Epidemiology and the planned new Data Protection Directive of the European Union: a symposium report.
A revision of the 1995 Data Protection Directive of the European Union is currently in preparation. It is argued that the revised version should take explicitly and adequately into account the special requirements for personal data collection, storage and use needed in epidemiological research activities such as health services auditing, studies involving disease registries and investigations of public health emergencies.
IFC, National Research Council, via Trieste 41, 56126 Pisa, Italy. Electronic address: saracci@hotmail.com.
R
R
Saracci
Department of Epidemiology, UCLA School of Public Health, Los Angeles, CA, USA.
J
J
Olsen
Environmental and Occupational Epidemiology Unit, ISPO Cancer Prevention and Research Institute, Florence, Italy.
A
A
Seniori-Costantini
Wales Heart Research Institute, Cardiff University, Heath Park, Cardiff, UK.
R
R
West
D003219:Confidentiality; D003625:Data Collection / Q000941:ethics / Q000592:standards*; D004630:Emergencies; D004813:Epidemiology / Q000592:standards* / Q000706:statistics & numerical data*; D005060:Europe; D006801:Humans; D011634:Public Health; D012042:Registries / Q000592:standards / Q000706:statistics & numerical data; D012106:Research / Q000639:trends