title: Dementia-specific quality of life instruments and their appropriateness in shared-housing arrangements--a literature study.
abstract: Shared-housing arrangements (SHA) in Germany are a specific type of housing arrangement that belongs to the global concept of small-scale living arrangements. This caring approach comprises characteristics of both home and institutional care for persons with dementia. To evaluate the impact of SHA on the quality of life (QoL) of residents, an appropriate setting- and dementia-specific QoL instrument is needed. This article aims to identify QoL instruments that relate to the core domains of SHA. After a comprehensive literature review, existing dementia-specific QoL instruments were evaluated to determine whether any have been specifically designed for or applied in SHA. Additionally, each domain of the instruments was matched with the core domains of SHA. None of the existing instruments was identified as having been developed for SHA. Matching of the instrument domains with the SHA core domains leads to the conclusion that Quality of Life-Alzheimer's Disease, Dementia Quality of Life, Alzheimer Disease-Related Quality of Life, and QUALIDEM are adequate instruments for measuring the dementia-specific QoL of persons living in SHA. For the first time, a basis has been created for valid QoL evaluations of residents with dementia living in SHA. The 4 identified instruments are considered applicable in SHA. Conducting a performance test and evaluating further attributes according to the Scientific Advisory Committee of the Medical Outcomes Trust (e.g., reliability and validity) will further elucidation of the appropriateness of the instruments for SHA.
authors.affiliation: Dipl., Pflegewirt (FH), Charite-Universit€atsmedizin Berlin, Institute of Medical Sociology, and Alice Salomon University of Applied Sciences Berlin, Germany.
authors.forename: Johannes
authors.initials: J
authors.lastname: Gräske
authors.forename: Thomas
authors.initials: T
authors.lastname: Fischer
authors.forename: Adelheid
authors.initials: A
authors.lastname: Kuhlmey
authors.forename: Karin
authors.initials: K
authors.lastname: Wolf-Ostermann
mesh_terms: D003704:Dementia / Q000503:physiopathology* / Q000523:psychology; D006798:Housing; D006801:Humans; D011788:Quality of Life