title: Guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients.
abstract: BACKGROUND
  Support for family caregivers, including bereavement follow-up, is a core function of palliative care. Many caregivers acknowledge positive aspects associated with the role; however a considerable proportion will experience poor psychological, social, financial, spiritual, and physical well-being and some will suffer from complicated grief. Many family caregivers have unmet needs and would like more information, preparation, and support to assist them in the caregiving role. There is a shortage of evidence-based strategies to guide health professionals in providing optimal support while the caregiver is providing care and after the patient's death.
  
  
  OBJECTIVE
  To develop clinical practice guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients.
  
  
  METHODS
  (1) Literature review; (2) focus groups and structured interviews with key stakeholders within Australia; (3) national and international expert opinion to further develop and refine the guidelines using a modified Delphi process; and (4) endorsement of the guidelines from key palliative care, caregiver, and bereavement organizations (national and international).
  
  
  RESULTS
  The guidelines were developed for multidisciplinary health care professionals and clinical services commonly involved in caring for adult patients receiving palliative care in a variety of care sites throughout Australia. These consensus-based guidelines have been endorsed key Australian and international organizations.
  
  
  CONCLUSIONS
  The guidelines may prove valuable for the international palliative care community and for generalist health care providers who occasionally care for palliative care patients. Research is recommended to explore the uptake, implementation, and effectiveness of the guidelines.
authors.affiliation: Centre for Palliative Care at St. Vincent's Hospital, The University of Melbourne, Melbourne, Australia. phudson@unimelb.edu.au
authors.forename: Peter
authors.initials: P
authors.lastname: Hudson
authors.forename: Cheryl
authors.initials: C
authors.lastname: Remedios
authors.forename: Rachel
authors.initials: R
authors.lastname: Zordan
authors.forename: Kristina
authors.initials: K
authors.lastname: Thomas
authors.forename: Di
authors.initials: D
authors.lastname: Clifton
authors.forename: Michael
authors.initials: M
authors.lastname: Crewdson
authors.forename: Christopher
authors.initials: C
authors.lastname: Hall
authors.forename: Tom
authors.initials: T
authors.lastname: Trauer
authors.forename: Amanda
authors.initials: A
authors.lastname: Bolleter
authors.forename: David M
authors.initials: DM
authors.lastname: Clarke
authors.forename: Catherine
authors.initials: C
authors.lastname: Bauld
mesh_terms: D000368:Aged; D001315:Australia; D001601:Bereavement; D017028:Caregivers / Q000523:psychology*; D003625:Data Collection; D005260:Female; D017144:Focus Groups; D006801:Humans; D007407:Interviews as Topic; D008297:Male; D010166:Palliative Care; D012944:Social Support