title: Social support for self-management behaviors among people with epilepsy: a content analysis of the WebEase program.
abstract: Social support is an important component in managing epilepsy; however little is known about support provided to people with epilepsy. This study examined whom people with epilepsy identify as supportive, and how those individuals support people with epilepsy's self-management efforts. Data come from the WebEase project, an effective online epilepsy self-management program. People with epilepsy who participated in the pilot (n=35) and efficacy trials (n=118) were included. A content analysis was conducted on responses to open-ended questions related to support. The majority of participants provided information about their supporters. The number of support providers ranged from 0 to 6, with about 12% indicating no support. Parents and significant others were most commonly listed as supporters. Support providers mainly offer emotional and instrumental support, reminders and aid for taking medication, and support for self-management strategies. These results could be useful for interventions aimed at bolstering support in order to improve self-management.
authors.affiliation: Department of Behavioral Sciences and Health Education, Rollins School of Public Health, Emory University, USA. ereisin@emory.edu
authors.forename: Elizabeth Reisinger
authors.initials: ER
authors.lastname: Walker
authors.forename: Yvan
authors.initials: Y
authors.lastname: Bamps
authors.forename: Andrea
authors.initials: A
authors.lastname: Burdett
authors.forename: Jennifer
authors.initials: J
authors.lastname: Rothkopf
authors.forename: Colleen
authors.initials: C
authors.lastname: Diiorio
mesh_terms: D000293:Adolescent; D000328:Adult; D000368:Aged; D004827:Epilepsy / Q000150:complications / Q000523:psychology* / Q000628:therapy*; D005260:Female; D006801:Humans; D020407:Internet; D008297:Male; D008875:Middle Aged; D012189:Retrospective Studies; D012648:Self Care / Q000379:methods*; D012893:Sleep Wake Disorders / Q000209:etiology; D012944:Social Support; D013315:Stress, Psychological / Q000209:etiology; D055815:Young Adult