title: Research ethics education for community-engaged research: a review and research agenda.
abstract: Community engagement is increasingly becoming an integral part of research. "Community-engaged research" (CEnR) introduces new stakeholders as well as unique challenges to the protection of participants and the integrity of the research process. We--a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and CEnR--have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, as well as what we still need to learn, in order to develop quality research ethics educational materials tailored to the full range of stakeholder groups in CEnR.
authors.affiliation: Neiswanger Institute for Bioethics and Health Policy, Stritch School of Medicine, Loyola University Chicago, Maywood, IL 60153, USA. emanderson@lumc.edu
authors.forename: Emily E
authors.initials: EE
authors.lastname: Anderson
authors.forename: Stephanie
authors.initials: S
authors.lastname: Solomon
authors.forename: Elizabeth
authors.initials: E
authors.lastname: Heitman
authors.forename: James M
authors.initials: JM
authors.lastname: DuBois
authors.forename: Celia B
authors.initials: CB
authors.lastname: Fisher
authors.forename: Rhonda G
authors.initials: RG
authors.lastname: Kost
authors.forename: Mary Ellen
authors.initials: ME
authors.lastname: Lawless
authors.forename: Cornelia
authors.initials: C
authors.lastname: Ramsey
authors.forename: Bonnie
authors.initials: B
authors.lastname: Jones
authors.forename: Alice
authors.initials: A
authors.lastname: Ammerman
authors.forename: Lainie Friedman
authors.initials: LF
authors.lastname: Ross
mesh_terms: D019985:Benchmarking; D003256:Community Participation; D028744:Ethics Committees, Research; D032984:Ethics, Research / Q000193:education*; D006801:Humans; D012107:Research Design; D012108:Research Personnel / Q000193:education; D012111:Residence Characteristics