title: A closer look revisited: are we subjects or are we donors?
abstract: The author offers personal reflections on the implications of the article "Managing Incidental Findings & Research Results in Genomic Research Involving Biobanks & Archived Datasets" in terms of how the article addresses serious knowledge disparities and differing expectations between participants and researchers.Genet Med 2012:14(4):458-460.
authors.affiliation: Patient Advocate, Oakton, Virginia, USA. rfisher284@aol.com
authors.forename: Rebecca
authors.initials: R
authors.lastname: Fisher
mesh_terms: D019313:BRCA1 Protein / Q000235:genetics*; D035843:Biomedical Research / Q000941:ethics / Q000379:methods / Q000706:statistics & numerical data; D001943:Breast Neoplasms / Q000175:diagnosis / Q000235:genetics* / Q000517:prevention & control; D005260:Female; D005820:Genetic Testing / Q000941:ethics; D005826:Genetics, Medical / Q000941:ethics / Q000379:methods / Q000706:statistics & numerical data; D023281:Genomics / Q000941:ethics / Q000379:methods / Q000706:statistics & numerical data; D006801:Humans; D033162:Incidental Findings; D009154:Mutation; D035842:Research Subjects; D035844:Researcher-Subject Relations / Q000941:ethics; D014342:Truth Disclosure / Q000941:ethics
chemical_list: D019313:BRCA1 Protein