title: Utility of the Illness Intrusiveness Scale in parents of children diagnosed with juvenile rheumatic diseases.
abstract: OBJECTIVE
  To examine the factor structure and convergent validity of the Illness Intrusiveness Scale--Parent Version in mother and fathers of children and adolescents ages 7 to 18 (M = 13.56 years, SD = 2.67) diagnosed with a juvenile rheumatic disease.
  
  
  METHODS
  Parents of 122 children and adolescents (82 girls, 40 boys) completed the Illness Intrusiveness Scale-Parent Version, and both parents and children and adolescents completed measures of functional disability, general distress, and illness uncertainty. An exploratory factor analysis was conducted on the Illness Intrusiveness Scale--Parent Version to identify the factor structure. The factors were then compared with parent- and child-report measures of functional disability, general distress, and uncertainty. Finally, analyses were conducted to determine whether the magnitude of the correlations was significantly different between factors for parents and children and adolescents.
  
  
  RESULTS
  The Illness Intrusiveness Scale--Parent Version was found to have a two-factor structure. The Relationships/Personal Development factor contained items related to self-fulfillment and interactions with others, and the Instrumental factor contained items related to health and work. These factors were found to have good internal consistency and were significantly correlated with measures of parent-reported functional disability and parent- and youth-reported distress and uncertainty. The magnitude of these correlations was also found to differ depending on informant and outcome measure.
  
  
  CONCLUSIONS
  The Illness Intrusiveness Scale--Parent Version appears to be a valid measure for use in parents of children with juvenile rheumatic disease.
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: David A
authors.initials: DA
authors.lastname: Fedele
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: Jamie L
authors.initials: JL
authors.lastname: Ryan
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: Rachelle R
authors.initials: RR
authors.lastname: Ramsey
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: DeMond M
authors.identifier: 0000-0002-5231-6563
authors.initials: DM
authors.lastname: Grant
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: Margaret S
authors.initials: MS
authors.lastname: Bonner
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: S Paul
authors.initials: SP
authors.lastname: Stermer
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: Larry L
authors.initials: LL
authors.lastname: Mullins
authors.affiliation: Department of Pediatrics, Oklahoma University Health Sciences Center.
authors.forename: James N
authors.initials: JN
authors.lastname: Jarvis
authors.affiliation: Department of Psychology, Oklahoma State University.
authors.forename: John M
authors.initials: JM
authors.lastname: Chaney
mesh_terms: D000293:Adolescent; D000328:Adult; D002648:Child; D019988:Children with Disabilities; D005260:Female; D006304:Health Status; D006801:Humans; D008297:Male; D008875:Middle Aged; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology*; D011594:Psychometrics / Q000295:instrumentation*; D012216:Rheumatic Diseases / Q000503:physiopathology / Q000523:psychology*; D012649:Self Concept; D013315:Stress, Psychological; D011795:Surveys and Questionnaires / Q000592:standards