title: Starting from scratch: the development of the Adolescent Quality of Life-Mental Health Scale (AQOL-MHS).
abstract: This article documents the initial development of a Spanish mental health quality of life (QOL) instrument based on the adolescents' own assessment of important domains to their QOL. Using a grounded theory approach, we targeted five mental health disorders: attention deficit hyperactivity disorder, conduct disorder, oppositional defiant disorder, generalized anxiety disorder, and major depressive disorder. In-depth interviews (n = 40) and three focus groups (n = 20) were conducted and analyzed using qualitative methods to guide the development of items. A convenient sample of island Puerto Rican adolescents aged 12-18 was recruited from outpatient mental health clinics. Qualitative analysis revealed a total of 87 themes. They were distributed based on core QOL domains such as (1) Self, (2) Peers, (3) Family, (4) School, and (5) Environment. Items were written based on prevailing themes and using as closely as possible, words and phrases used by the adolescents to describe their views and perceptions of QOL. The goal for the AQOL-MHS is to pinpoint specific areas of health-related QOL for each psychiatric diagnostic group that will provide valuable information to assist both patients and providers set, define and evaluate adequate mental health treatment goals.
authors.affiliation: Behavioral Sciences Research Institute, University of Puerto Rico, San Juan, 00936-5067, USA. ligia.chavez@upr.edu
authors.forename: Ligia
authors.initials: L
authors.lastname: Chavez
authors.forename: Karen
authors.initials: K
authors.lastname: Mir
authors.forename: Glorisa
authors.initials: G
authors.lastname: Canino
mesh_terms: D000293:Adolescent; D001008:Anxiety Disorders / Q000523:psychology*; D001289:Attention Deficit Disorder with Hyperactivity / Q000523:psychology; D019958:Attention Deficit and Disruptive Behavior Disorders / Q000523:psychology*; D002648:Child; D019955:Conduct Disorder / Q000523:psychology; D003865:Major Depressive Disorder / Q000523:psychology*; D005260:Female; D017144:Focus Groups; D006801:Humans; D008297:Male; D011594:Psychometrics / Q000295:instrumentation; D036301:Qualitative Research; D011788:Quality of Life / Q000523:psychology*; D011795:Surveys and Questionnaires