title: Development and design of a multidisciplinary training program for outpatient children and adolescents with psoriasis and their parents.
abstract: BACKGROUND
  To describe and illustrate in a case-study design the development and design of a multidisciplinary training program for outpatient children and adolescents with psoriasis and their parents.
  
  
  METHODS
  For the development of the program, a steering group was assembled, systematic semi-structured interviews were held and the literature was reviewed.
  
  
  RESULTS
  Aim of the training program was to strengthen patients and their parents in coping with and diminishing psoriasis-related problems in an outpatient setting. The program included treatment modules of medical information and skin care, itch and scratch problems, psychological issues in coping with the psoriasis, sleep hygiene and relapse prevention. Descriptive results in the case patient showed improvement of all outcome variables in the expected direction.
  
  
  CONCLUSIONS
  This is the first multidisciplinary training program for outpatient children and adolescents with psoriasis and their parents. It aims at improving coping skills and self-management and could be a promising addition to regular treatment.
authors.affiliation: Department of Dermatology, Radboud University Nijmegen Medical Centre, Nijmegen, The Netherlands. a.oostveen@derma.umcn.nl
authors.forename: Annet M
authors.initials: AM
authors.lastname: Oostveen
authors.forename: Saskia
authors.initials: S
authors.lastname: Spillekom-van Koulil
authors.forename: Marisol E
authors.initials: ME
authors.lastname: Otero
authors.forename: Wilma
authors.initials: W
authors.lastname: Klompmaker
authors.forename: Andrea W M
authors.initials: AW
authors.lastname: Evers
authors.forename: Marieke M B
authors.initials: MM
authors.lastname: Seyger
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000293:Adolescent; D000328:Adult; D002648:Child; D019468:Disease Management; D005260:Female; D006801:Humans; D008297:Male; D010045:Outpatients / Q000193:education*; D010290:Parents / Q000193:education*; D010348:Patient Care Team / Q000458:organization & administration*; D010353:Patient Education as Topic / Q000458:organization & administration*; D011565:Psoriasis / Q000175:diagnosis / Q000523:psychology / Q000534:rehabilitation* / Q000628:therapy; D011788:Quality of Life; D012648:Self Care