title: Managing sensitive phenotypic data and biomaterial in large-scale collaborative psychiatric genetic research projects: practical considerations.
abstract: Large-scale collaborative research will be a hallmark of future psychiatric genetic research. Ideally, both academic and non-academic institutions should be able to participate in such collaborations to allow for the establishment of very large samples in a straightforward manner. Any such endeavor requires an easy-to-implement information technology (IT) framework. Here we present the requirements for a centralized framework and describe how they can be met through a modular IT toolbox.
authors.affiliation: Department of Medical Informatics, University Medical Center Göttingen, Göttingen, Germany. sara.demiroglu@med.uni-goettingen.de
authors.forename: S Y
authors.initials: SY
authors.lastname: Demiroglu
authors.forename: D
authors.initials: D
authors.lastname: Skrowny
authors.forename: M
authors.initials: M
authors.lastname: Quade
authors.forename: J
authors.initials: J
authors.lastname: Schwanke
authors.forename: M
authors.initials: M
authors.lastname: Budde
authors.forename: V
authors.initials: V
authors.lastname: Gullatz
authors.forename: D
authors.initials: D
authors.lastname: Reich-Erkelenz
authors.forename: J J
authors.initials: JJ
authors.lastname: Jakob
authors.forename: P
authors.initials: P
authors.lastname: Falkai
authors.forename: O
authors.initials: O
authors.lastname: Rienhoff
authors.forename: K
authors.initials: K
authors.lastname: Helbing
authors.forename: U
authors.initials: U
authors.lastname: Heilbronner
authors.forename: T G
authors.initials: TG
authors.lastname: Schulze
mesh_terms: D001689:Biological Psychiatry / Q000379:methods* / Q000639:trends*; D003299:Cooperative Behavior; D036281:Genetic Research; D006801:Humans; D008490:Medical Informatics / Q000379:methods* / Q000639:trends*; D017146:Models, Organizational; D012984:Software