title: The experiences of medically fragile adolescents who require respiratory assistance.
abstract: OBJECTIVE
  To report a study of the experiences of medically fragile adolescents who require respiratory assistance.
  
  
  BACKGROUND
  The population of medically fragile adolescents has grown in recent decades because of the sequelae of prematurity, injuries and chronic or terminal illnesses. Medically fragile adolescents who require respiratory assistance are part of this unique population, yet as nurses, we know little about their experiences and the best approaches to use in caring for them.
  
  
  METHODS
  A qualitative design, interpretive phenomenology was used in this study.
  
  
  METHODS
  Interpretive phenomenology was used to describe and interpret the experience of 11 medically fragile adolescents (ages 13-18 years old) who required respiratory assistances of tracheostomies, ventilator support and Bi-level positive airway pressure. Between April 2010-September 2010, audiotaped semi-structured interviews were conducted with the adolescents. Data analysis was completed using a stepped approach to identify themes.
  
  
  RESULTS
  Five themes were identified from the interviews with the adolescents: 'Get to know me', 'Allow me to be myself', 'Being there for me', 'No matter what, technology helps' and 'I am an independent person'.
  
  
  CONCLUSIONS
  Medically fragile adolescents have a clear view of who they are as a person. They want nurses to view them as a person, not just a patient. The adolescents said that friends were there for them when they needed support. Technology had meanings that enhanced daily living and existed as a part of their day, not their whole day. The adolescents were actively engaging in activities and strategies to achieve their goals of independence.
authors.affiliation: North Georgia College and State University, Dahlonega, Georgia, USA. rgspratling@northgeorgia.edu
authors.forename: Regena
authors.initials: R
authors.lastname: Spratling
mesh_terms: D000203:Activities of Daily Living; D000223:Adaptation, Psychological; D000293:Adolescent; D019988:Children with Disabilities / Q000523:psychology*; D005260:Female; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D011788:Quality of Life; D012121:Respiration, Artificial / Q000451:nursing / Q000523:psychology*; D012649:Self Concept; D012656:Self-Help Devices; D012944:Social Support; D015144:Southeastern United States