title: Characteristics of neurogenic bowel in spinal cord injury and perceived quality of life.
abstract: OBJECTIVE
  To investigate the association between characteristics of individuals with spinal cord injury and neurogenic bowel and their perceived quality of life.
  
  
  METHODS
  The study design is an exploratory, descriptive correlational design. To measure the variables of the study the Quality of Life Survey developed by Randell et al. (2001) was used to measure perceived quality of life related to bowel management. Individual bowel management preferences and subjective costs and benefits of the preferences were gathered through the Neurogenic Bowel Characteristics Survey. PARTICIPANTS/METHOD: Data were collected from a random half of the individuals who met the inclusion criteria from the patient database (n=1193). Two hundred and forty one surveys were analyzed for this study.
  
  
  CONCLUSIONS
  More than half of the sample (n=134) provided their own bowel management consisting of digital stimulation, suppositories, and other aids; 8% (n=19) had a colostomy. Regardless of the bowel management program 54% (n=127) were satisfied with current methods. Although time reported to complete bowel programs ranged from 1 to 120 minutes, there was no difference in rating of satisfaction with time. There was a statistically significant difference between those satisfied and dissatisfied with current bowel management and quality of life; those satisfied demonstrated a higher quality of life on three subscales, work function (p= .021), bowel problems (p< .001), and social function (p< .001). Those dissatisfied with their bowel program perceived a lower quality of life and indicated problems of time (p= .001), pain or discomfort (p= .033), and poor results (p< .001).
  
  
  CONCLUSIONS
  Research data provide the patient's perspective on bowel management characteristics, complications, satisfaction, and their perceived quality of life. Results of this research will be incorporated into bowel management education and possible modification of the current inpatient bowel management program.
authors.affiliation: Children's Hospital Colorado, Aurora, CO, USA. conniepardee@gmail.com
authors.forename: Connie
authors.initials: C
authors.lastname: Pardee
authors.forename: Diedre
authors.initials: D
authors.lastname: Bricker
authors.forename: Jeanine
authors.initials: J
authors.lastname: Rundquist
authors.forename: Christi
authors.initials: C
authors.lastname: MacRae
authors.forename: Cherisse
authors.initials: C
authors.lastname: Tebben
mesh_terms: D006306:Health Surveys; D006801:Humans; D055496:Neurogenic Bowel / Q000451:nursing* / Q000523:psychology / Q000534:rehabilitation*; D036301:Qualitative Research; D011788:Quality of Life; D011897:Random Allocation; D019145:Rehabilitation Nursing / Q000379:methods; D013119:Spinal Cord Injuries / Q000451:nursing* / Q000523:psychology / Q000534:rehabilitation*; D011795:Surveys and Questionnaires