title: Inequities in access to pediatric epilepsy surgery: a bioethical framework.
abstract: Epilepsy is a common childhood condition associated with a considerable medical and psychosocial burden. Children in whom medical treatment fails to reduce seizure burden represent an especially vulnerable patient population because prolonged, uncontrolled seizures are associated with poor developmental and neurocognitive outcomes. Surgical treatment in the form of cortical resection, functional disconnection, or neuromodulation may alleviate or significantly reduce the disease burden for a subset of these patients. However, there remains a dichotomy between the perceived benefits of surgery and the implementation of surgical strategies in the management of medically intractable epilepsy. The current paper presents an analysis of the bioethical implications of existing inequities in access to pediatric epilepsy surgery that result from inconsistent referral practices and discrepant evaluation techniques. The authors provide a basic bioethical framework composed of 5 primary expectations to inform public, institutional, and personal policies toward the provision of epilepsy surgery to afflicted children.
authors.affiliation: Division of Neurosurgery, Hospital for Sick Children, and Toronto Western Hospital, Ontario, Canada.
authors.forename: George M
authors.initials: GM
authors.lastname: Ibrahim
authors.forename: Benjamin W
authors.initials: BW
authors.lastname: Barry
authors.forename: Aria
authors.initials: A
authors.lastname: Fallah
authors.forename: O Carter
authors.initials: OC
authors.lastname: Snead
authors.forename: James M
authors.initials: JM
authors.lastname: Drake
authors.forename: James T
authors.initials: JT
authors.lastname: Rutka
authors.forename: Mark
authors.initials: M
authors.lastname: Bernstein
mesh_terms: D002541:Cerebral Decortication; D018572:Disease-Free Survival; D004827:Epilepsy / Q000209:etiology* / Q000601:surgery*; D006801:Humans; D010372:Pediatrics; D013043:Specialties, Surgical; D016896:Treatment Outcome