title: SUDEP discussions with patients and families.
abstract: SUDEP is clearly a very important issue. Patients and their representatives (and in Scotland our legal system) would like consistency and clarity in how this information is conveyed. It behooves us to find a way to pass on our concerns in a way that acknowledges the needs, fears and circumstances of each individual patient and, where appropriate,of their family or carers. I think it is unreasonable to insist on not changing our practice. Emphasising and promoting measures that increase safety and reduce risk can only be to patients’ benefit, no matter the terminology used.
authors.affiliation: Southern General Hospital, Institute for Neurology, Glasgow G514TF, UK. JohnPaul.Leach@sgh.scot.nhs.uk
authors.forename: John Paul
authors.initials: JP
authors.lastname: Leach
mesh_terms: D003645:Death, Sudden / Q000453:epidemiology* / Q000209:etiology / Q000517:prevention & control; D004827:Epilepsy / Q000150:complications / Q000453:epidemiology* / Q000628:therapy; D006801:Humans; D010817:Physician-Patient Relations; D011368:Professional-Family Relations; D012307:Risk Factors; D012606:Scotland / Q000453:epidemiology