Call for change in prenatal counseling for Down syndrome.
The American Journal of Medical Genetics Part A is to be congratulated for taking a leadership role by publishing a number of papers challenging the status quo of prenatal counseling for Down syndrome and of care for children and adults with Down syndrome. Parents want to know about the future abilities and potential of their fetus with Down syndrome, not simply negative medical information that may be outdated. Those providing counseling and those providing medical care could benefit from contact with individuals with Down syndrome outside the medical context. It is imperative that each person with Down syndrome be viewed as a unique individual with particular talents. Medical care providers should work with parents to help the child or adult with Down syndrome reach his/her goals.
Linda L
LL
McCabe
Edward R B
ER
McCabe
D004314:Down Syndrome / Q000175:diagnosis*; D005817:Genetic Counseling; D006801:Humans; D010290:Parents; D011296:Prenatal Diagnosis