title: Development of Sustain™: A.S.P.E.N.'s National Patient Registry for Nutrition Care.
abstract: The American Society for Parenteral and Enteral Nutrition (A.S.P.E.N.) developed a Web-based registry for nutrition care launched in early 2011, initially focusing on the home parenteral nutrition (HPN) patient population. The purpose of Sustain is to collect information regarding the patients and populations who require HPN in the United States, measure outcomes associated with HPN, allow institutional benchmarking against the aggregate data, and publish the findings to improve the quality of care for patients receiving HPN. The registry is open to all sites (hospital and home based) who care for new or existing HPN patients. Preliminary data should be available in early 2012.
authors.affiliation: A.S.P.E.N., Silver Spring, Maryland, USA. peggig@aspen.nutr.org
authors.forename: Peggi
authors.initials: P
authors.lastname: Guenter
authors.forename: Lawrence
authors.initials: L
authors.lastname: Robinson
authors.forename: Rose Ann
authors.initials: RA
authors.lastname: DiMaria-Ghalili
authors.forename: Beth
authors.initials: B
authors.lastname: Lyman
authors.forename: Ezra
authors.initials: E
authors.lastname: Steiger
authors.forename: Marion F
authors.initials: MF
authors.lastname: Winkler
mesh_terms: D019985:Benchmarking; D003625:Data Collection; D004750:Enteral Nutrition / Q000379:methods*; D017408:Guidelines as Topic; D006801:Humans; D020407:Internet; D017063:Outcome Assessment, Health Care; D016331:Parenteral Nutrition, Home / Q000379:methods*; D012042:Registries; D012189:Retrospective Studies; D016896:Treatment Outcome; D014481:United States; D054928:Validation Studies as Topic