Duchenne's muscular dystrophy without his parents.
authors.affiliation: Birmingham City University. sue.lawrence@bcu.ac.uk
authors.forename: Sue
authors.initials: S
authors.lastname: Lawrence
mesh_terms: D002648:Child; D005610:Freedom; D006801:Humans; D012121:Respiration, Artificial; D006113:United Kingdom