title: Questions of copyright.
abstract: The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership. This is the copyright holder of the instrument who will control its access (distribution and reproduction), its adaptation or modification, and its translation. Copyright is a means to protect the integrity of an instrument. The ownership of an instrument should be defined in the beginning between all parties involved, and each step of the instrument's life, including distribution, should be anticipated for purpose of copyright.
authors.forename: Caroline
authors.initials: C
authors.lastname: Anfray
authors.forename: Marie-Pierre
authors.initials: MP
authors.lastname: Emery
authors.forename: Katrin
authors.initials: K
authors.lastname: Conway
authors.forename: Catherine
authors.initials: C
authors.lastname: Acquadro
mesh_terms: D003309:Copyright / Q000331:legislation & jurisprudence*; D005602:France; D006801:Humans; D018973:Intellectual Property; D017060:Patient Satisfaction / Q000331:legislation & jurisprudence* / Q000706:statistics & numerical data; D011788:Quality of Life; D011795:Surveys and Questionnaires