Administration burden associated with recombinant human growth hormone treatment: perspectives of patients and caregivers.
Patients treated with recombinant human growth hormone (rhGH) for growth hormone disorders follow a challenging treatment schedule. This study assessed patient and caregiver experiences with rhGH therapy treatment regimens. Patients 13 years or older with growth hormone deficiency and caregivers completed Web-based surveys. A total of 61 patients and 239 caregivers participated. Storage of rhGH was considered burdensome by more than a third. More than 51% considered storage "somewhat more" to "much more of a burden" relative to the burden while not traveling. "Away from home or traveling" was the most frequently endorsed reason for missing a dose. rhGH treatment while traveling is challenging because of rhGH storage burden.
MAGIC Foundation, Oak Park, IL, USA.
Dianne
D
Kremidas
Tami
T
Wisniewski
Victoria M
VM
Divino
Kaysen
K
Bala
Maryann
M
Olsen
John
J
Germak
Mark
M
Aagren
Natalia
N
Holot
Won Chan
WC
Lee
D001290:Attitude; D017028:Caregivers; D002648:Child; D002675:Child, Preschool; D003430:Cross-Sectional Studies; D004356:Drug Storage; D005260:Female; D019382:Human Growth Hormone / Q000008:administration & dosage*; D006801:Humans; D007267:Injections; D008297:Male; D011994:Recombinant Proteins; D012034:Refrigeration
D011994:Recombinant Proteins; D019382:Human Growth Hormone