title: A new taxonomy for stakeholder engagement in patient-centered outcomes research.
abstract: Despite widespread agreement that stakeholder engagement is needed in patient-centered outcomes research (PCOR), no taxonomy exists to guide researchers and policy makers on how to address this need. We followed an iterative process, including several stages of stakeholder review, to address three questions: (1) Who are the stakeholders in PCOR? (2) What roles and responsibilities can stakeholders have in PCOR? (3) How can researchers start engaging stakeholders? We introduce a flexible taxonomy called the 7Ps of Stakeholder Engagement and Six Stages of Research for identifying stakeholders and developing engagement strategies across the full spectrum of research activities. The path toward engagement will not be uniform across every research program, but this taxonomy offers a common starting point and a flexible approach.
authors.affiliation: Institute for Clinical Research and Health Policy Studies, Tufts Medical Center and Tufts University School of Medicine, Boston, MA 02111, USA. tconcannon@tuftsmedicalcenter.org
authors.forename: Thomas W
authors.initials: TW
authors.lastname: Concannon
authors.forename: Paul
authors.initials: P
authors.lastname: Meissner
authors.forename: Jo Anne
authors.initials: JA
authors.lastname: Grunbaum
authors.forename: Newell
authors.initials: N
authors.lastname: McElwee
authors.forename: Jeanne-Marie
authors.initials: JM
authors.lastname: Guise
authors.forename: John
authors.initials: J
authors.lastname: Santa
authors.forename: Patrick H
authors.initials: PH
authors.lastname: Conway
authors.forename: Denise
authors.initials: D
authors.lastname: Daudelin
authors.forename: Elaine H
authors.initials: EH
authors.lastname: Morrato
authors.forename: Laurel K
authors.initials: LK
authors.lastname: Leslie
mesh_terms: D002965:Classification; D006287:Health Planning Guidelines; D006801:Humans; D017063:Outcome Assessment, Health Care / Q000145:classification* / Q000379:methods*; D018802:Patient-Centered Care / Q000145:classification* / Q000379:methods*