title: Agreement between parent-adolescent ratings on psychosocial outcome and quality-of-life following childhood traumatic brain injury.
abstract: OBJECTIVE
  This study investigated parent-adolescent agreement in long-term psychosocial and quality-of-life (QoL) outcomes. The sample comprised adolescents aged 15-18 years, who sustained childhood traumatic brain injury (TBI) between birth and 5 years of age.
  
  
  METHODS
  Thirty-three participants (17 adolescents with TBI and 16 TBI parent-proxies) were involved in the study which compared parent and adolescent ratings on the Sydney Psychosocial Reintegration Scale-Child form (SPRS-C) and the Pediatric Quality-of-Life Inventory (PedsQL). The questionnaires were administered through phone interviews.
  
  
  RESULTS
  As hypothesized, parent-adolescent agreement was acceptable for psychosocial outcome (intra-class coefficient [ICC] of 0.844, p < 0.001), whereas discrepancies were found for ratings of QoL (ICC of 0.506, p = 0.092).
  
  
  CONCLUSIONS
  The finding that parents and adolescents agree on psychosocial outcome is promising for those instances when the patient is unable to report; however, discrepancies regarding QoL suggest caution needs to be taken when interpreting parent-rated QoL data.
authors.affiliation: Child Neuropsychology, Murdoch Childrens Research Institute, Melbourne, Australia.
authors.forename: Laura
authors.initials: L
authors.lastname: Green
authors.forename: Celia
authors.initials: C
authors.lastname: Godfrey
authors.forename: Chery
authors.initials: C
authors.lastname: Soo
authors.forename: Vicki
authors.initials: V
authors.lastname: Anderson
authors.forename: Cathy
authors.initials: C
authors.lastname: Catroppa
mesh_terms: D000293:Adolescent; D001930:Brain Injuries / Q000523:psychology*; D002675:Child, Preschool; D006233:Persons with Disabilities / Q000523:psychology*; D005260:Female; D006304:Health Status; D006801:Humans; D007223:Infant; D008297:Male; D010290:Parents / Q000523:psychology*; D011788:Quality of Life / Q000523:psychology*; D012647:Self-Assessment; D012720:Severity of Illness Index; D011795:Surveys and Questionnaires