title: Reliability of an interactive computer program for advance care planning.
abstract: Despite widespread efforts to promote advance directives (ADs), completion rates remain low. Making Your Wishes Known: Planning Your Medical Future (MYWK) is an interactive computer program that guides individuals through the process of advance care planning, explaining health conditions and interventions that commonly involve life or death decisions, helps them articulate their values/goals, and translates users' preferences into a detailed AD document. The purpose of this study was to demonstrate that (in the absence of major life changes) the AD generated by MYWK reliably reflects an individual's values/preferences. English speakers ≥30 years old completed MYWK twice, 4 to 6 weeks apart. Reliability indices were assessed for three AD components: General Wishes; Specific Wishes for treatment; and Quality-of-Life values (QoL). Twenty-four participants completed the study. Both the Specific Wishes and QoL scales had high internal consistency in both time periods (Knuder Richardson formula 20 [KR-20]=0.83-0.95, and 0.86-0.89). Test-retest reliability was perfect for General Wishes (κ=1), high for QoL (Pearson's correlation coefficient=0.83), but lower for Specific Wishes (Pearson's correlation coefficient=0.57). MYWK generates an AD where General Wishes and QoL (but not Specific Wishes) statements remain consistent over time.
authors.affiliation: Department of Surgery, College of Medicine, The Pennsylvania State University, Hershey, Pennsylvania 17033, USA. jschubart@hmc.psu.edu
authors.forename: Jane R
authors.initials: JR
authors.lastname: Schubart
authors.forename: Benjamin H
authors.initials: BH
authors.lastname: Levi
authors.forename: Fabian
authors.initials: F
authors.lastname: Camacho
authors.forename: Megan
authors.initials: M
authors.lastname: Whitehead
authors.forename: Elana
authors.initials: E
authors.lastname: Farace
authors.forename: Michael J
authors.initials: MJ
authors.lastname: Green
mesh_terms: D000328:Adult; D032722:Advance Care Planning / Q000458:organization & administration; D000368:Aged; D000369:Aged, 80 and over; D005260:Female; D006801:Humans; D008297:Male; D008875:Middle Aged; D011788:Quality of Life; D015203:Reproducibility of Results; D011795:Surveys and Questionnaires; D014584:User-Computer Interface