title: Living with coeliac disease: survey results from the U.S.A.
abstract: BACKGROUND
  The only treatment for coeliac disease is lifelong adherence to a rigorous gluten-free diet. The present study aimed to evaluate the influence of coeliac disease on the social aspects of daily life of individuals in the U.S.A.
  
  
  METHODS
  The present study used a self-administered survey including the standard Quality of Life questionnaire (12-item short-form) with validated disease-specific questions. sas statistical software 2010 (SAS Institute, Cary, NC, U.S.A.) was used to calculate the mean (SD).
  
  
  RESULTS
  Individuals with coeliac disease overall had a low positive health perception. Validated diet and disease-specific questions revealed a significant negative impact on quality of life in social settings. Specifically, the areas of travel, dining out and family life are most affected. The negative impact of diet significantly decreased over time, although it did not resolve for the domains of dining out of the home and travel. Those diagnosed in childhood and maintained on the diet had less of an impact on the quality of life as an adult.
  
  
  CONCLUSIONS
  Individuals with coeliac disease in the U.S.A. have a diminished quality of life, especially in the social aspects of life.
authors.affiliation: Department of Medicine, Celiac Disease Center, Columbia University Medical Center, New York, NY, USA. anne.lee@schar.com
authors.forename: A R
authors.initials: AR
authors.lastname: Lee
authors.forename: D L
authors.initials: DL
authors.lastname: Ng
authors.forename: B
authors.initials: B
authors.lastname: Diamond
authors.forename: E J
authors.initials: EJ
authors.lastname: Ciaccio
authors.forename: P H R
authors.initials: PH
authors.lastname: Green
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D002446:Celiac Disease / Q000178:diet therapy / Q000523:psychology*; D055050:Diet, Gluten-Free; D005260:Female; D006306:Health Surveys; D006801:Humans; D008019:Life Style; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D012649:Self Concept; D012917:Social Adjustment; D011795:Surveys and Questionnaires; D014481:United States; D055815:Young Adult