title: Concurrent care for the medically complex child: lessons of implementation.
abstract: After years of the palliative care community calling for more open access to hospice services, pediatric patients are now eligible to receive simultaneous hospice services and disease-directed therapy. We report on five types of challenges that our team has experienced when implementing concurrent care, illustrated through case studies of three medically complex pediatric patients.
authors.affiliation: Pediatric Advanced Care Team, The Children's Hospital of Philadelphia.
authors.forename: Elissa G
authors.initials: EG
authors.lastname: Miller
authors.forename: Gwenn
authors.initials: G
authors.lastname: Laragione
authors.forename: Tammy I
authors.initials: TI
authors.lastname: Kang
authors.forename: Chris
authors.initials: C
authors.lastname: Feudtner
mesh_terms: D000293:Adolescent; D001291:Attitude of Health Personnel; D002675:Child, Preschool; D004389:Durable Medical Equipment / Q000191:economics / Q000592:standards; D005260:Female; D006699:Home Care Services / Q000191:economics / Q000592:standards* / Q000639:trends; D017051:Hospice Care / Q000191:economics / Q000331:legislation & jurisprudence / Q000639:trends*; D006801:Humans; D006816:Huntington Disease; D007223:Infant; D007348:Insurance, Health / Q000191:economics / Q000331:legislation & jurisprudence / Q000639:trends; D008020:Life Support Care / Q000331:legislation & jurisprudence / Q000592:standards; D019636:Neurodegenerative Diseases; D009744:Nursing, Private Duty / Q000191:economics / Q000592:standards / Q000639:trends; D010166:Palliative Care / Q000191:economics / Q000592:standards* / Q000639:trends; D058991:Patient Protection and Affordable Care Act; D010372:Pediatrics / Q000191:economics / Q000331:legislation & jurisprudence / Q000639:trends*; D011115:Polyneuropathies; D011788:Quality of Life