title: Daily burdens of recipients and family caregivers after lung transplant.
abstract: BACKGROUND
  Lung transplant recipients are prescribed a complex medical regimen that is thought to be burdensome and to interfere with daily activities of recipients and family caregivers. Yet empirical studies describing the activities that lung transplant recipients and their family caregivers perform on a typical day and the emotions associated with performing these activities are lacking.
  
  
  OBJECTIVE
  To identify the daily activities and burdens after lung transplant.
  
  
  METHODS
  The Day Reconstruction Method and content analysis were used to reconstruct a typical day for lung transplant recipients and their family caregivers.
  
  
  METHODS
  The adult cardiothoracic transplant program of The University of Pittsburgh Medical Center.
  
  
  METHODS
  Twenty-one dyads of lung transplant recipients and their family caregivers.
  
  
  METHODS
  Variables of interest included lung transplant recipients' and family caregivers' daily activities and associated emotions, sociodemographics, clinical characteristics, and patient-reported outcomes of quality of life, symptoms of depression and anxiety, and functional performance.
  
  
  RESULTS
  Participants reported 286 daily activities and 138 associated positive and negative emotions. No activities or emotions were uniquely reported by lung transplant recipients or caregivers, providing evidence of the shared responsibility for caregiving and health maintenance. Most activities reported by caregivers and lung transplant recipients were health-related. Compared with lung transplant recipients, caregivers reported positive emotions more often, yet reported lower overall daily mood. This finding is consistent with results of previous studies indicating that specific caregiving tasks were typically rewarding for caregivers, but overall, care giving takes its toll.
  
  
  CONCLUSIONS
  Findings enhance our understanding of the burdens lung transplant recipients and caregivers face and point to the need for further support for dyads after lung transplant.
authors.affiliation: Johns Hopkins University School of Nursing, Baltimore, USA.
authors.forename: Jiayun
authors.initials: J
authors.lastname: Xu
authors.forename: Oluwatobi
authors.initials: O
authors.lastname: Adeboyejo
authors.forename: Erin
authors.initials: E
authors.lastname: Wagley
authors.forename: Jill
authors.initials: J
authors.lastname: Aubrecht
authors.forename: Mi-Kyung
authors.initials: MK
authors.lastname: Song
authors.forename: Lori
authors.initials: L
authors.lastname: Thiry
authors.forename: Annette DeVito
authors.initials: AD
authors.lastname: Dabbs
mesh_terms: D000203:Activities of Daily Living; D000328:Adult; D000368:Aged; D017028:Caregivers; D017281:Cost of Illness; D004644:Emotions; D005260:Female; D006801:Humans; D016040:Lung Transplantation; D008297:Male; D008875:Middle Aged; D011788:Quality of Life