Interpretations of informed choice in antenatal screening: a cross-cultural, Q-methodology study.
Informed choice is internationally recognised and accepted as an important aspect of ethical healthcare. In the U.K., NHS antenatal screening policies state that their primary aim is to facilitate reproductive informed choices. These policies, implemented within a multiethnic population, are largely guided by the ethical principle of autonomy. This study was carried out in 2009 in the U.K. and used Q-methodology to explore diversity in the value attached to autonomous informed choice in antenatal screening for genetic disorders and similarities and differences in this value in women from different ethnic origins. Ninety-eight participants of African, British White, Caribbean, Chinese and Pakistani origin completed a 41-statement Q-sort in English, French, Mandarin or Urdu. Q-Factor analysis produced five statistically independent viewpoints of the value of informed choice: choice as an individual right; choice informed by religious values; choice as a shared responsibility; choice advised by health professionals; and choice within the family context. The findings show that women hold a variety of views on the nature of informed choice, and that, contradictory to policies of autonomous informed choice, many women seek and value the advice of health professionals. The findings have implications for the role of health professionals in facilitating informed choice, quality of care and equity of access.
Leeds Institute of Health Sciences, University of Leeds, Leeds, West Yorkshire LS2 9LJ, UK. s.ahmed@leeds.ac.uk
Shenaz
S
Ahmed
Louise D
LD
Bryant
Zahra
Z
Tizro
Darren
D
Shickle
D003431:Cross-Cultural Comparison; D003657:Decision Making; D005163:Factor Analysis, Statistical; D006297:Health Services Accessibility; D006801:Humans; D007258:Informed Consent; D026684:Personal Autonomy; D010817:Physician-Patient Relations; D011296:Prenatal Diagnosis; D011787:Quality of Health Care; D006113:United Kingdom