title: Quality-of-life measurement in blistering diseases.
abstract: Both congenital and acquired bullous dermatoses have the potential to impose a significant burden of disease, and the impact exerted on the quality of life (QOL) of patients is often multifaceted. The qualitative and quantitative studies reviewing QOL in patients with bullous dermatoses have all reported a significant decrease in QOL scores compared with the greater population using a range of patient-based measures. Formal evaluation of QOL in the setting of bullous dermatoses facilitates the assessment of disease severity and mapping of disease trajectory and can capture outcomes of therapeutic intervention relevant to the patient.
authors.affiliation: Department of Dermatology, St George Hospital, Gray Street, Sydney, NSW 2217, Australia.
authors.forename: Deshan F
authors.initials: DF
authors.lastname: Sebaratnam
authors.forename: John W
authors.initials: JW
authors.lastname: Frew
authors.forename: Fereydoun
authors.initials: F
authors.lastname: Davatchi
authors.forename: Dédée F
authors.initials: DF
authors.lastname: Murrell
mesh_terms: D001768:Blister / Q000523:psychology*; D004820:Epidermolysis Bullosa / Q000523:psychology; D005260:Female; D006304:Health Status; D006801:Humans; D011788:Quality of Life; D011795:Surveys and Questionnaires; D016896:Treatment Outcome