title: Self-reported health, self-management, and the impact of living with inflammatory bowel disease during adolescence.
abstract: Perceptions of living with inflammatory bowel disease (IBD) during adolescence were explored in a cross-sectional study with a multimethod design. The adolescents as a group described general well-being and ability to handle the disease, which was related to their self-reported self-esteem. However, a subgroup of adolescents with a severe disease course reported a more negative view of the impact of IBD in their daily lives. Encouraging adolescents to communicate in different ways may help professionals to identify vulnerable subgroups with impaired health and to provide more appropriate support and treatment for those most in need.
authors.affiliation: Department of Pediatrics, Sahlgrenska Academy, University of Gothenburg, Göteborg, Sweden. helene.lindfred@vgregion.se
authors.forename: Helene
authors.initials: H
authors.lastname: Lindfred
authors.forename: Robert
authors.initials: R
authors.lastname: Saalman
authors.forename: Staffan
authors.initials: S
authors.lastname: Nilsson
authors.forename: Carina
authors.initials: C
authors.lastname: Sparud-Lundin
authors.forename: Margret
authors.initials: M
authors.lastname: Lepp
mesh_terms: D000293:Adolescent; D001294:Attitude to Health; D003430:Cross-Sectional Studies; D059026:Diagnostic Self Evaluation; D005260:Female; D006801:Humans; D015212:Inflammatory Bowel Diseases / Q000523:psychology* / Q000628:therapy; D008297:Male; D015404:Nursing Methodology Research; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology*; D012648:Self Care / Q000523:psychology*; D012649:Self Concept; D057566:Self Report; D012720:Severity of Illness Index