title: "It's no big deal": adolescents with congenital heart disease.
abstract: Improved survival rates for congenital heart disease (CHD) have increasing numbers requiring lifelong specialized health care. In this interpretive description, interview data were analyzed to understand how adolescents with CHD describe everyday life and relate to questions about quality of life. Most viewed themselves as normal, their CHD something that they situated into the foreground or background of their lives as it suited their needs. They spoke of quality-of-life issues in a concrete manner focusing on physical activity limitations and their need to fit in. These findings can direct interventions for adolescents with CHD for transition to adulthood.
authors.affiliation: University of Alberta, Edmonton, Alberta, Canada.
authors.forename: Kathleen
authors.initials: K
authors.lastname: Shearer
authors.forename: Gwen R
authors.initials: GR
authors.lastname: Rempel
authors.forename: Colleen M
authors.initials: CM
authors.lastname: Norris
authors.forename: Joyce
authors.initials: J
authors.lastname: Magill-Evans
mesh_terms: D000223:Adaptation, Psychological; D000293:Adolescent; D001828:Body Image; D005260:Female; D006330:Heart Defects, Congenital / Q000401:mortality / Q000523:psychology*; D006801:Humans; D007398:Interpersonal Relations; D008297:Male; D011788:Quality of Life