title: Developing a strategy for the management of rare diseases.
authors.forename: C Mark
authors.initials: CM
authors.lastname: Taylor
authors.forename: Fiona E
authors.initials: FE
authors.lastname: Karet Frankl
mesh_terms: D019468:Disease Management; D006291:Health Policy; D006801:Humans; D035583:Rare Diseases / Q000628:therapy*; D012017:Referral and Consultation; D006113:United Kingdom