title: Advance care planning in CKD/ESRD: an evolving process.
abstract: Advance care planning was historically considered to be simply the completion of a proxy (health care surrogate designation) or instruction (living will) directive that resulted from a conversation between a patient and his or her physician. We now know that advance care planning is a much more comprehensive and dynamic patient-centered process used by patients and families to strengthen relationships, achieve control over medical care, prepare for death, and clarify goals of care. Some advance directives, notably designated health care proxy documents, remain appropriate expressions of advance care planning. Moreover, although physician orders, such as do-not-resuscitate orders and Physician Orders for Life-Sustaining Treatment, may not be strictly defined as advance directives, their completion, when appropriate, is an integral component of advance care planning. The changing health circumstances and illness trajectory characteristic of ESRD mandate that advance care planning discussions adapt to a patient's situation and therefore must be readdressed at appropriate times and intervals. The options of withholding and withdrawing dialysis add ESRD-specific issues to advance care planning in this population and are events each nephrologist will at some time confront. Advance care planning is important throughout the spectrum of ESRD and is a part of nephrology practice that can be rewarding to nephrologists and beneficial to patients and their families.
authors.affiliation: University of Illinois, Urbana-Champaign, USA. jholley@illinois.edu
authors.forename: Jean L
authors.initials: JL
authors.lastname: Holley
mesh_terms: D032722:Advance Care Planning / Q000941:ethics / Q000331:legislation & jurisprudence; D016223:Advance Directives; D003142:Communication; D018450:Disease Progression; D005195:Family Relations; D006801:Humans; D007676:Kidney Failure, Chronic / Q000401:mortality / Q000523:psychology / Q000628:therapy*; D010817:Physician-Patient Relations; D011368:Professional-Family Relations; D011379:Prognosis; D019727:Proxy; D011788:Quality of Life; D006435:Renal Dialysis / Q000009:adverse effects / Q000941:ethics / Q000401:mortality / Q000523:psychology; D016414:Resuscitation Orders; D020458:Third-Party Consent; D013997:Time Factors; D016312:Treatment Refusal; D028761:Withholding Treatment