Critical reflections on end-of-life care for people with intellectual disabilities: a single case study approach.
People with intellectual disabilities (ID) are enjoying increasing longevity, but are simultaneously having to cope with the additional health problems associated with ageing. Even though people with ID are reported to have worse health than the rest of the population, resulting in greater health-care needs, they also have poorer health care than the average person, including including-end-of-life care. The aim of this paper is to explore the challenges to providing effective end-of-life care for a person with an ID by using critical reflection from a nursing care perspective on an illustrative case study. Death never occurs in a vacuum but rather occurs in a social context, and the social context here was crucial to providing appropriate end-of-life care. It is hoped that the paper will promote discussion both around end-of-life care generally and in relation to this marginalized population.
School of Nursing and Midwifery, Keele University, Clinical Education Centre, University Hospital of North Staffordshire, UK. s.c.read@nur.keele.ac.uk
Sue
S
Read
Deborah
D
Cartlidge
D000223:Adaptation, Psychological; D000328:Adult; D005260:Female; D006801:Humans; D008607:Intellectual Disability / Q000451:nursing* / Q000523:psychology; D013727:Terminal Care