title: Single-ventricle palliation for high-risk neonates: examining the feasibility of an automated home monitoring system after stage I palliation.
abstract: Strategies to reduce interstage morbidity and mortality for patients with single ventricle following stage I palliation include, standardized care protocols, focused high-risk outpatient clinics, dedicated teams that focus on the unique needs of these fragile patients and use of home surveillance monitoring. Use of telemedicine devices for home monitoring has been shown to improve outcomes in adults. These devices allow for a more automated approach to home monitoring that have many advantages. We describe our program that utilizes a web-based telemedicine device to capture and transmit data from the homes of our patients during the interstage period. Our early data suggest that home telemedicine is feasible, provides a more systematic data review and analysis and supports the assertion that patients using home surveillance have significantly better nutritional status than those not using home monitoring.
authors.affiliation: Division of Cardiology, Children's National Medical Center, 111 Michigan Avenue, NW, Washington, DC, USA.
authors.forename: Russell
authors.initials: R
authors.lastname: Cross
authors.forename: Rachel
authors.initials: R
authors.lastname: Steury
authors.forename: Amy
authors.initials: A
authors.lastname: Randall
authors.forename: Mary
authors.initials: M
authors.lastname: Fuska
authors.forename: Craig
authors.initials: C
authors.lastname: Sable
mesh_terms: D005240:Feasibility Studies; D006330:Heart Defects, Congenital / Q000451:nursing / Q000601:surgery*; D006352:Heart Ventricles / Q000601:surgery*; D006699:Home Care Services; D006801:Humans; D007223:Infant; D007231:Infant, Newborn; D009722:Nurse Practitioners; D010092:Oximetry; D018570:Risk Assessment; D017216:Telemedicine / Q000295:instrumentation* / Q000379:methods; D015430:Weight Gain