title: [Data quality or differences in oncological care? - standards of reporting for cancer survival analyses based on registry data].
abstract: BACKGROUND
  The results of population-based cancer survival analyses are essential criteria with regard to the evaluation of oncological care. Their use and their interpretation as such require knowledge and transparency with regard to the data basis in order to avoid inadequate conclusions.
  
  
  METHODS
  The working group 'survival analysis' of the Association of Population-Based Cancer Registries in Germany (GEKID) has identified factors within cancer registration and data evaluation which may distort population-based cancer survival analyses to a relevant degree. Recommendations in terms of standards of reporting were developed by mutual consent following empirical studies and discussions within GEKID.
  
  
  RESULTS
  We provide a list of 17 indicators to be taken into account and to be presented within the scope of population-based survival analyses.
  
  
  CONCLUSIONS
  Referring to the "standards of reporting concerning population-based cancer survival analyses" introduced by GEKID there is a proposal on data transparency on hand, which might contribute substantially to the assessability of outcome quality in oncological care.
authors.affiliation: Behörde für Gesundheit und Verbraucherschutz, Hamburgisches Krebsregister, Hamburg. Alice.Nennecke@bgv.hamburg.de
authors.forename: A
authors.initials: A
authors.lastname: Nennecke
authors.forename: B
authors.initials: B
authors.lastname: Barnes
authors.forename: H
authors.initials: H
authors.lastname: Brenner
authors.forename: A
authors.initials: A
authors.lastname: Eberle
authors.forename: K
authors.initials: K
authors.lastname: Emrich
authors.forename: N
authors.initials: N
authors.lastname: Eisemann
authors.forename: K
authors.initials: K
authors.lastname: Geiss
authors.forename: S
authors.initials: S
authors.lastname: Hentschel
authors.forename: B
authors.initials: B
authors.lastname: Holleczek
authors.forename: K
authors.initials: K
authors.lastname: Kraywinkel
authors.forename: R
authors.initials: R
authors.lastname: Stabenow
authors.forename: H-W
authors.initials: HW
authors.lastname: Hense
mesh_terms: D003627:Data Interpretation, Statistical; D005858:Germany / Q000453:epidemiology; D019983:Guideline Adherence / Q000706:statistics & numerical data*; D006801:Humans; D019221:Mandatory Reporting; D009369:Neoplasms / Q000401:mortality* / Q000628:therapy*; D017410:Practice Guidelines as Topic; D015995:Prevalence; D012042:Registries / Q000592:standards* / Q000706:statistics & numerical data; D016019:Survival Analysis; D015996:Survival Rate; D016896:Treatment Outcome