title: Parental caregiving of children prior to hematopoietic stem cell transplant.
abstract: Using the Caregiver Reaction Assessment (CRA), we assessed positive reactions and burdens of the caregiving experience among parental caregivers (n = 189) of children scheduled to undergo hematopoietic stem cell transplant. Although widely used in non-parental caregivers, the CRA has not been used in parents of pediatric patients. Reliability (Cronbach's alpha: .72-.81 vs. .63) and concurrent validity (correlation: .41-.61 vs. .28) were higher for negatively framed than positively framed subscales. Results indicate that the caregiving experience is complex. The parents experienced high caregiver's esteem and moderate family support, but also negative impacts on finances and schedule, and to a lesser degree, health. Compared to non-parental caregivers, parental caregivers experienced higher esteem and more impact on finances and schedule.
authors.affiliation: The Health Institute, Tufts Medical Center, Boston, MA, USA.
authors.forename: Angie Mae
authors.initials: AM
authors.lastname: Rodday
authors.forename: Elizabeth J
authors.initials: EJ
authors.lastname: Pedowitz
authors.forename: Deborah K
authors.initials: DK
authors.lastname: Mayer
authors.forename: Sara J
authors.initials: SJ
authors.lastname: Ratichek
authors.forename: Charles W
authors.initials: CW
authors.lastname: Given
authors.forename: Susan K
authors.initials: SK
authors.lastname: Parsons
mesh_terms: D000328:Adult; D017028:Caregivers / Q000523:psychology*; D002648:Child; D017281:Cost of Illness; D005260:Female; D005382:Financing, Personal; D018380:Hematopoietic Stem Cell Transplantation / Q000191:economics / Q000523:psychology*; D006801:Humans; D008297:Male; D010287:Parent-Child Relations; D010290:Parents / Q000523:psychology; D010549:Personal Satisfaction; D011594:Psychometrics; D011788:Quality of Life / Q000523:psychology; D015203:Reproducibility of Results; D012649:Self Concept; D011795:Surveys and Questionnaires